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  1. #1
    ICN Member
    Join Date
    Aug 2014
    Posts
    84

    Anyone tried PTNS??

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    PTNS is the next treatment option I'm considering. I'd like to hear feedback specifically about PTNS (I'm not interested in Interstim) - success stories, or if you had problems with it. Are there any side effects? My understanding is it's pretty non-invasive, but can anything go wrong?

    My flares involve bladder tenderness and pressure and A LOT of frequency. I don't have pain 24/7, but only as my bladder fills, which then results in pain, which leads to hesitancy and retention.

    I have tried:
    Diet
    Physical therapy
    Noritriptyline
    Steroids
    Overactive bladder meds
    Valium
    Flomax
    Bladder instills

    Your stories and feedback would be appreciated!

  2. #2
    ICN Member
    Join Date
    Mar 2007
    Location
    California
    Posts
    112

    Re: Anyone tried PTNS??

    I know this is an old thread, but for anyone else interested in this, there is a big section on this in the The Interstitial Cystitis Solution book Nicole and Jesse Cozean .
    Diagnosed with IC in 2005, PFD in 2016. Two other family members with IC.

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