Latest Blog Article: Ten Tips For Talking IC With Friends & Family
Results 1 to 13 of 13
  1. #1
    ICN Member
    Join Date
    Apr 2015
    Location
    California
    Posts
    196

    Coffee substitute

    Advertisement :
    I have a question. I just spent $30 on Amazon for some different coffee alternatives...I just cannot accept that I am no longer allowed to have my favorite drink. =( I am having a really hard time with this...I am not a big hot tea fan. So, one of the things I bought was Cafix. And I really like it! The ingredients are : Barley, Rye, Chicory & Sugar Beets. Does anyone know why or if any of the ingredients could cause a flare?? I seem to be having a mild flare right now and was fine and feeling "normal" until I drank that. SO FRUSTRATED RIGHT NOW.

  2. #2
    ICN Member
    Join Date
    Apr 2014
    Posts
    829

    Re: Coffee substitute

    LaraLee, it took me awhile but I finally realized that all coffee and coffee substitutes I tried made me feel worse. Now I only drink water, usually high alkaline water. I know it sounds boring but it is a heck of a lot better than being in pain. Jo Ann

  3. #3
    ICN Member
    Join Date
    Apr 2015
    Location
    California
    Posts
    196

    Re: Coffee substitute

    Thanks Joann....but I am not quite ready to give up yet...I just ordered a sample or Tylers Coffee...they have alot of high reviews from women with IC...I will post if I am able to drink it without having a flare. I cant give up yet...I love coffee too much!! **BIG SIGH**

  4. #4
    ICN Member
    Join Date
    Feb 2007
    Location
    I live in Chicago IL
    Posts
    3,745

    Re: Coffee substitute

    I gave up coffee a long time ago. It just caused me too much pain in my bladder. For me it is not worth it to keep aggravating my already irritated bladder. It was hard to give it up, but now since I have not had any in so long, I am fine without it. My diet is super restrictive due to IC and other issues( gut). I also am gluten free. You get used to doing without. It is better than the alternative..

  5. #5
    ICN Staff ICNDonna's Avatar
    Join Date
    Mar 2000
    Location
    Oregon
    Posts
    41,963

    Re: Coffee substitute

    There's a low acid coffee available in the ICN Shop. You might give that a try. I can have ONE cup of low acid coffee in the morning.

    Donna
    Have you checked the ICN Shop?
    http://www.icnsales.com for US & Canada
    http://www.icnshop.com for all others

    Patient Help: http://www.ic-network.com/patientlinks.html

    Sub-types https://www.ic-network.com/five-pote...markably-well/

    Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

    AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/




    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
    [IMG]

    Anyone who says something is foolproof hasn't met a determined fool

  6. #6
    ICN Member green_the_fish's Avatar
    Join Date
    Sep 2004
    Location
    A land called Honalee
    Posts
    1,188

    Re: Coffee substitute

    I've never had luck with coffee substitutes. My go-to has been steamed soy milk. Even Starbucks will make it for me, which is even better than spelling my name correctly.

    Chronic conditions: IC, bipolar disorder, Lown-Ganong-Levine syndrome, Raynaud's disease, bile reflux, scoliosis
    Current IC treatments: menstrual suppression, avoiding trigger beverages
    Treatments for other conditions: Neurontin, Zyprexa, Marinol (as needed)

  7. #7
    ICN Member
    Join Date
    Jan 2014
    Posts
    321

    Re: Coffee substitute

    I thought that chicory could be a problem. Maybe that is why you are noticing the Cafix to make you worse. Have you tried Dandelion tea? It's not bad.

  8. #8
    ICN Member raff's Avatar
    Join Date
    Sep 2017
    Posts
    2

    Re: Coffee substitute

    I know this thread is old but I am finding I can't drink any of the coffee substitutes even though they taste good. Very sad about it. I had also found a chicory/chaga "tea" that tasted so good. I loved it, but I can't even have that. All I drink is water now too.

    I wish whatever it is that we all have would just go away. Thank you for your post Joannharllee

  9. #9
    ICN Member
    Join Date
    Apr 2015
    Location
    California
    Posts
    196

    Smile Re: Coffee substitute

    Quote Originally Posted by raff View Post
    I know this thread is old but I am finding I can't drink any of the coffee substitutes even though they taste good. Very sad about it. I had also found a chicory/chaga "tea" that tasted so good. I loved it, but I can't even have that. All I drink is water now too.

    I wish whatever it is that we all have would just go away. Thank you for your post Joannharllee
    Well, since I posted this I have discovered Tiemans Low Acid Coffee. The pH level is around 5.65 which is better than some waters. I am able to drink just one cup in the morning and always drink equal amount of water with it. Worth a try for you? My cousin only has a problem with the caffeine, but I seem to do ok with caffeinated coffee.
    I know...I have shed many tears (and still do) about all the wonderful foods and drinks I am no longer able to have.
    I see women post about remission all the time...I just pray someday that will happen to ALL of us!!

  10. #10
    ICN Member raff's Avatar
    Join Date
    Sep 2017
    Posts
    2

    Re: Coffee substitute

    Thank you LaraLea. I appreciate so much your reply. Having a bad mental health day. One of those days when I'm just so frustrated with my limited amount food and drink. I'm a former three decades coffee addict and just gave it all up so suddenly. It's so helpful to be able to talk to other people that understand. I hear you on the tears. I'm there with you. Thank you again Karen

  11. #11
    ICN Member
    Join Date
    Jan 2016
    Posts
    3

    Re: Coffee substitute

    Postum, made from roasted wheat, wheat bran and molasses is a nice coffee substitute, needs sweetening, and goes well with carob powder too. anything else bothers me as well.

  12. #12
    ICN Member
    Join Date
    Oct 2017
    Posts
    3

    Re: Coffee substitute

    It’s not cofeee, but it’s warm and gives me energy in the morning. It’s called Keto Cocoa. It’s ketogenic hot cocoa

  13. #13
    ICN Staff ICNDonna's Avatar
    Join Date
    Mar 2000
    Location
    Oregon
    Posts
    41,963

    Re: Coffee substitute

    Quote Originally Posted by LaraLea View Post
    Well, since I posted this I have discovered Tiemans Low Acid Coffee. The pH level is around 5.65 which is better than some waters. I am able to drink just one cup in the morning and always drink equal amount of water with it. Worth a try for you? My cousin only has a problem with the caffeine, but I seem to do ok with caffeinated coffee.
    I know...I have shed many tears (and still do) about all the wonderful foods and drinks I am no longer able to have.
    I see women post about remission all the time...I just pray someday that will happen to ALL of us!!
    I think one thing that helps me most is to look at the list of foods that I CAN have --- and concentrate on my favorites. Also --- finding substitutes for some of my favorites is a fun challenge. For example, put a carob candy bar in the microwave for a few seconds, then sprinkle with coarse-ground sea salt --- then cool it before eating. Even though I have to limit salt, I can do this occasionally.

    Try baking some plain cookies --- then frost them with royal icing (I found the recipe online). I think I'm sounding a little like Polyanna, but I find if I concentrate on what is okay for me, it makes my life easier.

    Warm hugs,
    Donna
    Have you checked the ICN Shop?
    http://www.icnsales.com for US & Canada
    http://www.icnshop.com for all others

    Patient Help: http://www.ic-network.com/patientlinks.html

    Sub-types https://www.ic-network.com/five-pote...markably-well/

    Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

    AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/




    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
    [IMG]

    Anyone who says something is foolproof hasn't met a determined fool

Thread Information

Users Browsing this Thread

There are currently 1 users browsing this thread. (0 members and 1 guests)

Bookmarks

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •