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  1. #1
    ICN Member
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    diagnosed with lyme disease too..

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    So I'm Super nervous. On top of IC and pudendal nuralgia I have been diagnosed with lyme disease. I am going to take a mixture of antibiotics,herbs and suppliments. Bladder pain complicates things and so many things makes it worse. When bladder is worse, so is pgad. But lyme HAS to be treated. I feel so stuck.

  2. #2
    ICN Member
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    Re: diagnosed with lyme disease too..

    Do you have chronic Lyme disease? That could even be what is causing your IC..











    Quote Originally Posted by Lhdaniell View Post
    So I'm Super nervous. On top of IC and pudendal nuralgia I have been diagnosed with lyme disease. I am going to take a mixture of antibiotics,herbs and suppliments. Bladder pain complicates things and so many things makes it worse. When bladder is worse, so is pgad. But lyme HAS to be treated. I feel so stuck.

  3. #3
    ICN Staff ICNDonna's Avatar
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    Re: diagnosed with lyme disease too..

    I'm so sorry you have been hit from so many directions. I hope the lyme treatments work well so you can at least get rid of that one.


    Donna
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  4. #4
    ICN Member
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    Re: diagnosed with lyme disease too..

    Oh my gosh, I'm so sorry to hear this. But I agree with Jen, maybe this is the source of your problems and maybe relief could still be in your future. I know you've been struggling so much, I pray that through proper treatment this might finally offer you some peace! Please keep me updated!
    Current Therapy:
    Pelvic Floor PT exercises
    Diet

    Past Therapy:
    Sacral Neuromodulation (twice)
    Pudendal Nerve Stimulation
    Bladder instillations (self-administered daily)
    Lidocaine urethral injections
    5 Antispasmodic OAB medications
    Biofeedback
    Cyclosporine
    Elmiron
    Botox (200 IU)

  5. #5
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    Re: diagnosed with lyme disease too..

    Thanks ladies! I'm so scared cause some suppliments hAve folic acid and b12 or b complex vitamins.... !

  6. #6
    ICN Founder icnmgrjill's Avatar
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    Re: diagnosed with lyme disease too..

    Lyme disease can certainly cause some bladder and IC like symptoms so it's absolutely great that you can now be treated. With luck that can help resolve some of your bladder symptoms. I really hope so!

    Folic acid and B12 are fine for IC. It's just the C and B6 that can be irritating. You could try the MultiRight Low Acid multivitamin too. It uses a low acid form of vitamin C, calcium ascorbate. For calcium, it uses calcium glycerophosphate which happens to be the active ingredient of Prelief. And, as a filler, it uses a little bit of sodium bicarbonate that reduces any residual acid from the B6, etc. We have it in our shop at: http://www.icnsales.com

    I'm going to put your post in our newsletter and ask other lyme sufferers to chime in on what helps them!

    Hugs!

    Jill O.
    Would you like to talk with someone about your IC struggles? The ICN now offers personal coaching sessions that include myself, Julie Beyer RD on the diet and Dr. Heather Howard on Sexuality. http://www.icnsales.com/icn-personal-coaching/

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  7. #7
    ICN Member
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    Re: diagnosed with lyme disease too..

    Thanks for the tips,Jill!

  8. #8
    ICN Member
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    Re: diagnosed with lyme disease too..

    Quote Originally Posted by icnmgrjill View Post
    Lyme disease can certainly cause some bladder and IC like symptoms so it's absolutely great that you c an now be treated. With luck that can help resolve some of your bladder symptoms. I really hope so!

    Folic acid and B12 are fine for IC. It's just the C and B6 that can be irritating. You could try the MultiRight Low Acid multivitamin too. It uses a low acid form of vitamin C, calcium ascorbate. For calcium, it uses calcium glycerophosphate which happens to be the active ingredient of Prelief. And, as a filler, it uses a little bit of sodium bicarbonate that reduces any residual acid from the B6, etc. We have it in our shop at: http://www.icnsales.com

    I'm going to put your post in our newsletter and ask other lyme sufferers to chime in on what helps them!

    Hugs!

    Jill O.
    Jill, the concern is now, that 8 months ago I had 20 hours of silver nitrate following polyp removal surgery out of the neck of my bladder. That was before I knew the danger of silver. The concern now between me and my Lyme dr. Is that by stripping the lining of my bladder,when the new lining grew back, it pushed the parasites farther back now between bladder and lining. A possible theory. Our hope is treatment will still help and kill the parasites,if this is the reason for bladder pain.

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