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  1. #1
    ICN Member Bekah79's Avatar
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    May 2009
    North Texas

    Question White Flaky Specks in Urine

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    I am doing a voiding diary this week and I noticed some white flaky specks floating in my urine. I have never seen anyhing like this before. What could it be? Is it anything I need to be overly concerned about to the point of going to the uro or the ER. I had another culture taken Friday and I just learned an hour ago that it was negative. So the infection finally cleared up and the burning is almost gone away but the constant "gotta go" feeling is driving me crazy. I'm having a very difficult time completely emtying my bladder. I've got a little over 6 weeks left on my medical leave to get my bladder healthy enough to work. I'm not sure if that is going to happen. I am very frustrated with my progress. I don't think the elmiron is helping. I have another rescue instillation scheduled for this coming Friday and two more for next. I need a major healing to take place. Please everyone, pray for me.
    Last edited by Bekah79; 09-15-2009 at 08:31 AM.
    Rebekah - Diagnosed with IC and Hunner's Ulcers in March 2009

    Two Hunner's Ulcers were removed by laser surgery surgery Jan 15 , 2010

    Proud Mother of Jeremy Jr. Born on Wed May 4, 2011

    "For every door that is closed a new one is opened"

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    As we forgive those who trespass against us.
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  2. #2
    ICN Member Mothergoose's Avatar
    Join Date
    Mar 2008
    The white flacky thigs are quite comman, nothing to worry about, you can look up old posts about this it has been talked about quite often.


  3. #3
    ICN Member Maylies~Momma's Avatar
    Join Date
    May 2007
    Yes, as MG stated, it's very common. I notice it quite often in my urine and I remember reading a post where someone else was asking about it. I believe it was ICDonna (I could be wrong) that stated that when you aren't feeling well, or in your case doing a vioding journal that kind of thing sticks out a lot more, where as we normally wouldn't notice it. I hope you start feeling better soon!
    Mommy to Mahayla 3-21-07 and Dalilah 4-7-08
    Wife to Casey 2-11-2006
    Diagnosed w/ IC in 2005
    Currently taking:
    Elvail 25mg at night as needed
    (Home) Elmiron/Bicarb/Lidocaine Instills up to twice a day as needed
    Hydrocodone as needed for pain (from GP when in flares)

    Have not been to uro in over a year and have had to stop all meds because of the expense

  4. #4
    ICN Member Skynard's Avatar
    Join Date
    Sep 2009
    You are in my prayers! Hope you feel better soon.....a cure is right around the corner!!!!!
    IBS diagnosed - 1987
    Severe IC diagnosed - July 10, 2009 (Sister diagnosed 2004)


    Allergic to: Penicillan, Imitrex, Levbid, Loestrin, Detrol, Cipro, Morphine, Dilaudid, Pryridium Plus, Fentyl,Toradol, Neurontin, Zoloft, Amitriptyline, , Elmiron, Atarax, Levaquin and most generics.

    Tried: Dye Free Benadryl (nausea) and Prelief

    Trying: Valium Suppositories, Vitamin E Suppositories, Estrace Cream, Marcaine Home Instills and Lutera.

    Emergency Flare Meds: Percocet (pain management), Valium (anxiety management) and Pyridium (before installations).

    What's working: Cystoprotek, Shaklee Pro/Prebiotics and DH Aloe Vera.

    * Stay with me God the night is dark, the night is cold. My little spark of courage dies. The night is long. Be with me God and make me strong.

  5. #5
    ICN Staff ICNDonna's Avatar
    Join Date
    Mar 2000
    Even a healthy bladder will shed some flaky stuff occasionally. Try not to worry --- I hope you feel better very soon.

    Have you checked the ICN Shop? for US & Canada for all others

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  6. #6
    ICN Member Holly G.'s Avatar
    Join Date
    Oct 2007
    Brandon, Florida
    I hope you feel better soon as well. I get freaked out about stuff all the time so it's good that you asked someone.

    I see the little flakes too, or what I think you might be talking about.

    I'll pray for you tonight, I promise!

    Diagnosed by symptoms: 8/12/2009
    Thought I had Overactive Bladder for several years and even had episodes of frequency in childhood.
    My symptoms are mild, mostly frequency, urgency, bladder irritation and faint bladder spasms.
    Tried: Ditropan, Detrol, Vesicare, Enablex...didn't help.
    Interstim trial in 2008..wasn't impressed with the trial, but may try again in the future
    Heparin/lido Instills of 20 cc's as of 8/12/09
    IC Diet
    10mg Elavil
    Lot's of water

    Potassium test on 8/14/09--very mild reaction, a 1 on a scale of 1-10.

  7. #7
    Support Leader Julie B's Avatar
    Join Date
    Mar 2000
    Clarkston, Michigan
    I have had this a few times in the 11 years since I have been diagnosed. For me, it usually comes during a nasty flare. When I void, it can be kind of scary...almost like sunburned skin peeling. The interesting thing is that after it happens I feel perfectly fine! It is almost like the flakes of skin (or whatever it is) irritate the urethra.

    I sure hope you feel better soon!!
    Julie Beyer, MA, RDN
    IC Dietitian, Patient Advocate, Speaker, & Author

    Did you know that up to 94% of interstitial cystitis patients find some symptom relief when they change their diet, and that dietary modification is recommended as a first line treatment for IC? Check out the IC Food List to get started!

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