Latest Blog Article: Beaumont Study Seeks Women With IC/BPS (Royal Oak, MI)
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  1. #31
    ICN Member
    Join Date
    Feb 2017

    Re: Water and PM-ing!

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    thank you

  2. #32
    ICN Member
    Join Date
    Sep 2000

    Re: Water and PM-ing!

    Quote Originally Posted by Jesus Girl View Post
    thank you
    I should add that since then I've tried other alkaline waters depending on what is available locally - right now I'm drinking alkaline waters such as Trader Joe's brand with electrolytes, Alkaline 88 Water, and sometimes Smart Water. When I can't find those I get Fiji. I hope this helps.
    [SIZE="2"][FONT="Lucida Console"]
    My blog:
    1995 - Original symptoms: urethral pain and knife in the left side of vulva. Dx'd with "urethral syndrome" 1997- Dx'd with IC (potassium test) by Dr. Lowell Parsons. Tried all "usual" IC treatments, Elmiron, Atarax, DMSO, heparin, lidocaine instillations. 2000- First hydrodistention by Dr. Daniel Curhan, classic IC glomerulations & mast cells. 2005 - 2nd hydrodistention by Dr. Christopher Payne, Stanford University; dx'd with "refractory" Interstitial Cystitis. 2006 - Dx'd with left pudendal neuralgia by Dr. Jerome Weiss, had two unguided nerve blocks, pain worsened. 2008 - Botox, unguided intravaginal blocks (*WARNING* risk of further damage) by Dr. Felicia Lane; PT with Julie Sarton. 2010 - PNE (Pudendal Nerve Entrapment) surgery, TG approach, by Dr. Michael Hibner. (FAILED) 2011- PNE surgery by Dr. A. Lee Dellon, frontal approach. (FAILED)
    Jan, 2012 - Dx'd with "centralized pain" by Dr. Joshua Prager, UCLA Pain Management. 3-day ketamine infusion, nearly pain-free!!! Bad news: Bladder flared as ketamine is known bladder irritant. Oct, 2012 - Pain pump trial on Dr. Prager's recommendation. Awesome results!
    Nov. 13, 2012 - Surgery to implant intrathecal pain pump, which has been a lifesaver! Success at last! Thank you Dr. Prager!

  3. #33
    ICN Member
    Join Date
    Feb 2017

    Re: Water and PM-ing!

    Thank you again for your help. Sometimes it can be very daunting trying to find the right things to eat or drink when you have IC. Most doctors I have went to do not have a clue or else they are just too busy to care. They have so many other patients. Even the urologists that I have went to do not want to discuss what I eat or drink. It can be a lonely process but the Lord has helped me every step of the way encouraging me along the way.

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