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  1. #1
    Registered User Nicoledenise's Avatar
    Join Date
    Feb 2006
    San Diego, California

    Question Dizziness when eyes closed

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    Okay, I know this doesn't necessarily pertain to my IC flares, but lately, I have been noticing occasional dizziness when I am lying down and my eyes are closed. It seriously feels as though I am spinning counter-clockwise and I have to open my eyes to make it stop. I will close my eyes again and then the immense spinning will start again and then the minute I open my eyes, it stops. Wierd.

    I was just diagnosed with Fibromyalgia and I am wondering if that is a symptoms if Fibro. Do those of you with Fibro get this sort of dizzy feeling.
    I think dizziness can be a symptom of Fibro, but like this? I also had all my electrolytes tested and they are all fine, so it's not that.

    Thanks for your support

    Nicole Denise Strickland

    Diagnosed with Interstitial Cystitis and Endometriosis in May, 2004.
    Diagnosed with Fibromyalgia March, 2006.

    Surgical Interventions:
    2 Cystoscopies with Hydrodystension for I.C
    5 Laparoscopies (total in my lifetime) for diagnosis and/or treatment of ovarian cysts and endometriosis

    Medical Interventions I have tried: Elmiron, Bladder Instillations (Heparin Cocktails) Neurontin, Elavil, Hydroxyzine, Lexapro, Desogen, Topamax, prescription pain medication, trigger point injections.

    Current Medications: Topomax 100mg (to be increased), Continuous Birth Control Pill (Desogen), Lexapro 15mg, Elmiron 400mg, Atarax 25mg, occasional Ambien for sleep, to start Cymbalta soon and Prelief

    Remember that you are never alone

  2. #2
    ICN Staff ICNDonna's Avatar
    Join Date
    Mar 2000
    Have you talked with your doctor? It could be labrynthitis (vertigo), which is an inner ear problem.

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  3. #3
    ICN Member Eccles's Avatar
    Join Date
    Dec 2004
    Labrynthitis has long been one of my CFS/fibro symptoms. Now I take a Serc (UK name - it's betahistine dihydrochloride) tablet at the first sign of dizziness.

  4. #4
    ICN Member
    Join Date
    Dec 2004
    I have experienced this with sinus infections.

  5. #5
    ICN Member TKC's Avatar
    Join Date
    Dec 2005

    Dizzyiness and Fibro

    I have fibromyalgia as well, but noticed having dizziness (some worse days than others) before the fibro. An ENT did tests and said I have BPPV--which is benign positional vertigo. I don't spin all the time, but get lightheaded when I move my head from side to side or up and down.

    People with FM are prone to dizziness, so it's best to be checked out and then if nothing shows up, then you can simply say it's FM. When I have a bad day I take Bonine (OTC-meclezine) and told to do vestibular exercises. I think you can even download the exercises online. It's simple movements that will make you dizzy, however, trains the brain to not be so sensitive to movement.

    Good luck,

  6. #6
    ICN Member
    Join Date
    Aug 2004
    Spring Grove, PA

    Dizziness with eyes closed

    A few months back I was having a problem with getting dizzy when I lay down and roll over on my left side. It turned out to be my right ear having a slight ear infection in it. The doctor prescribed a nasal spray. It did work, it got rid of the infection and dizziness.


  7. #7
    ICN Member sweetangel2080's Avatar
    Join Date
    Jul 2005
    I have been getting dizziness and low blood pressure and fatigue but helped by betahistine. Am concerned though as it is a histamine- is anyone else on this?

    I thought my symptoms were due to a cold but nearly 2 weeks later, still need the meds for dizziness or otherwise cannot function as am soooo sleepy and can't function properly.
    IC diagnosis: Aug 2005
    Symptoms: Urgency, urge and irritation and urethral symptoms
    Flareup for 1 year til July 2007 (had constant urge and pain et al....)

    Elmiron 100mg 3x daily April 2006 - present
    Enablex 7.5mg nightly Sep 2007 -present
    Atarax, Elavil 10mg nightly (Dec 2007)
    Acupuncture - November 2007 - present

    (Past meds for IC- Cystistat, Elavil 30mg, Ditropan, long term a/bs, Prednisolone, Cimetidine, Neurontin)

  8. #8
    IC Friend sandy199's Avatar
    Join Date
    Jul 2007

    May be the Elmiron

    This is just my opinion but it may be the Elmiron.

    I can handle tons of pain medications etc. without much problem but as soon as I get back on the Elmiron there is awful dizziness and vertigo.

    I'm thinking Elmiron has more serious side effects now than was orginally indicated. The only way to tell is stop it for a few days and see if the vertigo improves.

  9. #9
    ICN Member
    Join Date
    Dec 2004
    This thread is about a year old. Hopefully Nicole has found relief from these symptoms by now, but the info in this thread may still be relevant and helpful.
    Best wishes to all.

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