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  1. #1
    ICN Founder icnmgrjill's Avatar
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    Exclamation Is Interstim for pain control??

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    Many patients keep asking the same question... is Interstim successful in treating pain control??

    The answer to this question is complex. At no time has Interstim ever been approved for pain control by the FDA. Rather, it was originally approved for patients who struggled with incontinence. That definition was then later expanded to included patients with frequency & urgency. If you review the Interstim website (http://www.interstim.com), you'll see absolutely NO reference to pain control. If you go to the FDA website and search for Interstim (http://www.fda.gov), you'll see NO reference to pain control.

    Why is this impression out??? Rarely, very rarely, we have heard from a patient or two that it helped with pain. In ten years, I can think of just one patient who felt that it was very successful for them. For the vast majority, we simply haven't seen any consistent pain resolution or control. In fact, for some, the procedure and device itself created more pain.

    If a sales representative from Medtronic suggests to you that it is helpful for pain relief, please ASK for evidence proving that. Ask for a research study. If a physician suggests that it can help with pain, please ask if you can talk, personally, with those patients who have seen an improvement.

    Remember our Oxford Scale for Rating the Quality of Information that you might receive. An "F" ... the worst score of all... is from someone trying to sell you something. We have to remember that they may be biased to "sell" a device and create a sale. In fact, just a few years ago, Medtronic announced that it was under investigation by the Department of Justice for paying kickbacks to physicians for doing spinal implant surgery. While this was not the Interstim division, it certainly suggests caution.

    Jill
    Would you like to talk with someone about your IC struggles? The ICN now offers personal coaching sessions that include myself, Julie Beyer RD on the diet and Dr. Heather Howard on Sexuality. http://www.icnsales.com/icn-personal-coaching/

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    Please remember that the information on the ICN is provided with the understanding that ICN, its founder, staff, volunteers, and participants are not engaged in rendering medical or professional medical services. We cannot and do not give medical advice. Only your personal physician can do this for you.







  2. #2
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    I am so glad you posted this, I had a call about this myself and sent this link for her to verify what I said.

  3. #3
    ICN Member tigger_gal's Avatar
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    Thanks Jill.. I appriciate this sticky
    'The will of God will never take you where the Grace of God will not protect you.'

  4. #4
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    I am a new member!
    Just recently I was going though a very serious crisis and now my dr. has recommended the trial (nerve stim...) I was glad to discovery this website. Today I was feeling very low about the IC it was discover two years ago when I under went a hysterectomy and a total hip replacement.(within the same yr). I was very concern about this method of treatment due to fact I must undergo annual testing for my hip replacement and must use every measure to prevent infection near the hip. Thanks to God I discover this website at least now I dont feel all along. My husband has stood by my side and I would hate to undergo a trial that may create more problems for me.

  5. #5
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    One of the uro's I saw told me that since I was in so much pain when he did an internal exam and touch my bladder that Interstim would work for me!
    After suffering with IC for 40 years, my bladder was removed in Dec 05...YAY!

  6. #6
    ICN Member tigger_gal's Avatar
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    I would ask your doctor to let you speak to the patients that he has had success with for pain. I am not understanding that when he did an internal exam and touched your bladder that he knew Interstim would work. Every time I have an internal exam, I about jump off the table.. I am guessing that he thinks that the interstim will help you for your pain.. I don't want you to go into this thinking it will help you for pain relief. I have looked and looked and cannot find anything that says that interstim will help pain. The first think my ic specialist told me that it is not, and it will not help my pain.

    compjas.... go to www.interstim.com and learn more.. also you can go to the fda web sight and read about things on the interstim..

    please don't let someone tell you that this is for pain.. I have one, and I assure you it is not.
    'The will of God will never take you where the Grace of God will not protect you.'

  7. #7
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    My first thoughts on a Dr that say it will do pain control is that the cost of this procedure is outragous and a good money maker for dr.'s. Mine including both procedures was close to $70,000. That is a good chunk of change and a fast money maker. If they do 5 a day, once a week. thats a nice pay check.

    I would highly recommended several opions if your dr. has offered this for apin relief.

  8. #8
    IC Friend Dianne's Avatar
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    I've been researching this and talked to both Drs. and Medtronics this week. The rep. didn't try and bill it to me for pain. The pain clinic dr. doesn't think interstim is the answer but instead a spinal cord stimulator which is similar but slightly different which is placed quite a bit higher up than interstim. It would affect pain as opposed to urgency/frequency. I still want another option in the worst way but I can't find anything I haven't already done.

  9. #9
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    See, I am very upset b/c I just saw the IC specialist I have been waiting forever to see and she is pushing the Interstim as a method for pain control. She even told my mom that it has an 85% success rate for controlling pain. SO I will ask to talk to someone who has had success for pain control. I was considering doing the trial just to make sure but I have to admit I am scared to do it. I just dont know how to talk to her and make her understand it isnt for pain. I tried to say that on the website it said it wasnt for pain, but she just brushed it off and said that they werent allowed to say it was for pain b/c of the FDA.
    Anyway, thanks for the sticky.
    Sarah

  10. #10
    ICN Member tigger_gal's Avatar
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    Sarah,
    I haveh ad the interstim without any problems for 3 years.. My uro Dr Peters and IC Specialist, top 10 in the united states told me under no circumtances is the interstim for pain. Interstim is only for frequency and urgency. Also it has helped many with rention. I have been on these boards since 2001 (had to re-inroll in 2002, because I lost all my contact info when I didn't have a pc for a year) and of all the ladies that have gotten the interstim, only 1 has said it has helped there pain..... Interstim may help your urgency pain.. mine was horrid, and I about passed out when I had to go. But it will not help your bladder pain or flare pains... if you want me to explain this to anyone for you please feel free to email me and let me know..
    'The will of God will never take you where the Grace of God will not protect you.'

  11. #11
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    I was also told the same thing by my IC specialist.DON"T DO THIS FOR PAIN you are wasting your money and his time. Please do more research on this. I would hate for you to be dissapointed.

    EXAMPLE>>> I just had a complete hysterectomy and my bladder pain has skyrocketed. My Interstim has been useless for my pain, actually I think it is making things worse right now and have turned it off for the time being.

  12. #12
    Guest emilyrose197377's Avatar
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    Ty jill for posting this the interstim is also used for urinary retention also not just urgency and frequency. It does not help my ic pain at all.

  13. #13
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    THanks ladies. I thought that b/c of what i have read on here but when I tried to tell her that, she just kinda brushed that aside. Then she told my mom it has a 80 % success rate, which made me mad. I am not going to see her again.
    Sarah

  14. #14
    ICN Member tigger_gal's Avatar
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    she really needs to get her facts straight... if she is telling you it is for pain, she would not be the one operating on my spine... she dose not sound like she is knows about the interstim. go to www.interstim.com and send for the free info.. also get a secondopinion.. and a third.. also find out there success rates..
    'The will of God will never take you where the Grace of God will not protect you.'

  15. #15
    ICN Member littlemyrn's Avatar
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    My new IC doctor has also suggested Interstim. I do have freq. and urg. but since she has given me 2 mg. valium to take in am. that has almost disappeared. I am talking I can now go 2 hrs. without having to go, BUT I AM STILL IN ALOT OF PAIN. Right side pelvic, shoots down leg, constant back ache that radiates and feels like my insides are on fire. I follow the IC diet. Now, do you suggest staying on muscle relaxers to help with spasms or does the interstim make more sense. I do not like the idea of having something implanted, plus she said she would put the box in my fat in butt, I have no butt or fat there, very thin. I also hate that I have to take valium and other pain meds daily to get through my busy day. Work part time and have two children that are very active in all activities. What do ya'll suggest? Can you tell I am from the south? Thanks, I love you guys here.

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