Review the latest research and industry news for interstitial cystitis and bladder pain syndrome, as well as the related conditions of pelvic floor dysfunction, chronic pelvic pain syndrome, vulvodynia, chronic prostatitis, irritable bowel syndrome and functional somatic syndrome. The Interstitial Cystitis Network is the largest patient support group in the world. Founded in 1995, we provide health education materials, an e-newsletter read by more than 25,000 patients and providers and our magazine, the IC Optimist.
Bene Arzneimittel GmBH, a german pharmaceutical company, announced in late December 2015 that Pentosan polysulphate (aka Elmiron) has been officially registered as an orphan drug for the treatment of interstitial cystitis by the European Medicines Agency, EMA. "Receiving orphan drug status for pentosan polysulphate in the European Union is a great success for bene", says [...]