/News

Review the latest research and industry news for interstitial cystitis and bladder pain syndrome, as well as the related conditions of pelvic floor dysfunction, chronic pelvic pain syndrome, vulvodynia, chronic prostatitis, irritable bowel syndrome and functional somatic syndrome. The Interstitial Cystitis Network is the largest patient support group in the world. Founded in 1995, we provide health education materials, an e-newsletter read by more than 25,000 patients and providers and our magazine, the IC Optimist.

Orphan Drug Status for Pentosan May Deter Lower Price Generics

Bene Arzneimittel GmBH, a german pharmaceutical company, announced in late December 2015 that Pentosan polysulphate (aka Elmiron) has been officially registered as an orphan drug for the treatment of interstitial cystitis by the European Medicines Agency, EMA. "Receiving orphan drug status for pentosan polysulphate in the European Union is a great success for bene", says [...]

By |2017-01-31T08:58:00+00:00January 8th, 2016|Industry News, Interstitial Cystitis Network Blog, News|Comments Off on Orphan Drug Status for Pentosan May Deter Lower Price Generics

Winter 2016 IC Optimist Is Now Available

The Winter 2016 IC Optimist is now available and is being sent to our subscribers! Read the latest news, feature stories, research, self-help tips in our quarterly magazine dedicated to interstitial cystitis and chronic pelvic pain syndrome. Subscribe Today Individual Copy Instant Download Individual Copy Printed Version In this issue: (1) Editorial: Do you have a [...]

By |2017-01-31T08:59:57+00:00December 18th, 2015|ICN Announcements, Interstitial Cystitis Network Blog|Comments Off on Winter 2016 IC Optimist Is Now Available

New Android App Helps Urology Patients Find Bladder Friendly Foods

The ICN Food List Application for Android Devices (Santa Rosa, CA) If you’re scared to drink a cup of coffee out of fear that you’ll spend the day in the restroom, you’re not alone. Mild urinary frequency and urgency are common but for patients with urinary disorders, these same foods can provoke days of pain and [...]

By |2017-01-31T09:00:26+00:00December 10th, 2015|ICN Announcements, Interstitial Cystitis Network Blog, News, Self Care|Comments Off on New Android App Helps Urology Patients Find Bladder Friendly Foods

ICN E-Newsletter – November 24, 2015

We are so grateful to the thousands of patients, researchers, clinicians and sponsors for being part of the IC Network family! We work hard, every day, to help patients in need! Your phone calls, notes and e-mails of gratitude and encouragement mean the world to us! May we be the first to wish you a [...]

By |2017-01-31T09:07:38+00:00November 24th, 2015|ICN Newsletters, Interstitial Cystitis Network Blog, News|Comments Off on ICN E-Newsletter – November 24, 2015

Dr. Robert Echenberg, International Pelvic Pain Expert, Expands Clinic To NYC

Dr. Robert Echenberg, one of the top pelvic pain specialists in the world, has announced that he is expanding his practice to New York City effective December 1st, 2015. He will be seeing patients two days a week in NYC and one day a week in his clinic in Pennsylvania. Known for both his patient compassion [...]

By |2017-01-31T09:08:24+00:00November 24th, 2015|ICN Announcements, Industry News, Interstitial Cystitis Network Blog, News, Pelvic Pain|Comments Off on Dr. Robert Echenberg, International Pelvic Pain Expert, Expands Clinic To NYC

ICN E-Newsletter – October 2015

Sponsored by: Imprimis Pharma - Beaumont Urology - Swati Spentose - CystaQ - Desert Harvest Aloe - MultiRight Low Acid Multivitamin - PainShieldMD #1 - 2015 Awareness Month Recap & Winners September is ALWAYS the busiest month here at the ICN because we also manage the international IC Awareness Month campaign. Every day, new facts and/or [...]

By |2017-01-31T09:53:58+00:00October 21st, 2015|ICN Newsletters, Interstitial Cystitis Network Blog|Comments Off on ICN E-Newsletter – October 2015

Nail Polish Toxins Found In Urine Could Influence Bladder Health

If you love getting a manicure or pedicure, a recent announcement by the Environmental Working Group will make you rethink the brands you might be using. Polishes by Sally Hansen, Essie, OPI, Revlon, Wet N Wild, Spa Ritual, Orly, theBalm, Nuance, Maybelline and Beauty without Cruelty contain a chemical called triphenyl phosphate (TPHP), known for its endocrine-disrupting [...]

By |2017-01-18T12:02:36+00:00October 21st, 2015|Consumer Alerts, Interstitial Cystitis Network Blog, Jill's Journal, Toxic Exposures, Women's Health|Comments Off on Nail Polish Toxins Found In Urine Could Influence Bladder Health

Uk Approves Gepan For Home Use – A Chondroitin Bladder Instillation

Gepan instill, a potential treatment for cystitis and overactive bladder, has been added to the Drug Tariff effective October 1, 2015! This means that people with chronic cystitis and overactive bladder syndrome can now easily treat themselves in the comfort and convenience of their own homes rather than having to go to hospital clinics. This [...]

By |2015-10-17T17:08:26+00:00October 17th, 2015|Industry News, Interstitial Cystitis Network Blog, News|Comments Off on Uk Approves Gepan For Home Use – A Chondroitin Bladder Instillation

Summer/Fall 2015 IC Optimist Released – Now Available For Download

The IC Optimist is the quarterly magazine of the Interstitial Cystitis Network, read by both patients and providers around the world. Read the latest news, promising new research studies, expert interviews, feature articles, self-help tips and diet suggestions! In this issue: (1) Editorial: Preventing Restroom Discrimination In School - When a mother discovered that her [...]

By |2017-01-31T10:04:27+00:00August 20th, 2015|ICN Announcements, ICN Newsletters, Interstitial Cystitis Network Blog, News|Comments Off on Summer/Fall 2015 IC Optimist Released – Now Available For Download

ICN Newsletter – July 31, 2015

Sponsored by: Imprimis Pharma - Beaumont Urology - CystaQ - Desert Harvest Aloe - MultiRight Low Acid Multivitamin - PainShieldMD Feature Stories Have You Suffered From Discrimination on the Job? Twenty five years ago this month, the American's With Disabilities Act (ADA) was passed to stem the tide of layoffs and overt discrimination that occurred (and [...]

By |2017-01-31T10:10:07+00:00July 31st, 2015|ICN Newsletters, Interstitial Cystitis Network Blog, News|Comments Off on ICN Newsletter – July 31, 2015