//Consumer Alerts

Consumer Alerts & FDA Recalls covering medications and other alerts affect interstitial cystitis, bladder and pelvic pain patients

Where is a man with pelvic pain supposed to go?

By Jill Osborne MA Women with pelvic pain have long sought refuge in the offices of their Ob-Gyn when struggling with pelvic pain. Of all of the medical specialties, it is the Ob-Gyn who has the most training and experience in dealing with pelvic pain and pelvic floor disorders. Men, however, have not had such [...]

By | 2017-01-31T13:27:19+00:00 December 13th, 2013|Awareness, Consumer Alerts, Editorial, Industry News, Interstitial Cystitis Network Blog, Jill's Journal, Men's Health, News|Comments Off on Where is a man with pelvic pain supposed to go?

Endometriosis Risk Linked to Two Pesticides

Endometriosis Risk Linked to Two Pesticides Interstitial cystitis and endometriosis are known as the "evil twins" in medical literature because they so often co-exist in patients. Thus, any story which covers endometriosis is certainly of relevance to the IC community. This press releases shares yet more deeply disturbing information about the impact of toxins in [...]

By | 2017-01-31T13:30:16+00:00 November 13th, 2013|Consumer Alerts, Editorial, Endometriosis, Interstitial Cystitis Network Blog, Jill's Journal, Toxic Exposures|Comments Off on Endometriosis Risk Linked to Two Pesticides

Cymbalta Discontinuation Syndrome

Have you ever struggled to reduce the dosage or just get off of an antidepressant? Did you struggle with profound side effects? IC patients trying to wean themselves off of Cymbalta have reported severe, devastating side effects. The FDA recently released an advisory about this syndrome. If you've taken it longer than four weeks and [...]

By | 2013-11-13T12:44:35+00:00 November 13th, 2013|Consumer Alerts, Interstitial Cystitis Network Blog|Comments Off on Cymbalta Discontinuation Syndrome

Toxic Chemical Exposures Linked to Reproductive Health. How about IC?

Last month, the American College of OB-Gyne's and the American Society for Reproduct Medicine issued a joint statement to URGE better control over the release of toxic chemicals into the environment because of their proven role in a wide variety of devastating medical conditions. Women, infants, children and men suffer needlessly from medical conditions like [...]

By | 2017-01-31T13:46:07+00:00 October 7th, 2013|Consumer Alerts, Industry News, Interstitial Cystitis Network Blog, News, Self-Help Tips for IC, Bladder & Pelvic Pain|Comments Off on Toxic Chemical Exposures Linked to Reproductive Health. How about IC?

Essential IC Diet Strategy – Eating Non-Manufactured Foods

One of the consistent themes you'll see in discussions of the IC diet is the importance of avoiding foods that are heavily processed, preserved or enhanced with chemicals. Why? Not only are some of these flavorings and preservatives potentially harmful and carcinogenic, but processed foods are heavily linked with chronic illnesses such as diabetes. Is [...]

By | 2017-01-18T12:07:49+00:00 September 23rd, 2013|Consumer Alerts, ICN Announcements, Interstitial Cystitis Network Blog, News, Self-Help Tips for IC, Bladder & Pelvic Pain|Comments Off on Essential IC Diet Strategy – Eating Non-Manufactured Foods

Your Health & Money Are At Stake

How To Rate Medical Information on the Web If you’re struggling with a medical condition, the treatment decisions you make will be based in part on the information you gather from your doctors, family, friends, books and websites. Your job is to take all that information, sort the good from the bad, the credible from [...]

By | 2017-01-26T23:08:51+00:00 April 5th, 2013|Consumer Alerts|Comments Off on Your Health & Money Are At Stake

Don’t Wait Too Long To Apply For Disability Benefits

IC Patient Almost Loses Benefits I just got off the phone with “Rita,” an IC patient who has gotten herself into a terrible situation. In 2008, she had to stop working due to her IC and other serious medical conditions. As a resident of California, a State Disability Insurance (SDI) fee was deducted from paychecks yet [...]

By | 2017-01-31T14:07:04+00:00 March 27th, 2013|Consumer Alerts, Interstitial Cystitis Network Blog|Comments Off on Don’t Wait Too Long To Apply For Disability Benefits

Beware Green Bean Coffee Extract – Can Cause Bladder Irritation & Pain

Many of you may have heard about the current Green Bean Coffee Extract craze sweeping the internet. Dr. Oz dedicated an episode of his show to discuss popular weight loss trends including a promising study which showed that Green Bean Coffee Extract may help. He launched the Green Coffee Bean Project to conduct some research [...]

By | 2013-01-04T22:40:00+00:00 October 15th, 2012|Consumer Alerts|Comments Off on Beware Green Bean Coffee Extract – Can Cause Bladder Irritation & Pain

Contaminated Steroid Also Used As Nerve Blocks – One IC patient exposed in MN

One IC patient up in Minnesota received dreaded news this past weekend.. that she had been injected with the contaminated steroid that has now caused meningitis in more than 90 patients here in the USA as of this afternoon. She received it in August for a pudendal nerve injection offered by a very credible physician [...]

By | 2017-01-18T12:09:42+00:00 October 8th, 2012|Consumer Alerts|Comments Off on Contaminated Steroid Also Used As Nerve Blocks – One IC patient exposed in MN

Sodium Bicarbonate Solution Shortage Affects Rescue Instillation Treatments

Thanks to Kadi who just let us know about shortage of sterile sodium bicarbonate solution that is used to make many bladder instillations including heparin, elmiron and rescue instillations. Availability is minimal at this time with many pharmacies out of stock. The three manufacturers report have similar outages. Some batches may be arriving later this [...]

By | 2013-01-04T22:38:22+00:00 June 21st, 2012|Consumer Alerts|Comments Off on Sodium Bicarbonate Solution Shortage Affects Rescue Instillation Treatments