What’s New & Announcements from the Interstitial Cystitis Network
(By Jill Osborne) The long awaited new clinical guidelines for the treatment of interstitial cystitis (aka bladder pain syndrome) were released by the American Urology Association (AUA) this month, offering what may be the most comprehensive clinical care article written to date in the USA. Solidly written, it offers new insight into diagnostic testing as [...]
{{{THANK YOU}}} to Tali Keteri and everyone who participated in our 2013 IC Awareness Month campaign! Your posters, patient projects, stories, answers to Tali's questions made this so incredibly meaningful and powerful. Truly, when we speak together, the world will listen and it did! Interstitial cystitis is no longer considered rare, nor an orphan disease. [...]
One of the consistent themes you'll see in discussions of the IC diet is the importance of avoiding foods that are heavily processed, preserved or enhanced with chemicals. Why? Not only are some of these flavorings and preservatives potentially harmful and carcinogenic, but processed foods are heavily linked with chronic illnesses such as diabetes. Is [...]
IC Awareness Month 2013 Video: what you should know, why it's important and what you can do to truly make a difference! Please watch and join us in spreading hope to patients who are suffering in silence!
Did you know that the ICN was one of the very first medical websites ever built. Not just the first IC site, mind you, but one of the very first HEALTH websites ever created. Eighteen years later, the ICN is not only the largest patient organization in the world serving, on average, more than 200,000 [...]
The IC Network received the top nod from researchers studying the accuracy, credibility, readability and quality of IC/BPS websites. Researchers in the UK conducted a broad search of the web for all IC/BPS websites. They identified 18 websites that were analyzed in depth. Of these, only four were found to have good, quality information. They [...]
Well, I just woke up...am snuggled under my comforter with my cat sleeping on top of my feet and I wanted to check-in with you all. Merry Christmas...and if you are struggling with a tender, painful bladder today, please checkout my holiday newsletter at: https://www.ic-network.com/newsletters/holidays1212.html I wish that I could give you each a hug, [...]
I've written a special holiday newsletter for patients who are struggling with flares, finding joy, dealing with family and so much more right now... Please check it out at the link below! https://www.ic-network.com/newsletters/holidays1212.html holidaycard2012.jpg