/Jill's Journal

The blog of IC Network founder Jill H. Osborne, sharing her comments, thoughts, ideas and actions happening in the IC and pelvic pain movement.

Why I won’t forget Bard-Alan Finlan, a good man who fought for the rights of IC patients.

In the thousands of patients who have contacted the Interstitial Cystitis Network in the past twenty years, there are several who have created indelible memories. I met Bard more than a decade ago when he called for help with his disability discrimination claims against his employer, Verizon. Bard faced outrageous discrimination at his job, often by female superiors. [...]

By |2017-01-31T10:13:01+00:00July 8th, 2015|Disability, Interstitial Cystitis Network Blog, Jill's Journal, Men's Health|Comments Off on Why I won’t forget Bard-Alan Finlan, a good man who fought for the rights of IC patients.

Why Artificial Sweeteners Drive More Snacking And Obesity

Why oh why would we even be talking about soda on an interstitial cystitis website? Yes, for the vast majority of patients, both sugar and artificially sweetened sugars  are well known to trigger IC flares but some patients continue to drink them. It's in our interest to educate you about why drinking sodas are bad. For [...]

By |2017-01-18T12:03:09+00:00June 15th, 2015|Diet & Food, Interstitial Cystitis Network Blog, Jill's Journal|Comments Off on Why Artificial Sweeteners Drive More Snacking And Obesity

Parent Files Suit After Child Faced Restroom Discrimination At School

When Jamie Barkley discovered that her 9 year old daughter was hiding urine soaked underwear around the house, she was shocked to discover that her child had been "holding it" at school out of fear that she would get into trouble for asking to use the restroom. A week later, her daughter ended up in the ER with [...]

By |2017-01-31T10:21:25+00:00June 9th, 2015|Children & Teens, Interstitial Cystitis Network Blog, Jill's Journal, News|Comments Off on Parent Files Suit After Child Faced Restroom Discrimination At School

Ten Reasons Why You Should NOT Self Medicate with Antibiotics When You Have an IC Flare

By Jill Heidi Osborne MA, May 28, 2015 When the symptoms of interstitial cystitis and prostatitis virtually mimic that of a bladder infection, it's only natural for patients and doctors to contemplate treating the urinary symptoms with an antibiotic. Go ahead! Admit it! You've probably raided your medicine cabinet in the middle of the night [...]

By |2017-01-31T10:26:20+00:00May 28th, 2015|Flares, Interstitial Cystitis IC/BPS, Interstitial Cystitis Network Blog, Jill's Journal, Self-Help Tips for IC, Bladder & Pelvic Pain|Comments Off on Ten Reasons Why You Should NOT Self Medicate with Antibiotics When You Have an IC Flare

Got IC & Scoliosis? New Study Finds A Gene Responsible For Familial Scoliosis

I've often said that if there was one medical condition that I could fix first, it would be the scoliosis I developed in Junior High. I'm supposed to be an inch taller but, instead, I have a nicely balanced "S" curve in my spine that few can see. I often get back pain and muscle [...]

By |2015-02-05T16:00:50+00:00February 5th, 2015|Interstitial Cystitis Network Blog, Jill's Journal, Related Conditions|Comments Off on Got IC & Scoliosis? New Study Finds A Gene Responsible For Familial Scoliosis

Why does my bladder hurt so much at night?

(Here's part of an email I sent to an IC patient last night who was struggling with severe night time symptoms and bladder pain that describes the many factors that can be contributing to nighttime IC symptoms and pain. - Jill Osborne, ICN President) #1 - To treat the pain effectively, we have to know [...]

By |2017-01-31T10:39:19+00:00January 26th, 2015|Interstitial Cystitis IC/BPS, Interstitial Cystitis Network Blog, Jill's Journal, Self Care|Comments Off on Why does my bladder hurt so much at night?

The Best IC & Pelvic Pain Moments of 2014 – The Best Blog, Rant, Research, Book & Patient Projects

By Jill H. Osborne MA From Dr. Drew’s astonishing rant about IC and endometriosis last Spring to a patient fundraising project which raised over $4000 for IC research this Fall, we share the highlights and “best of” moments in 2014! Do you agree? Most Promising Treatment of 2014 - LiRIS I continue to believe that [...]

By |2017-01-31T10:43:13+00:00December 31st, 2014|Awareness, ICN Announcements, Interstitial Cystitis Network Blog, Jill's Journal, News|Comments Off on The Best IC & Pelvic Pain Moments of 2014 – The Best Blog, Rant, Research, Book & Patient Projects

The ICN is Proud of Our Service to the US Army IC Research Program

For the fourth year in a row, ICN President Jill Osborne has served as a panelist for the Congressionally Directed Medical Research Program (CDMRP) administered by the US Army. Interstitial Cystitis is one of more than two dozen medical conditions that are considered critical to combat readiness. In Fiscal Year 2014, the US Government set [...]

By |2017-01-31T10:44:15+00:00December 29th, 2014|Interstitial Cystitis Network Blog, Jill's Journal|Comments Off on The ICN is Proud of Our Service to the US Army IC Research Program

Is Interstitial Cystitis Caused by Anger? No!

Allright, I'm angry right now. Yes, ANGRY. Thoroughly and completely pissed. Why? Because, in 2014, an IC patient in the South of the USA was told that the reason that she had IC was because she was angry about her ex-boyfriend. Yes, he really, REALLY said that. This was after she had been diagnosed by [...]

By |2017-01-31T10:50:02+00:00November 26th, 2014|Awareness, Interstitial Cystitis Network Blog, Jill's Journal, Self-Help Tips for IC, Bladder & Pelvic Pain|Comments Off on Is Interstitial Cystitis Caused by Anger? No!

Has an IC flare kept you home during the holidays?

Why I Said No To Thanksgiving - An IC Holiday Survival Story Here's one of the most frustrating questions that IC patients often struggle with. "Should or shouldn't we go to Grandma's House for a holiday celebration if IC is flaring?" In my first year of IC, my family really didn't understand what I was [...]

By |2017-01-31T10:53:10+00:00November 18th, 2014|Interstitial Cystitis Network Blog, Jill's Journal, Self Care, Self-Help Tips for IC, Bladder & Pelvic Pain|Comments Off on Has an IC flare kept you home during the holidays?