/Interstitial Cystitis Network Blog

Read the latest news about interstitial cystitis, bladder pain syndrome and related conditions in the ICN blog.

2017 IC/BPS Awareness Month Kicks Off

Every September, IC/BPS patients and organizations around the world gather together to promote interstitial cystitis, bladder pain syndrome and chronic pelvic pain. This year, our campaign is bold and blunt, telling the story of patients who are refused pain treatment with, in some cases, tragic results. Despite decades of research showing that this medical [...]

By | 2018-01-02T15:21:25+00:00 September 1st, 2017|Awareness, ICN Announcements, Interstitial Cystitis Network Blog|Comments Off on 2017 IC/BPS Awareness Month Kicks Off

Dr. Chris Payne Presentation on IC/BPS From AUA 2017

Dr. Christopher Payne (Vista Urology, San Jose CA) offers his course on IC/BPS from the 2017 American Urological Association. This fabulous lecture was used to educate hundreds of urologists interested in IC/BPS. Dr. Payne covers the history of IC and  explains why current diagnostic and treatment strategies may be incorrect and out of touch. [...]

By | 2017-08-27T22:18:08+00:00 August 27th, 2017|Front Page Feed, Interstitial Cystitis Network Blog|Comments Off on Dr. Chris Payne Presentation on IC/BPS From AUA 2017

New IC/BPS Phenotyping System Proposed – From UPOINT to INPUT

The UPOINT System for the Clinical Phenotyping of Chronic Pelvic Pain by Nickel, Shoskes and Racily was the first proposed subtyping system for chronic pelvic and bladder pain. It asked physicians to look at and beyond the bladder in six different areas, including: what urinary symptoms are present? what’s the condition of the bladder (i.e. Hunner’s lesions)? does [...]

By | 2017-08-16T21:54:00+00:00 August 10th, 2017|Interstitial Cystitis Network Blog, Research|Comments Off on New IC/BPS Phenotyping System Proposed – From UPOINT to INPUT

Pelvic Pain Conferences Brings National Experts To Colorado In September

Bridge For Pelvic Pain Conference In September 2017 The Bridge For Pelvic Pain is welcoming chronic pelvic pain patients and providers to their annual conference. Learn about chronic pelvic, sexual and genital pain, and integrative treatments from presentations by doctors, physical therapists, counselors, wellness experts and patient advocates. When: Saturday Sept 30, 2017 – [...]

By | 2017-08-10T17:20:46+00:00 August 10th, 2017|Front Page Feed, Interstitial Cystitis Network Blog|Comments Off on Pelvic Pain Conferences Brings National Experts To Colorado In September

MAPP Research Network Study Finds That Fungus In Urine Might Be Linked To Urgency and Pain

One of the most promising lines of research in urology today is the study of the biome, the diverse population of bacteria and fungi that live harmoniously in the human body. In previous MAPP Research Network studies, IC patients were found to have high levels of candida/fungi in their urine during flares.(1) Another found [...]

By | 2017-08-10T17:10:12+00:00 August 10th, 2017|Interstitial Cystitis Network Blog, Research|Comments Off on MAPP Research Network Study Finds That Fungus In Urine Might Be Linked To Urgency and Pain

The Bella Rosa Coffee Company produces remarkably low acid coffees – A new coffee option

If you miss your coffee and are frustrated with its ability to irritate your bladder or gut, we have three new, exciting ones for you to try from  The Bella Rosa Coffee Company. For many years, we all assumed that it was the overall pH or acid level of coffee that was the trigger for [...]

By | 2018-01-31T17:29:59+00:00 July 19th, 2017|Diet & Food, Interstitial Cystitis Network Blog|Comments Off on The Bella Rosa Coffee Company produces remarkably low acid coffees – A new coffee option

I was fine until I wasn’t – Jill’s Journal – Hysterectomy & Possible Uterine Cancer

ICN Education & Support Phone Line Will Be Closed While Jill Recovers From Surgery Next week I’ll be recovering from an urgent hysterectomy and waiting anxiously for my uterine biopsy results. This saga began last fall when I started spotting. Of course, I hadn’t had a period in about two years so contacted my doctor [...]

Real Men Get Real Pelvic Pain Presentation at AUA 2017

Dr. Jeannette Potts Fights Chronic Prostatitis Misdiagnosis and Label - If you've been told that your pelvic pain is the result of chronic prostatitis, you are not alone. If you've spent hundreds if not thousands of dollars on various "prostate centric" antibiotics and other prescriptions, you're in the company of millions of men who, it turns [...]

By | 2017-05-11T15:50:08+00:00 May 10th, 2017|Interstitial Cystitis Network Blog, Research|Comments Off on Real Men Get Real Pelvic Pain Presentation at AUA 2017

Medical Organizations Swiftly Reject TrumpCare Passage

The sudden and swift passage of TrumpCare yesterday as created turmoil in patient groups around the USA. By leaving in an option in the bill that would allow states to apply for a waiver to raise the price of premiums for patients struggling with pre-existing conditions, disabled and elderly patients are deeply concerned that [...]

By | 2017-05-05T18:16:17+00:00 May 5th, 2017|Front Page Feed, Interstitial Cystitis Network Blog|Comments Off on Medical Organizations Swiftly Reject TrumpCare Passage

The Economic Toll of Elmiron

67% of Patients Struggle to Pay For the Only Oral Drug Approved for IC/BPS by the US FDA When the patent expired on Elmiron® in January 2010, the IC patient community expected the rapid release of a more affordable generic medication. Swati Spentose, a company located in India, has produced a generic pentosan polysulfate (Brand [...]

By | 2017-03-31T13:13:59+00:00 March 31st, 2017|Interstitial Cystitis Network Blog, Research|Comments Off on The Economic Toll of Elmiron