/Interstitial Cystitis Network Blog

Read the latest news about interstitial cystitis, bladder pain syndrome and related conditions in the ICN blog.

IC Vision & Eyesight Survey Launched Today

Emory Eye Center Seeks Your Help with IC Vision Study As some of you may know, we have recently learned of work done at Emory University regarding vision loss in some patients with interstitial cystitis. We have been in touch with these researchers to help facilitate their ongoing work, and they are interested in hearing [...]

By |2018-11-23T16:35:32+00:00November 23rd, 2018|Interstitial Cystitis Network Blog, Research|Comments Off on IC Vision & Eyesight Survey Launched Today

Self Help Tip – Don’t Let Fear of Physical Therapy Stop You

We’ve long passed those days when we believed that IC was an incurable bladder disease. Today, we consider IC/BPS a pelvic pain syndrome that can involve structures beyond the bladder, often the pelvic floor muscles. Dysfunctional pelvic floor muscles can trigger all of the symptoms we normally associate with the bladder, including frequency, urgency, pressure [...]

By |2018-11-28T00:23:56+00:00November 3rd, 2018|Front Page Feed, Interstitial Cystitis Network Blog, Jill's Journal, Self-Help Tips for IC, Bladder & Pelvic Pain|Comments Off on Self Help Tip – Don’t Let Fear of Physical Therapy Stop You

A Popular Allergy Medicine May Help IC Symptoms

Do you struggle with increased IC flares and bladder symptoms during allergy season? Antihistamines are listed as Step Two treatment options in the AUA guidelines for IC/BPS. Why?  Because the bladder wall contains the same kind of mast cells that also generate typical allergy symptoms.  Hydroxyzine HCL (Atarax) and hydroxyzine pamoate (Vistaril) have helped many [...]

By |2018-11-03T19:26:39+00:00October 26th, 2018|Interstitial Cystitis Network Blog, Research, Treatments|Comments Off on A Popular Allergy Medicine May Help IC Symptoms

Tips for Managing Marriage and IC

Back in August of 1999, I was a 20-year-old college student excited to marry my high school sweetheart. I had bladder issues from the time I was 3. I was diagnosed with IC when I was 13. When I was 15, my husband asked me to be his girlfriend. As time went on, my symptoms [...]

By |2018-10-16T17:53:21+00:00September 29th, 2018|Front Page Feed, Interstitial Cystitis Network Blog|Comments Off on Tips for Managing Marriage and IC

Long-Term Pentosan (Elmiron) Use May Be Linked to Eye Disease

As a health publishing company dedicated to interstitial cystitis, it is our duty to share news which can impact you, the IC patient. Unfortunately, we must share some distressing news. If you have or are currently taking pentosan polysulfate PPS (brand name: Elmiron®) and are experiencing eye issues, researchers at the Emory Eye Center (Emory [...]

By |2018-10-16T17:51:31+00:00September 1st, 2018|Interstitial Cystitis Network Blog, Research|Comments Off on Long-Term Pentosan (Elmiron) Use May Be Linked to Eye Disease

IC Awareness Month Kicks Off – It’s time to tell our IC stories and speak our truth!

September is the most important month for the IC movement. This is the time that we gather together, share our stories, educate our communities, seek out patients who are suffering in silence and work, as a group, to raise awareness about IC/BPS, one of the most and misunderstood medical conditions. Each and every day, IC [...]

By |2018-08-31T20:28:42+00:00August 31st, 2018|Front Page Feed, Interstitial Cystitis Network Blog|Comments Off on IC Awareness Month Kicks Off – It’s time to tell our IC stories and speak our truth!

The History of IC Subtypes (Phenotypes)

Earlier this summer, there were some patients on Facebook who suggested that IC subtypes were not real. Here is the history of the four subtyping systems proposed for IC/BPS to date. This is a REAL thing that is now helping patients find their unique presentation of IC/BPS so that they can focus on the correct [...]

By |2018-08-20T13:53:01+00:00August 18th, 2018|Awareness, Interstitial Cystitis Network Blog, Research|Comments Off on The History of IC Subtypes (Phenotypes)

Platelet-Rich Plasma Treatment Shows Great Promise For IC Treatment

Platelet-rich plasma (PRP) is a concentrate of platelet-rich plasma protein derived from whole blood. It is extremely rich in growth factors and cytokines, which regulate tissue reconstruction. PRP has been used to encourage healing of various soft tissues in the human body as well as to assist in surgical wound healing. Researchers in Taiwan conducted [...]

By |2018-08-17T16:28:11+00:00August 17th, 2018|Interstitial Cystitis Network Blog, Research|Comments Off on Platelet-Rich Plasma Treatment Shows Great Promise For IC Treatment

Back To School Strategies For Kids With IC

(By Jill Osborne) School has started here in California and for children and teens with IC it can create a lot of anxiety and uncertainty. Will they be given restroom access? Will they have teachers who support them? Will they make new friends and fit in? Will the bus ride be comfortable? Your goal as [...]

By |2018-08-16T13:35:27+00:00August 15th, 2018|Front Page Feed, Interstitial Cystitis Network Blog|Comments Off on Back To School Strategies For Kids With IC

Next Generation Urine Testing Now Available – Reveals Hidden and/or Chronic Bacterial & Fungal Infections

IC patients, especially those struggling with recurring flares, often wonder if they could have a chronic bacterial or fungal infection that is not being detected through traditional urine testing. A new, affordable and far more sensitive urine test, Next Generation DNA Sequencing, is now available that can identify both bacteria and fungi in a patients [...]

By |2018-09-07T14:33:30+00:00August 15th, 2018|Front Page Feed, Interstitial Cystitis Network Blog|Comments Off on Next Generation Urine Testing Now Available – Reveals Hidden and/or Chronic Bacterial & Fungal Infections