/Interstitial Cystitis Network Blog

Read the latest news about interstitial cystitis, bladder pain syndrome and related conditions in the ICN blog.

Tips for Managing Marriage and IC

Back in August of 1999, I was a 20-year-old college student excited to marry my high school sweetheart. I had bladder issues from the time I was 3. I was diagnosed with IC when I was 13. When I was 15, my husband asked me to be his girlfriend. As time went on, my symptoms [...]

By |2018-10-16T17:53:21+00:00September 29th, 2018|Front Page Feed, Interstitial Cystitis Network Blog|Comments Off on Tips for Managing Marriage and IC

Long-Term Pentosan (Elmiron) Use May Be Linked to Eye Disease

As a health publishing company dedicated to interstitial cystitis, it is our duty to share news which can impact you, the IC patient. Unfortunately, we must share some distressing news. If you have or are currently taking pentosan polysulfate PPS (brand name: Elmiron®) and are experiencing eye issues, researchers at the Emory Eye Center (Emory [...]

By |2018-10-16T17:51:31+00:00September 1st, 2018|Interstitial Cystitis Network Blog, Research|Comments Off on Long-Term Pentosan (Elmiron) Use May Be Linked to Eye Disease

IC Awareness Month Kicks Off – It’s time to tell our IC stories and speak our truth!

September is the most important month for the IC movement. This is the time that we gather together, share our stories, educate our communities, seek out patients who are suffering in silence and work, as a group, to raise awareness about IC/BPS, one of the most and misunderstood medical conditions. Each and every day, IC [...]

By |2018-08-31T20:28:42+00:00August 31st, 2018|Front Page Feed, Interstitial Cystitis Network Blog|Comments Off on IC Awareness Month Kicks Off – It’s time to tell our IC stories and speak our truth!

The History of IC Subtypes (Phenotypes)

Earlier this summer, there were some patients on Facebook who suggested that IC subtypes were not real. Here is the history of the four subtyping systems proposed for IC/BPS to date. This is a REAL thing that is now helping patients find their unique presentation of IC/BPS so that they can focus on the correct [...]

By |2018-08-20T13:53:01+00:00August 18th, 2018|Awareness, Interstitial Cystitis Network Blog, Research|Comments Off on The History of IC Subtypes (Phenotypes)

Platelet-Rich Plasma Treatment Shows Great Promise For IC Treatment

Platelet-rich plasma (PRP) is a concentrate of platelet-rich plasma protein derived from whole blood. It is extremely rich in growth factors and cytokines, which regulate tissue reconstruction. PRP has been used to encourage healing of various soft tissues in the human body as well as to assist in surgical wound healing. Researchers in Taiwan conducted [...]

By |2018-08-17T16:28:11+00:00August 17th, 2018|Interstitial Cystitis Network Blog, Research|Comments Off on Platelet-Rich Plasma Treatment Shows Great Promise For IC Treatment

Back To School Strategies For Kids With IC

(By Jill Osborne) School has started here in California and for children and teens with IC it can create a lot of anxiety and uncertainty. Will they be given restroom access? Will they have teachers who support them? Will they make new friends and fit in? Will the bus ride be comfortable? Your goal as [...]

By |2018-08-16T13:35:27+00:00August 15th, 2018|Front Page Feed, Interstitial Cystitis Network Blog|Comments Off on Back To School Strategies For Kids With IC

Next Generation Urine Testing Now Available – Reveals Hidden and/or Chronic Bacterial & Fungal Infections

IC patients, especially those struggling with recurring flares, often wonder if they could have a chronic bacterial or fungal infection that is not being detected through traditional urine testing. A new, affordable and far more sensitive urine test, Next Generation DNA Sequencing, is now available that can identify both bacteria and fungi in a patients [...]

By |2018-09-07T14:33:30+00:00August 15th, 2018|Front Page Feed, Interstitial Cystitis Network Blog|Comments Off on Next Generation Urine Testing Now Available – Reveals Hidden and/or Chronic Bacterial & Fungal Infections

Summer 2018 IC Optimist Now Available

We are delighted to announce that the Summer 2018 IC Optimist is now available. This expanded issue of our magazine not only covers all of the highlights of the 2018 American Urology Association meeting but also sets the stage for our 2018 IC Awareness Month Campaign. All subscribers can now download their copy from their [...]

By |2018-08-07T21:36:11+00:00August 7th, 2018|Front Page Feed, Interstitial Cystitis Network Blog|Comments Off on Summer 2018 IC Optimist Now Available

Aquinox Halts All Rosiptor IC/BPS Research But Continues Chronic Prostatitis Study

We were heartbroken to learn that Rosiptor (AQX-1125), once believed to be a promising new therapy for interstitial cystitis and bladder pain syndrome, has failed to demonstrate success in their latest clinical trial, the Phase 3 LEADERSHIP 301 study. In a press conference, David Main, CEO of Aquinox Pharmaceuticals, said “This is a disappointing result for [...]

By |2018-08-02T20:20:27+00:00July 3rd, 2018|Interstitial Cystitis Network Blog, Latest Research, Research|Comments Off on Aquinox Halts All Rosiptor IC/BPS Research But Continues Chronic Prostatitis Study

Bladder Friendly Summer Drinks

With the start of hot weather, it's time to focus on cool, refreshing drinks that won't trigger IC/BPS or chronic prostatitis flares. This means that we have to avoid the typical acidic drinks of summer: lemonade, iced green tea and black teas, iced coffee, frappuccino and, of course, most canned sodas. Yes, that means no [...]

By |2018-06-03T19:14:45+00:00June 3rd, 2018|Diet & Food, IC Diet Project, Interstitial Cystitis Network Blog|Comments Off on Bladder Friendly Summer Drinks