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Interstitial Cystitis Network Blog

/Interstitial Cystitis Network Blog

Read the latest news about interstitial cystitis, bladder pain syndrome and related conditions in the ICN blog.

Long-Term Pentosan (Elmiron) Use May Be Linked to Eye Disease

As a health publishing company dedicated to interstitial cystitis, it is our duty to share news which can impact you, the IC patient. Unfortunately, we must share some distressing news. If you have or are currently taking pentosan polysulfate PPS (brand name: Elmiron®) and are experiencing eye issues, researchers at the Emory Eye Center (Emory [...]

By |2019-05-01T12:40:23-07:00April 30th, 2019|Interstitial Cystitis Network Blog, Research|Comments Off on Long-Term Pentosan (Elmiron) Use May Be Linked to Eye Disease

Bladder endometriosis can mimic IC symptoms

Endometriosis is often talked about by IC patients, because the two conditions co-exist in a lot of IC patients. A study in 2007 reported that 66 percent of patients had both IC and endometriosis while endometriosis.org puts that number higher at 80 to 90 percent.(1)(2) No matter which figures are correct, the connection between the [...]

By |2019-04-29T11:16:38-07:00April 29th, 2019|Front Page Feed, Interstitial Cystitis Network Blog|Comments Off on Bladder endometriosis can mimic IC symptoms

Ashley Corby Uses Comedy to Spread the Word about IC

As an IC patient, Ashley Corby can spend a lot of time in the bathroom. And that’s exactly where she was back in 2010 when a friend signed her up for open mic night. While she had been told she ought to try doing stand-up comedy, she hadn’t actually tried it before. That night changed [...]

By |2019-04-17T07:52:02-07:00April 17th, 2019|Front Page Feed, Interstitial Cystitis Network Blog|Comments Off on Ashley Corby Uses Comedy to Spread the Word about IC

Heather Irwin Named 2018 IC Nurse of the Year

At every successful IC and pelvic pain clinic, there is often someone on staff who becomes the lifeline for their patient community.  They work behind the scenes to provide support and encouragement to patients who are struggling. For the newly diagnosed, they take the time to educate and inform. For patients in flares, they take [...]

By |2019-04-15T20:21:58-07:00April 15th, 2019|Front Page Feed, Interstitial Cystitis Network Blog|Comments Off on Heather Irwin Named 2018 IC Nurse of the Year

How to Manage your Health During Hard Times

One tip for avoiding IC flares is to manage stress. It’s right up there with diet and hormones when it comes to triggering IC symptoms. But there are times stress not only can’t be avoided but it kicks us in the face. Unfortunately, crises happen in life. We lose loved ones. We lose our main [...]

By |2019-04-02T11:16:37-07:00April 2nd, 2019|Front Page Feed, Interstitial Cystitis Network Blog|Comments Off on How to Manage your Health During Hard Times

A Common Virus Could be the Cause of IC in Some Patients

Last year the Epstein-Barr virus (EBV) made news in a couple of ways that could aid researchers in determining the root cause of interstitial cystitis in some patients. EBV is one of the most common human viruses and is found globally.(1) It most often causes infectious mononucleosis, which you might know better as mono or [...]

By |2019-03-28T11:02:56-07:00March 26th, 2019|Front Page Feed, Interstitial Cystitis Network Blog|Comments Off on A Common Virus Could be the Cause of IC in Some Patients

Winter 2019 IC Optimist Released

The latest IC Optimist has been released and is available for download or purchase. It is in the process of being mailed to our members. This issue is dedicated to the many variants of IC. From fibroids to gut dysbiosis, lyme disease to endometriosis, there are many potential triggers for the symptoms we associate with [...]

By |2019-03-23T15:03:00-07:00March 23rd, 2019|Front Page Feed, Interstitial Cystitis Network Blog|Comments Off on Winter 2019 IC Optimist Released

What You Need to Know About CBD Oil

Chances are really good you’ve heard about CBD oil. It’s been making rounds through social media and is seemingly everywhere touting benefits for everything from pain to sleep to anxiety to epilepsy. It has become a huge industry with analysts predicting the market in the United States will reach $1 billion by 2020.(1) But, what [...]

By |2019-02-27T13:40:34-07:00February 27th, 2019|Front Page Feed, Interstitial Cystitis Network Blog|Comments Off on What You Need to Know About CBD Oil

LiRIS device for Interstitial Cystitis & Hunner’s Lesions DEPRIORITIZED by Allergan

It is with a heavy heart that we announce that Allergan has apparently abandoned work with LiRIS, the first treatment in history to heal the worst form of IC, Hunner's lesions, in some patients. Dr. Daniel Radecki, Executive Director of Clinical Development at Allergan, shared the news that "The LiRIS program has been deprioritized" in [...]

By |2019-02-21T13:02:38-07:00February 21st, 2019|Interstitial Cystitis Network Blog, Research|Comments Off on LiRIS device for Interstitial Cystitis & Hunner’s Lesions DEPRIORITIZED by Allergan

Valentines Day, Intimacy and IC

I apologize in advance if this column offends anyone but we do, on occasion, need to talk about intimacy and how IC can impact that. For those of you who know me, you know that I'm very direct about the issues that we struggle with. I believe that IC can strengthen rather than weaken our [...]

By |2019-02-13T12:56:33-07:00February 13th, 2019|Front Page Feed, Interstitial Cystitis Network Blog, Jill's Journal, Self-Help Tips for IC, Bladder & Pelvic Pain|Comments Off on Valentines Day, Intimacy and IC