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/Interstitial Cystitis Network Blog

Read the latest news about interstitial cystitis, bladder pain syndrome and related conditions in the ICN blog.

What You Need to Know About CBD Oil

Chances are really good you’ve heard about CBD oil. It’s been making rounds through social media and is seemingly everywhere touting benefits for everything from pain to sleep to anxiety to epilepsy. It has become a huge industry with analysts predicting the market in the United States will reach $1 billion by 2020.(1) But, what [...]

By |2019-02-27T13:40:34-07:00February 27th, 2019|Front Page Feed, Interstitial Cystitis Network Blog|Comments Off on What You Need to Know About CBD Oil

LiRIS device for Interstitial Cystitis & Hunner’s Lesions DEPRIORITIZED by Allergan

It is with a heavy heart that we announce that Allergan has apparently abandoned work with LiRIS, the first treatment in history to heal the worst form of IC, Hunner's lesions, in some patients. Dr. Daniel Radecki, Executive Director of Clinical Development at Allergan, shared the news that "The LiRIS program has been deprioritized" in [...]

By |2019-02-21T13:02:38-07:00February 21st, 2019|Interstitial Cystitis Network Blog, Research|Comments Off on LiRIS device for Interstitial Cystitis & Hunner’s Lesions DEPRIORITIZED by Allergan

Valentines Day, Intimacy and IC

I apologize in advance if this column offends anyone but we do, on occasion, need to talk about intimacy and how IC can impact that. For those of you who know me, you know that I'm very direct about the issues that we struggle with. I believe that IC can strengthen rather than weaken our [...]

By |2019-02-13T12:56:33-07:00February 13th, 2019|Front Page Feed, Interstitial Cystitis Network Blog, Jill's Journal, Self-Help Tips for IC, Bladder & Pelvic Pain|Comments Off on Valentines Day, Intimacy and IC

Do Childhood Bladder Symptoms Mean IC as an Adult?

While many studies have been done around IC and its often companion condition, IBS, very few studies have been done looking at how childhood bladder symptoms predict or affect patients in adulthood. But, that is slowly changing. In August 2017, researchers from the Department of Urology at Queen's University in Kingston, Ontario, Canada, and the [...]

By |2019-02-12T08:20:45-07:00February 12th, 2019|Interstitial Cystitis Network Blog, Research|Comments Off on Do Childhood Bladder Symptoms Mean IC as an Adult?

The Dangers of Cipro & Levaquin – Have you been floxed?

When we are prescribed an antibiotic, we are under the assumption that the antibiotic is going to kill, and only kill, bacteria that might be causing an infection. What if that antibiotic also kills mammalian (human) cells... cells that are imperative to our life and our body functions? Researchers now believe that this is exactly [...]

By |2019-02-03T19:59:56-07:00February 3rd, 2019|Front Page Feed, Interstitial Cystitis Network Blog|Comments Off on The Dangers of Cipro & Levaquin – Have you been floxed?

2019 Cold & Flu Survey Results – IC Friendly Tips & Strats!

Not sure what you can take to ease your sore throat, cough or flu symptoms without triggering an IC flare? Every few years we survey patients to find out what works best for them. This year, more than 100 patients shared their best cold and flu tips and strategies. In general, products containing honey were, [...]

By |2019-01-18T20:28:22-07:00January 17th, 2019|Front Page Feed, Interstitial Cystitis Network Blog|Comments Off on 2019 Cold & Flu Survey Results – IC Friendly Tips & Strats!

How To Be A Good Online Support Group Member

When I was first diagnosed with IC, I was 13 years old and it was the early 1990s. The internet wasn’t really around. My symptoms slowly subsided over the next few years then came back full-force when I was 23. By then, it was 2002 and the internet was everywhere. Online support groups were now [...]

By |2019-01-30T21:20:15-07:00January 14th, 2019|Front Page Feed, Interstitial Cystitis Network Blog|Comments Off on How To Be A Good Online Support Group Member

The Fall 2018 IC Optimist Is Now Available

The IC Optimist is the quarterly magazine for IC Network members. It offers a variety of curated content from "Meet the Expert" interviews to feature stories, self-help tips to the latest research and clinical trial announcements. Learn more about our memberships here!  In this issue: #1 - Meet the Pelvic Pain Expert - Dn Interview [...]

By |2018-12-11T22:32:23-07:00December 11th, 2018|Front Page Feed, Interstitial Cystitis Network Blog|Comments Off on The Fall 2018 IC Optimist Is Now Available

IC Vision & Eyesight Survey Launched Today

Emory Eye Center Seeks Your Help with IC Vision Study As some of you may know, we have recently learned of work done at Emory University regarding vision loss in some patients with interstitial cystitis. We have been in touch with these researchers to help facilitate their ongoing work, and they are interested in hearing [...]

By |2018-11-23T16:35:32-07:00November 23rd, 2018|Interstitial Cystitis Network Blog, Research|Comments Off on IC Vision & Eyesight Survey Launched Today