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/Interstitial Cystitis Network Blog

Read the latest news about interstitial cystitis, bladder pain syndrome and related conditions in the ICN blog.

2019 Cold & Flu Survey Results – IC Friendly Tips & Strats!

Not sure what you can take to ease your sore throat, cough or flu symptoms without triggering an IC flare? Every few years we survey patients to find out what works best for them. This year, more than 100 patients shared their best cold and flu tips and strategies. In general, products containing honey were, [...]

By |2019-01-18T20:28:22+00:00January 17th, 2019|Front Page Feed, Interstitial Cystitis Network Blog|Comments Off on 2019 Cold & Flu Survey Results – IC Friendly Tips & Strats!

How To Be A Good Online Support Group Member

When I was first diagnosed with IC, I was 13 years old and it was the early 1990s. The internet wasn’t really around. My symptoms slowly subsided over the next few years then came back full-force when I was 23. By then, it was 2002 and the internet was everywhere. Online support groups were now [...]

By |2019-01-18T20:39:26+00:00January 14th, 2019|Front Page Feed, Interstitial Cystitis Network Blog|Comments Off on How To Be A Good Online Support Group Member

The Fall 2018 IC Optimist Is Now Available

The IC Optimist is the quarterly magazine for IC Network members. It offers a variety of curated content from "Meet the Expert" interviews to feature stories, self-help tips to the latest research and clinical trial announcements. Learn more about our memberships here!  In this issue: #1 - Meet the Pelvic Pain Expert - Dn Interview [...]

By |2018-12-11T22:32:23+00:00December 11th, 2018|Front Page Feed, Interstitial Cystitis Network Blog|Comments Off on The Fall 2018 IC Optimist Is Now Available

IC Vision & Eyesight Survey Launched Today

Emory Eye Center Seeks Your Help with IC Vision Study As some of you may know, we have recently learned of work done at Emory University regarding vision loss in some patients with interstitial cystitis. We have been in touch with these researchers to help facilitate their ongoing work, and they are interested in hearing [...]

By |2018-11-23T16:35:32+00:00November 23rd, 2018|Interstitial Cystitis Network Blog, Research|Comments Off on IC Vision & Eyesight Survey Launched Today

Self Help Tip – Don’t Let Fear of Physical Therapy Stop You

We’ve long passed those days when we believed that IC was an incurable bladder disease. Today, we consider IC/BPS a pelvic pain syndrome that can involve structures beyond the bladder, often the pelvic floor muscles. Dysfunctional pelvic floor muscles can trigger all of the symptoms we normally associate with the bladder, including frequency, urgency, pressure [...]

By |2018-11-28T00:23:56+00:00November 3rd, 2018|Front Page Feed, Interstitial Cystitis Network Blog, Jill's Journal, Self-Help Tips for IC, Bladder & Pelvic Pain|Comments Off on Self Help Tip – Don’t Let Fear of Physical Therapy Stop You

A Popular Allergy Medicine May Help IC Symptoms

Do you struggle with increased IC flares and bladder symptoms during allergy season? Antihistamines are listed as Step Two treatment options in the AUA guidelines for IC/BPS. Why?  Because the bladder wall contains the same kind of mast cells that also generate typical allergy symptoms.  Hydroxyzine HCL (Atarax) and hydroxyzine pamoate (Vistaril) have helped many [...]

By |2018-11-03T19:26:39+00:00October 26th, 2018|Interstitial Cystitis Network Blog, Research, Treatments|Comments Off on A Popular Allergy Medicine May Help IC Symptoms

Tips for Managing Marriage and IC

Back in August of 1999, I was a 20-year-old college student excited to marry my high school sweetheart. I had bladder issues from the time I was 3. I was diagnosed with IC when I was 13. When I was 15, my husband asked me to be his girlfriend. As time went on, my symptoms [...]

By |2018-10-16T17:53:21+00:00September 29th, 2018|Front Page Feed, Interstitial Cystitis Network Blog|Comments Off on Tips for Managing Marriage and IC

Long-Term Pentosan (Elmiron) Use May Be Linked to Eye Disease

As a health publishing company dedicated to interstitial cystitis, it is our duty to share news which can impact you, the IC patient. Unfortunately, we must share some distressing news. If you have or are currently taking pentosan polysulfate PPS (brand name: Elmiron®) and are experiencing eye issues, researchers at the Emory Eye Center (Emory [...]

By |2018-10-16T17:51:31+00:00September 1st, 2018|Interstitial Cystitis Network Blog, Research|Comments Off on Long-Term Pentosan (Elmiron) Use May Be Linked to Eye Disease

IC Awareness Month Kicks Off – It’s time to tell our IC stories and speak our truth!

September is the most important month for the IC movement. This is the time that we gather together, share our stories, educate our communities, seek out patients who are suffering in silence and work, as a group, to raise awareness about IC/BPS, one of the most and misunderstood medical conditions. Each and every day, IC [...]

By |2018-08-31T20:28:42+00:00August 31st, 2018|Front Page Feed, Interstitial Cystitis Network Blog|Comments Off on IC Awareness Month Kicks Off – It’s time to tell our IC stories and speak our truth!

The History of IC Subtypes (Phenotypes)

Earlier this summer, there were some patients on Facebook who suggested that IC subtypes were not real. Here is the history of the four subtyping systems proposed for IC/BPS to date. This is a REAL thing that is now helping patients find their unique presentation of IC/BPS so that they can focus on the correct [...]

By |2018-08-20T13:53:01+00:00August 18th, 2018|Awareness, Interstitial Cystitis Network Blog, Research|Comments Off on The History of IC Subtypes (Phenotypes)