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Read the latest news about interstitial cystitis, bladder pain syndrome and related conditions in the ICN blog.

How To Stop A Diet Induced Flare – An Essential Holiday Survival Tip

You couldn’t resist. You had been so good. You avoided the cranberry sauce. Said no to the wine. You ate really well until dessert arrived. Grandma's irresistable chocolate cake started calling your name and wouldn't let go. Wanting to show her that you appreciated her cake (right?), you indulged and enjoyed every bite. Hours later [...]

By | 2017-11-23T15:30:13+00:00 November 23rd, 2017|Diet & Food, IC Diet Project, Interstitial Cystitis Network Blog|Comments Off on How To Stop A Diet Induced Flare – An Essential Holiday Survival Tip

New IC Patient Survey From USC Seeks To Understand The Impact of Diagnostic Delays In Women With IC/BPS.

A New IC Survey From USC Seeks To Understand The Impact of Diagnostic Delays In Women With IC/BPS. Principal Investigator: Katherine Volpe, MD This survey is being conducted by Katherine Volpe, who is a fellow at the University of Southern California. We know that many women with interstitial cystitis or bladder pain syndrome (IC/BPS) experience [...]

By | 2017-11-13T15:48:30+00:00 November 13th, 2017|ICN Announcements, Interstitial Cystitis Network Blog, Survey Center|Comments Off on New IC Patient Survey From USC Seeks To Understand The Impact of Diagnostic Delays In Women With IC/BPS.

ICN Evacuated In California Wildfires – Main Office Closed But Shipping & Sales Open

Update: October 18th, 2017 - Still Evacuated Since writing the post below, the conditions here in Santa Rosa worsened dramatically. We were allowed back for approximately 8 hours before a new fire emerged which threatened our house. At 5am the next day, we were awakened to sirens in the neighborhood and police officers shouting over [...]

By | 2017-10-23T14:11:40+00:00 October 12th, 2017|Interstitial Cystitis Network Blog|Comments Off on ICN Evacuated In California Wildfires – Main Office Closed But Shipping & Sales Open

Seeking Nominations For Doctor, Nurse & Physical Therapist of the Year Awards

Do you have a doctor who has treated you with kindness, compassion and respect? Who has helped you try various treatments? Do you have a nurse who goes above and beyond in helping you, especially during IC flares? Do you have a physical therapist who has provided comfort and care for pelvic floor dysfunction? [...]

By | 2017-09-26T16:49:23+00:00 September 26th, 2017|Front Page Feed, Interstitial Cystitis Network Blog|Comments Off on Seeking Nominations For Doctor, Nurse & Physical Therapist of the Year Awards

The Summer 2017 IC Optimist Is Now Available

The Summer 2017 IC Optimist has now been sent by e-mail and/or US Mail to our current ICN paid members! Your copy should be arrived shortly if it has not already arrived! In this issue: ICN Editorial: “My Uterine Cancer Scare: Hormone Replacement Therapy Carries Risks” Feature Story: Master Class - “The Broad Picture [...]

By | 2017-09-18T15:22:44+00:00 September 7th, 2017|Interstitial Cystitis Network Blog|Comments Off on The Summer 2017 IC Optimist Is Now Available

2017 IC/BPS Awareness Month Kicks Off

Every September, IC/BPS patients and organizations around the world gather together to promote interstitial cystitis, bladder pain syndrome and chronic pelvic pain. This year, our campaign is bold and blunt, telling the story of patients who are refused pain treatment with, in some cases, tragic results. Despite decades of research showing that this medical [...]

By | 2017-10-25T12:00:33+00:00 September 1st, 2017|Awareness, Interstitial Cystitis Network Blog|Comments Off on 2017 IC/BPS Awareness Month Kicks Off

Dr. Chris Payne Presentation on IC/BPS From AUA 2017

Dr. Christopher Payne (Vista Urology, San Jose CA) offers his course on IC/BPS from the 2017 American Urological Association. This fabulous lecture was used to educate hundreds of urologists interested in IC/BPS. Dr. Payne covers the history of IC and  explains why current diagnostic and treatment strategies may be incorrect and out of touch. [...]

By | 2017-08-27T22:18:08+00:00 August 27th, 2017|Front Page Feed, Interstitial Cystitis Network Blog|Comments Off on Dr. Chris Payne Presentation on IC/BPS From AUA 2017

New IC/BPS Phenotyping System Proposed – From UPOINT to INPUT

The UPOINT System for the Clinical Phenotyping of Chronic Pelvic Pain by Nickel, Shoskes and Racily was the first proposed subtyping system for chronic pelvic and bladder pain. It asked physicians to look at and beyond the bladder in six different areas, including: what urinary symptoms are present? what’s the condition of the bladder (i.e. Hunner’s lesions)? does [...]

By | 2017-08-16T21:54:00+00:00 August 10th, 2017|Interstitial Cystitis Network Blog, Research|Comments Off on New IC/BPS Phenotyping System Proposed – From UPOINT to INPUT

Pelvic Pain Conferences Brings National Experts To Colorado In September

Bridge For Pelvic Pain Conference In September 2017 The Bridge For Pelvic Pain is welcoming chronic pelvic pain patients and providers to their annual conference. Learn about chronic pelvic, sexual and genital pain, and integrative treatments from presentations by doctors, physical therapists, counselors, wellness experts and patient advocates. When: Saturday Sept 30, 2017 – [...]

By | 2017-08-10T17:20:46+00:00 August 10th, 2017|Front Page Feed, Interstitial Cystitis Network Blog|Comments Off on Pelvic Pain Conferences Brings National Experts To Colorado In September

MAPP Research Network Study Finds That Fungus In Urine Might Be Linked To Urgency and Pain

One of the most promising lines of research in urology today is the study of the biome, the diverse population of bacteria and fungi that live harmoniously in the human body. In previous MAPP Research Network studies, IC patients were found to have high levels of candida/fungi in their urine during flares.(1) Another found [...]

By | 2017-08-10T17:10:12+00:00 August 10th, 2017|Interstitial Cystitis Network Blog, Research|Comments Off on MAPP Research Network Study Finds That Fungus In Urine Might Be Linked To Urgency and Pain