/Awareness

Is Interstitial Cystitis Caused by Anger? No!

Allright, I'm angry right now. Yes, ANGRY. Thoroughly and completely pissed. Why? Because, in 2014, an IC patient in the South of the USA was told that the reason that she had IC was because she was angry about her ex-boyfriend. Yes, he really, REALLY said that. This was after she had been diagnosed by [...]

By |2017-01-31T10:50:02+00:00November 26th, 2014|Awareness, Interstitial Cystitis Network Blog, Jill's Journal, Self-Help Tips for IC, Bladder & Pelvic Pain|Comments Off on Is Interstitial Cystitis Caused by Anger? No!

Pin of the Day – It’s Okay To Tell People You’re Not Okay And That Your IC Is Flaring

Do you hide your IC from family and friends? Do you say "I'm fine" even when you're not? A man with IC was told by his urologist NOT to tell anyone that he was experiencing severe bladder pain. The attitude was "be a man" and, for a couple of years, this courageous IC patient suffered [...]

By |2017-01-31T10:56:52+00:00October 20th, 2014|Awareness, Inspirational Quotes, Interstitial Cystitis Network Blog, Jill's Journal|Comments Off on Pin of the Day – It’s Okay To Tell People You’re Not Okay And That Your IC Is Flaring

2014 IC Awareness Month Poster Contest Winners!

FIRST PLACE - CHRISTY KEYES - $100 gift certificate Christy Keyes wins first place this year for a gorgeous yet satirical poster that utilizes color and text powerfully. Using a carnival theme, she shares the frustration that patients face every day as they struggle with a variety of symptoms and frustrations. Brilliantly done…. and the [...]

By |2017-01-31T10:59:06+00:00October 4th, 2014|Awareness, Interstitial Cystitis Network Blog|Comments Off on 2014 IC Awareness Month Poster Contest Winners!

IC Awareness Daily Fact #30 – With gratitude, we honor those who have left their mark on the IC movement

On this, the last day of IC Awareness Month, we honor those patients and providers who are no longer with us. Many helped the IC movement become the vital, vibrant community of 2014. Daniel Brookoff MD was the first doctor who advocated for the aggressive and compassionate treatment of the pain of IC. C. Paul [...]

By |2017-01-31T11:00:22+00:00September 30th, 2014|Awareness, Interstitial Cystitis Network Blog|Comments Off on IC Awareness Daily Fact #30 – With gratitude, we honor those who have left their mark on the IC movement

IC Awareness Daily Fact #29 – Smoking and IC

When a 2012 research study was released that showed the children of smokers were at high risk of developing severe urinary disorders including the symptom of IC, we were stunned (1). Children between the ages of 4 through 17 who sought care from a pediatric urologist for severe urinary symptoms were included in the study. [...]

By |2017-01-31T11:01:42+00:00September 29th, 2014|Awareness, Interstitial Cystitis Network Blog|Comments Off on IC Awareness Daily Fact #29 – Smoking and IC

IC Awareness Daily Fact #28 – Types of IC Flares

Interstitial cystitis and bladder pain patients often experience sudden and unpredictable "flares" or worsening of their symptoms. There are a few distinct types of flares. A "bladder wall" flare occurs when the bladder wall has been irritated, most often by eating or drinking an acidic or caffeinated food or beverage. While some patients report pain [...]

By |2017-01-31T11:02:18+00:00September 28th, 2014|Awareness, Interstitial Cystitis Network Blog|Comments Off on IC Awareness Daily Fact #28 – Types of IC Flares

IC Awareness Daily Fact #27 – Pain of Interstitial Cystitis As Severe As Cancer Pain

While pain is not always a symptom in IC, for the men and women who have it, it can be agonizing, as if razors are cutting our bladders. Yet, for years, patients have been told that it’s all in their heads and that they just need to ignore the pain. Hogwash!! Would you deny a [...]

By |2017-01-31T11:02:41+00:00September 27th, 2014|Awareness, Interstitial Cystitis Network Blog|Comments Off on IC Awareness Daily Fact #27 – Pain of Interstitial Cystitis As Severe As Cancer Pain

IC Awareness Daily Fact #26 – Wine and IC/BPS

Is it safe to drink wine when you have interstitial cystitis (IC), bladder pain syndrome (BPS) or chronic prostatitis? If you're actively in a flare or have Hunner's lesions, drinking wine would be foolish because alcohol on any tender tissue or open wound would sting. However, when your urinary symptoms have improved, it may be [...]

By |2017-01-31T11:03:13+00:00September 26th, 2014|Awareness, Interstitial Cystitis Network Blog|Comments Off on IC Awareness Daily Fact #26 – Wine and IC/BPS

IC Awareness Daily Fact #25 – Beer and Interstitial Cystitis

Is it safe to drink beer when you have interstitial cystitis (IC) or bladder pain syndrome (BPS)? In our 2009 Wine, Beer & Spirits Survey, lighter lager, american ales, ambers, pilsners and pale ales were the least bothersome beers, such as Miller Genuine Draft Light and Blue Moon Pale ales. The most irritating beers were [...]

By |2017-01-31T11:11:43+00:00September 25th, 2014|Awareness, Interstitial Cystitis Network Blog|Comments Off on IC Awareness Daily Fact #25 – Beer and Interstitial Cystitis

IC Awareness Daily Fact #24 – Pregnancy and IC

If you're wondering if you can have a baby after a diagnosis of IC, take heart! Thousands of IC patients have had successful pregnancies and children. The most common question asked by potential mothers is "Will my IC get worse during a pregnancy?" In our experience, some IC patients go into remission or experience a [...]

By |2017-01-31T11:12:29+00:00September 24th, 2014|Awareness, Interstitial Cystitis Network Blog|Comments Off on IC Awareness Daily Fact #24 – Pregnancy and IC