From the finding that IC patients in flares often have candida in their urine, to the discovery that our gut biome is deficient in important bacteria, here are some of our favorite stories from 2016.
#1 – Best Research of 2016
Some IC Flares Are Caused by Candida
It’s impossible to estimate the number of times that IC patients have mistakenly assumed that their flares were caused by an infection and, of course, taken antibiotics “just in case.” New research from the MAPP Research Network revealed a new possible culprit for IC flares… active yeast/candida infections in their bladder. Unfortunately, urine cultures rarely test for candida. Worse, those “just in case” antibiotics are killing the beneficial bacteria that normally keep candida in check. Read the story here!
The DIPP Mystery
While the debate about the role of bacteria in the bladder continues, the MAPP Network researchers made a more shocking discovery…. that IC patients have significantly different levels and types of bacteria in our digestive tract (bowel) rather than our urinary tract (kidney, bladder). This suggests that the lack of beneficial bacteria as well as an overabundance of pathogenic bacteria play a role in the cause and intensity of bladder and pelvic pain. This vital research is worth the consideration of both patients and medical care providers who often turn, inappropriately, to antibiotics. Read the story here!
#2 – Best Professional Course of 2016
“Real Men Get Real Pelvic Pain” brought by Dr. Jeannette Potts to the American Urological Association annual meeting where they challenged urologists to look beyond the prostate and bladder when men experience chronic pelvic pain. The health of the pelvic floor muscles, the role of nerve dysfunction and functional somatic syndrome must be considered to save men from often years of ineffective prostate and antibiotic treatments. Read the story here!
#3 – Best Consumer News of 2016
In an era where almost every IC treatment has increased in price, Imprimis Pharmaceuticals became an IC angel when they dropped the price of the popular Hep-Lido-A bladder instillation to just $25 a treatment! Read the story!
#4 – Best International News of 2016
Both Canada & the United Kingdom have released new guidelines for the treatment of bladder pain syndrome, normalizing the treatment for thousands of patients in those countries. Many Canadian patients have had no choice but to come to the US for treatment. This now gives them hope and a document that they can bring to their physicians to request better treatment. Read the story!
The Interstitial Cystitis Solution is, hands down, the best book written on IC in two decades! Author Nicole Cozean explains beautifully the vicious cycle of bladder irritation, muscle tension and nerve sensitivity that’s at the root of interstitial cystitis and often sudden, brutal IC flares. If you aren’t responding to treatment or are looking for more information on IC, this book is for you! Read our book review here!
#6 – Best Professional Blog of 2016
The team at Pelvic Health & Rehab are amazing. In addition to offering excellent physical therapy services for men and women with pelvic pain, their staff are also brilliant writers. Their website and “As The Pelvis Turns” blog are one of our first stops as we cruise the web looking for important stories. Check it out here!
#7 – Best Video of 2016
With almost 12,000 views since it’s been released last summer, our “IC Treatment in 2016 – Do you know the six steps of treatment” was the most viewed IC video on YouTube that year. If you are confused about your treatment options… if you think you’ve tried everything or you’re not sure what you should do next, watch this video!