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The IC community has grown substantially in the past ten years. There are now IC national organizations in more than 20 countries. If you are a patient looking for direct information in support, please your national resources below. If you are a potential sponsor, we encourage you to donate your funds directly to the groups that work directly with patients rather than "umbrella" organizations that suggest that they represent the international IC community. There is NO single IC umbrella organization in the world as of this date that represents the majority of the IC community.

Australia

Interstitial Cystitis Support Group of Australia
Chairman: Alice Terry
P.O. Box 767, Kingswood
2747 New South Wales  Australia
http://www.users.bigpond.net.au/ICSG/

Interstitial Cystitis Support Group
Mercy Hospital for Women
Clarendon Street,
East Melbourne, 3002 Victoria   Australia
Contact: Christine Murray

Austria

ICA Osterreich e. V.
Irisweg 4
A-4623 Gunskirchen, Austria
Chairman: Elke Hufnagl
http://www.ica-austria.at/index2.html

Belgium

Interstitiële Cystitis Patiëntenvereniging België (ICPB)
Contact person: Josee Van de Bergh-De Raa
P. Benoitstraat 49
1800 Vilvoorde
België
Tel: 00-32-(0)2-253 93
info@icpb.be

Bolivia

La Paz IC Support Group – New!
Maria  Eulalia Anker
+591-2-271-2761
eulalia@ceibo.entelnet.bo

Brazil

Interstitial Cystitis Patient Support North East Brazil
Contact person: Ariel Scafuri, MD
Universidade Federal do Ceará
Rua Republica do Libano, 88 apto 200
Fortalexa, Ceará
Brazil 60160-140
tel: 55-8524239-99970367
ascafuri@uol.com.br

Canada

Association de la Cystite Interstitielle du Québec
President: Françoise Robert
14 Grand Coteau
Ste-Julie (Québec)
JOL 2SO Canada
fax: 450-922-6498
http://www.cystiteinterstitielle.org/
(French)

Interstitial Cystitis & Painful Bladder Syndrome Support Group of Ottawa
Contacts: Inga Legere - 613-839-6188 or Anne - 613-733-5891
Meets quarterly for patients who are struggling with interstitial cystitis.
Please view the ICN events calendar for meeting dates!

Canadian IC & Overactive Bladder Resource Center
*Web Resource
http://www.canadaic.com
info@canadaic.com
(English)

Czech
Republic

Libor Zamecnik, MD
Urologicka Klinika
VFN a 1. LF UK, Ke Karlovu 6
128 08 Praha 2
Czech Republic
libor.zamecnik@lf1.cuni.cz

Denmark

IC Foreningen
Chairman: Annette Rasmussen
Magleparken 142, st.v
2750 Ballerup
Denmark (*Inactive?)

France

Association Française de la Cystite Interstitielle
Chairman: Françoise Watel
82 rue Albert
75013 Paris
France
http://www.orpha.net/associations/AFCI/
ci_france@hotmail.com

Germany

ICA Deutschland
Untere Berg 21
D-53881 Euskirchen
Euskirchen Deutschland
49.2251.76729
FAX: 49.2251.76720
Chair: Barbara Muendner-Hensen
http://www.ica-ev.de/
(German)
info@ica-ev.de

Great Britain

Bladder Pain Syndrome Association (BPSA)
1 Moss Close, Vange, Basildon, Essex
UK SS16 4SD
Telephone/Fax: Office 01268 555523
Chairperson: Lesley Morrison
http://www.b-p-s-a.org.uk/
info@b-p-s-a.org.uk

COB Foundation
76 High Street
Stony Stratford, Bucks MK11 1AH
United Kingdom
tel/fax: 44-1908-569169
http://www.cobfoundation.org
info@cobfoundation.org

India

Interstitial  Cystitis Patient Network - India
Chairman: Indu  Mishra
0265-553-2656.
moonlotus2001@yahoo.com

Italy

Associazone Italiana Cistite Interstitiziale
Viale Glorioso 1
000153 Roma  ITALY
Chairman: Loredana Nasta
aici@mclink.it

Japan

IC Tomonoki
Chairman: Masako Katsurada
1459-56, Funaki-Cho Oumihachiman
Shiga 523-0084
Japan
tel/fax: 81-748.338222
perro@mx.biwa.ne.jp

Kenya

New! East Africa IC Support Group Nakuru Chapter
Chairman: James G. Mwangi
+245720391104
jgmwangi2003@yahoo.com

Mexico

Asociación de Enfermedades Uro-Ginecologicas
President: Florentina Ferreyra Lopez
Amatlán No. 37-2,
Col. Condesa,
México, D.F.CP 06140
tel: (52) 55 -54-04-89-16
http://www.asenug.org/
info@asenug.org

Netherlands

Interstitiële Cystitis Patiëntenvereniging
Secretariaat ICP
Postbus 4
3980 CA Bunnik
tel: 030-29 62 965
fax: 030-29 48 503
Chairman: Joke Scholten
http://www.icpatienten.nl/
info@icpatienten.nl

New Zealand

Interstitial Cystitis/Urology Support Group of New Zealand
Chairman: Dot Milne
P.O. Box 33-264
Christchurch, New Zealand
tel: 64-3-3294005
weedot@xtra.co.nz

Norway

Norge ICPA
Langedalskleiva #4
4790 Lillesand, Norway
Chairman: Julia M. Godøy
http://www.americanbladder.org/norway/
jegodoy@online.no

Norsk Forening for Pasienter med Urologiske Sykdommer
NOFUS
Telefon   : 55 95 35 88 - 55 33 09 30
Telefaks : 55 33 09 31
Chairman: Bernt Kvarstein MD
http://www.nofus.no/
kvarste@online.no

Peru

Fernando Leon MD
Lord Nelson 431,
Miraflores
Lima 18  Peru
ferleon@terra.com

Portugal

Paulo Dinis Oliveira MD
Department of Urology,
Hospital S. Joao
4200 Porto
Portugal
cruzfjmr@med.up.p

Poland

IC-Polska
Group leader: Agnieszka Blazewicz
http://groups.yahoo.com/group/IC-polsk
IC-Polska@yahoogroups.com

Spain

ABATYCI
President: Maria del Rosario Fernandez Garcia
Calle Sineu 2 (Adosado C)
07220 Pina, Mallorca
tel: 971-66 53 22
http://usuarios.tripod.es/abatyci/
abatycipina@hotmail.com

Sweden

ISOP – website only
Lennart Branthle
http://home.swipnet.se/isop/ic.htm


USA

American Bladder & Pelvic Pain Assn., Inc. (National)
621 Smith Dr.
Metairie, LA, USA 70005
2005 President: Jill Osborne
http://www.americanbladder.org
info@americanbladder.org

Interstitial Cystitis Association ICA (National)
110 North Washington Street, Suite 340
Rockville, MD 20850, USA
tel: 1-301-610.5300
fax: 1-301-610.5308
http://www.ichelp.org
icamail@ichelp.org

Interstitial Cystitis Network ICN (National)
*Publishing Company dedicated to patient education & Support
4983 Sonoma Highway, Suite L
Santa Rosa, CA 95409, USA
tel: 1-707-538.9442
fax: 1-707-538.9444
http://www.ic-network.com
jill@ic-network.com

Greater Houston Interstitial Cystitis United  ICU (Regional)
President: Cindy Sinclair
409-948-3710
icu-cindy@sbcglobal.net

Please note that these groups are not affiliated with the IC Network. We remind everyone that support groups, group leaders or participants cannot give you personal medical advice. Their function is to provide personal support and to provide information on the many different options available for IC treatment and self care. If you attend a group and hear information on a treatment that you would like to try, please research that treatment carefully and discuss it with your personal medical care provider. Only that doctor can and should give you medical advice.


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Updated: 03/12/07 - jho