Introduction
The interstitial cystitis movement has grown substantially in the past twenty years with many patient and research organizations placed around the world. This is a list of the organizations and/or international IC clinicians to date. It is subject to change. If you have a new organization to list or you are aware of an organization which has changed or folded, please let us know by sending an email to: jill@ic-network.com.
Argentina
ARACI Asociación Rosarina Afectados Cistitis Intersticial
President: Liliana Bacchi
Dorrego 3857-DTO.1
2000 Rosario, Argentina
Tel: 0341-4644164
http://www.araci.org.ar/
liliaraci@hotmail.com
Fundacion Geiser: Geiser Foundation
Linkage, Research and Support Group for Rare Diseases
Avellaneda 595, Ciudad de Mendoza, Argentina
Tel: (54911) 15-5503-9901, Tuesday to Friday, 14.00 to 18.00 (Argentina time)
Australia
Interstitial Cystitis Support Group of Australia
Chairman: Dr. Katya Buc Stooke
ICSG Australia
PO Box 144,
Richmond, VIC 3121
AUSTRALIA
Interstitial Cystitis Support Group (*This group may be inactive)
Mercy Hospital for Women
Clarendon Street,
East Melbourne, 3002 Victoria Australia
Contact: Christine Murray
Continence Foundation of Australia
AMA House 293 Royal Parade Parkville Victoria 3052
Membership Officer: Meri Kimova
Tel 61 3 9347 2522
Fax 61 3 9347 2533
IC Friends of Australia
http://icfriends.forumotion.com/
Austria
ICA Osterreich e. V.
Irisweg 4
A-4623 Gunskirchen, Austria
Chairman: Brigitte Annerl
http://www.ica-austria.at/index2.html
Belgium
Interstitiële Cystitis Patiëntenvereniging België (ICPB)
Contact person: Josee Van de Bergh-De Raa
P. Benoitstraat 49
1800 Vilvoorde
België
Tel: 00-32-(0)2-253 93
http://www.icpb.be
info@icpb.be
Bolivia
La Paz IC Support Group
Maria Eulalia Anker
+591-2-271-2761
eulalia@ceibo.entelnet.bo
Brazil
Interstitial Cystitis Patient Support North East Brazil
Contact person: Ariel Scafuri, MD
Universidade Federal do Ceará
Rua Republica do Libano, 88 apto 200
Fortalexa, Ceará
Brazil 60160-140
tel: 55-8524239-99970367
ascafuri@uol.com.br
Fernando Almeida, MD. PhD
Female Urology & Voiding Dysfunction
Federal University of Sao Paulo UNIFESP-EPM
Tel: 55-11-5576 4086
website: www.drfernandoalmeida.com.br
University hospital website: www.uroepm.com.br
Canada
QUEBEC - Association de la Cystite Interstitielle du Québec
President: Françoise Robert
14 Grand Coteau
Ste-Julie (Québec)
JOL 2SO Canada
fax: 450-922-6498
http://www.cystiteinterstitielle.org/
(French)
ONTARIO - Interstitial Cystitis & Painful Bladder Syndrome Support Group of Ottawa
Contacts: Inga Legere - 613-839-6188 or Anne - 613-733-5891
Meets quarterly for patients who are struggling with interstitial cystitis.
ONTARIO - Kitchener-Waterloo IC Support Group
Group contact: Ann 519-896-1778 kwicsmail@gmail.com or Kathy 519-570-9045 calvert89@rogers.com
Please see website for meeting dates and information
Web Page: http://www.skatecrooked.com/kwics/
BRITISH COLUMBIA - Victoria IC Support Network
Group Contact: Colleen McGavin 250-477-7855
Czech Republic
Libor Zamecnik, MD
Urologicka Klinika
VFN a 1. LF UK, Ke Karlovu 6
128 08 Praha 2
Czech Republic
libor.zamecnik@lf1.cuni.cz
Denmark
IC Foreningen
Chairman: Elly Jung
http://www.icforeningen.dk/
graphicsd@gmail.com
Steinunn Joergensen
Project Nurse
Department of Urology
Herlev Hospital, University of Copenhagen
DK-2730 Herlev, Denmark
stjr@herlevhosp.kbhamt.dk
England
COB Foundation
76 High Street
Stony Stratford, Bucks MK11 1AH
United Kingdom
tel/fax: 44-1908-569169
http://www.cobfoundation.org
info@cobfoundation.org
France
Association Française de la Cystite Interstitielle
Chairman: Françoise Watel
82 rue Albert
75013 Paris
France
http://www.orpha.net/associations/AFCI/
ci_france@hotmail.com
Association Francaise d'Algies Perineales & Nevralgies Pudendales (AFAP-NP)
President: Marie Boutet
60 rue Truffaut
75017 Paris, France
http://www.afap-np.com
email: contact@afap-np.com
Germany
ICA Deutschland
Untere Berg 21
D-53881 Euskirchen
Euskirchen Deutschland
49.2251.76729
FAX: 49.2251.76720
Chair: Barbara Muendner-Hensen
http://www.ica-ev.de/
(German)
info@ica-ev.de
Greece
Center for Urologic and Pelvic Pain
Contact: Konstantinos Kalyvas, MD
Chalkidis 51, Building A2
GR 555 35
Pilea, Thessaloniki
Makedonia, Greece
Tel-Fax 0030 2310-32 40 20
http://www.cppc.gr/
kalyvas@cppc.gr
India
Nagendra Mishra, MD
Interstitial Cystitis Center
2nd floor, Shantam complex
Gurukul road, Opp Navneet House
Memnagar,
Ahmedabad-380061, India
tel: 917927497083
fax: 917940054104
http://www.interstitialcystitiscenter.in/
nagendraad1@yahoo.com
Italy
Associazone Italiana Cistite Interstitiziale
Viale Glorioso 1
000153 Roma ITALY
http://www.aicionlus.org/
aici@mclink.it
Japan
IC Tomonoki
Chairman: Masako Katsurada
1459-56, Funaki-Cho Oumihachiman
Shiga 523-0084 Japan
tel/fax: 81-748.338222
http://www.tomonoki.org
info@tomonoki.org
Comfortable Urology Network (CUN)
http://www.hainyo-net.org/
info@hainyo-net.org
Kenya
East Africa IC Support Group Nakuru Chapter
Chairman: James G. Mwangi
P.O. Box 16521
Nakuru 20100
Kenya
+245720391104
jgmwangi2003@yahoo.com
Mexico
ASOCIACION DE CISTITIS INTERSTICIAL MEXICO
A.C.President: Florentina Ferreyra Lopez
Cerezos 87 casa 41
Col. Jardines de Atizapan
Atizapan de Zaragoza, Edo. De Mex.
Mexico CP 52978
http://www.aci-mexico.com
Tel: +52(55)54-04-89-16
Netherlands
Interstitiële Cystitis Patiëntenvereniging
Secretariaat ICP
Postbus 4
3980 CA Bunnik
tel: 030-29 62 965
fax: 030-29 48 503
Chairman: Joke Scholten
http://www.icpatienten.nl/
info@icpatienten.nl
New Zealand
Interstitial Cystitis/Urology Support Group of New Zealand
Chairman: Dot Milne
P.O. Box 33-264
Christchurch, New Zealand
tel: 64-3-3294005
weedot@xtra.co.nz
Norway
Norsk Forening for Pasienter med Urologiske Sykdommer
NOFUS
Telefon : 55 95 35 88 - 55 33 09 30
Telefaks : 55 33 09 31
Chairman: Bernt Kvarstein MD
http://www.nofus.no/
kvarste@online.no
Peru
Fernando Leon MD
Lord Nelson 431,
Miraflores
Lima 18 Peru
ferleon@terra.com
Portugal
Paulo Dinis Oliveira MD
Department of Urology,
Hospital S. Joao
4200 Porto
Portugal
Romania
Andrei Manu-Marin, MD
website: http://www.cistita.ro
andri_66@yahoo.com
South Africa
New - June 2008! The IC Support Group of South Africa
Contact: Dawn Zimmerman
DawnZimmermann@gmail.com
Spain
ABATYCI
President: Maria del Rosario Fernandez Garcia
Calle Sineu 2 (Adosado C)
07220 Pina, Mallorca
tel: 971-66 53 22
http://usuarios.tripod.es/abatyci/
abatycipina@hotmail.com
Asociacion Catalana de Afectados de Cistitis Intersticial (ACACI)
also: http://www.acaci.tk
President: Monica Hernandez
C/Pareto, 55 Atico 3a
08902 L'Hospitalet de Llobregat
Barcelona, Spain
http://www.acaci.com.es/
asociacionacaci@hotmail.com
Sweden
Swedish Chronic Prostatitis Network (ISOP)
http://home.swipnet.se/isop/
Lennart Branthle
sm7gei@swipnet.sw
Taiwan
Taiwan Interstitial Cystitis Association (TICA)
icatw@mail.taic.doh.gov.tw
USA
Interstitial Cystitis Network ICN (National)
*health education company
PO Box 2159, Healdsburg, CA 95409 USA
tel: 1-707-538.9442
fax: 1-707-538.9444
http://www.ic-network.com
jill@ic-network.com
Pure-Hope
President: Cindy Sinclair
281-500-4656
http://www.pure-hope.org
Interstitial Cystitis Association ICA (National)
110 North Washington Street, Suite 340
Rockville, MD 20850, USA
tel: 1-301-610.5300
fax: 1-301-610.5308
http://www.ichelp.org
icamail@ichelp.org
