Introduction
The IC community has grown substantially in the past ten years. There are now IC national organizations in more than 20 countries. If you are a patient looking for direct information in support, please your national resources below. If you are a potential sponsor, we encourage you to donate your funds directly to the groups that work directly with patients rather than "umbrella" organizations that suggest that they represent the international IC community. There is NO single IC umbrella organization in the world as of this date that represents the majority of the IC community.
Argentina
ARACI Asociación Rosarina Afectados Cistitis Intersticial
President: Liliana Bacchi
Dorrego 3857-DTO.1
2000 Rosario, Argentina
Tel: 0341-4644164
liliaraci@hotmail.com
Fundacion Geiser: Geiser Foundation
Linkage, Research and Support Group for Rare Diseases
Avellaneda 595, Ciudad de Mendoza, Argentina
Tel: (54911) 15-5503-9901, Tuesday to Friday, 14.00 to 18.00 (Argentina time)
Australia
Interstitial Cystitis Support Group of Australia
Chairman: Dr. Katya Buc Stooke
ICSG Australia
PO Box 144,
Richmond, VIC 3121
AUSTRALIA
Interstitial Cystitis Support Group
Mercy Hospital for Women
Clarendon Street,
East Melbourne, 3002 Victoria Australia
Contact: Christine Murray
Continence Foundation of Australia
AMA House 293 Royal Parade Parkville Victoria 3052
Membership Officer: Meri Kimova
Tel 61 3 9347 2522
Fax 61 3 9347 2533
Austria
ICA Osterreich e. V.
Irisweg 4
A-4623 Gunskirchen, Austria
Chairman: Brigitte Annerl
http://www.ica-austria.at/index2.html
Belgium
Interstitiële Cystitis Patiëntenvereniging België (ICPB)
Contact person: Josee Van de Bergh-De Raa
P. Benoitstraat 49
1800 Vilvoorde
België
Tel: 00-32-(0)2-253 93
info@icpb.be
Bolivia
La Paz IC Support Group
Maria Eulalia Anker
+591-2-271-2761
eulalia@ceibo.entelnet.bo
Brazil
Interstitial Cystitis Patient Support North East Brazil
Contact person: Ariel Scafuri, MD
Universidade Federal do Ceará
Rua Republica do Libano, 88 apto 200
Fortalexa, Ceará
Brazil 60160-140
tel: 55-8524239-99970367
ascafuri@uol.com.br
Fernando Almeida, MD. PhD
Female Urology & Voiding Dysfunction
Federal University of Sao Paulo UNIFESP-EPM
Tel: 55-11-5576 4086
website: www.drfernandoalmeida.com.br
University hospital website: www.uroepm.com.br
Canada
Association de la Cystite Interstitielle du Québec
President: Françoise Robert
14 Grand Coteau
Ste-Julie (Québec)
JOL 2SO Canada
fax: 450-922-6498
http://www.cystiteinterstitielle.org/
(French)
Interstitial Cystitis & Painful Bladder Syndrome Support Group of Ottawa
Contacts: Inga Legere - 613-839-6188 or Anne - 613-733-5891
Meets quarterly for patients who are struggling with interstitial cystitis.
Kitchener-Waterloo IC Support Group
Group contact: Ann 519-896-1778 kwicsmail@gmail.com or Kathy 519-570-9045 calvert89@rogers.com
Please see website for meeting dates and information
Web Page: http://www.geocities.com/kw_ics/
Canadian IC & Overactive Bladder Resource Center
*Web Resource
http://www.canadaic.com
info@canadaic.com
(English)
Czech Republic
Libor Zamecnik, MD
Urologicka Klinika
VFN a 1. LF UK, Ke Karlovu 6
128 08 Praha 2
Czech Republic
libor.zamecnik@lf1.cuni.cz
Denmark
IC Foreningen
Chairman: Elly Jung
graphicsd@gmail.com
Steinunn Joergensen
Project Nurse
Department of Urology
Herlev Hospital, University of Copenhagen
DK-2730 Herlev, Denmark
stjr@herlevhosp.kbhamt.dk
France
Association Française de la Cystite Interstitielle
Chairman: Françoise Watel
82 rue Albert
75013 Paris
France
http://www.orpha.net/associations/AFCI/
ci_france@hotmail.com
Germany
ICA Deutschland
Untere Berg 21
D-53881 Euskirchen
Euskirchen Deutschland
49.2251.76729
FAX: 49.2251.76720
Chair: Barbara Muendner-Hensen
http://www.ica-ev.de/
(German)
info@ica-ev.de
Great Britain
Bladder Pain Syndrome Association (BPSA)
1 Moss Close, Vange, Basildon, Essex
UK SS16 4SD
Telephone/Fax: Office 01268 555523
Chairperson: Lesley Morrison
http://www.b-p-s-a.org.uk/
info@b-p-s-a.org.uk
COB Foundation
76 High Street
Stony Stratford, Bucks MK11 1AH
United Kingdom
tel/fax: 44-1908-569169
http://www.cobfoundation.org
info@cobfoundation.org
India
Interstitial Cystitis Patient Network - India
Chairman: Indu Mishra
0265-553-2656.
moonlotus2001@yahoo.com
Nagendra Mishra, MD
2nd floor, Shantam complex
Gurukul road, Opp Navneet House
Memnagar
Ahmedabad-380061, India
tel: 917927497083
fax: 917940054104
nagendraad1@yahoo.com
Italy
Associazone Italiana Cistite Interstitiziale
Viale Glorioso 1
000153 Roma ITALY
aici@mclink.it
Japan
IC Tomonoki
Chairman: Masako Katsurada
1459-56, Funaki-Cho Oumihachiman
Shiga 523-0084
Japan
tel/fax: 81-748.338222
perro@mx.biwa.ne.jp
Kenya
East Africa IC Support Group Nakuru Chapter
Chairman: James G. Mwangi
P.O. Box 16521
Nakuru 20100
Kenya
+245720391104
jgmwangi2003@yahoo.com
Mexico
ASOCIACION DE CISTITIS INTERSTICIAL MEXICO
A.C.President: Florentina Ferreyra Lopez
Cerezos 87 casa 41
Col. Jardines de Atizapan
Atizapan de Zaragoza, Edo. De Mex.
Mexico
CP 52978
Tel: +52(55)54-04-89-16
Netherlands
Interstitiële Cystitis Patiëntenvereniging
Secretariaat ICP
Postbus 4
3980 CA Bunnik
tel: 030-29 62 965
fax: 030-29 48 503
Chairman: Joke Scholten
http://www.icpatienten.nl/
info@icpatienten.nl
New Zealand
Interstitial Cystitis/Urology Support Group of New Zealand
Chairman: Dot Milne
P.O. Box 33-264
Christchurch, New Zealand
tel: 64-3-3294005
weedot@xtra.co.nz
Norway
Norsk Forening for Pasienter med Urologiske Sykdommer
NOFUS
Telefon : 55 95 35 88 - 55 33 09 30
Telefaks : 55 33 09 31
Chairman: Bernt Kvarstein MD
http://www.nofus.no/
kvarste@online.no
Peru
Fernando Leon MD
Lord Nelson 431,
Miraflores
Lima 18 Peru
ferleon@terra.com
Poland
IC-Polska
Group leader: Agnieszka Blazewicz
http://groups.yahoo.com/group/IC-polsk
IC-Polska@yahoogroups.com
Portugal
Paulo Dinis Oliveira MD
Department of Urology,
Hospital S. Joao
4200 Porto
Portugal
Romania
Andrei Manu-Marin, MD
website: http://www.cistita.ro
andri_66@yahoo.com
South Africa
New - June 2008! The IC Support Group of South Africa
Contact: Dawn Zimmerman
DawnZimmermann@gmail.com
Spain
ABATYCI
President: Maria del Rosario Fernandez Garcia
Calle Sineu 2 (Adosado C)
07220 Pina, Mallorca
tel: 971-66 53 22
http://usuarios.tripod.es/abatyci/
abatycipina@hotmail.com
Asociacion Catalana de Afectados de Cistitis Intersticial (ACACI)
also: http://www.acaci.tk
President: Monica Hernandez
C/Pareto, 55 Atico 3a
08902 L'Hospitalet de Llobregat
Barcelona, Spain
asociacionacaci@hotmail.com
Sweden
ISOP
Lennart Branthle
sm7gei@swipnet.sw
Taiwan
Taiwan Interstitial Cystitis Association (TICA)
http://www.twica.org.tw
icatw@mail.taic.doh.gov.tw
USA
Interstitial Cystitis Network ICN (National)
*Publishing Company dedicated to patient education & Support
4983 Sonoma Highway, Suite L
Santa Rosa, CA 95409, USA
tel: 1-707-538.9442
fax: 1-707-538.9444
http://www.ic-network.com
jill@ic-network.com
Pure-Hope
President: Cindy Sinclair
281-500-4656
http://www.pure-hope.org
Interstitial Cystitis Association ICA (National)
110 North Washington Street, Suite 340
Rockville, MD 20850, USA
tel: 1-301-610.5300
fax: 1-301-610.5308
http://www.ichelp.org
icamail@ichelp.org
