ICN Survey Center

Current Active Surveys

The ICN has a long history of collaborating with researchers to develop data for various IC research studies. We're proud that data generated from our site has been presented at major medical conferences including the NIDDK Basic Bladder Science Symposium, ACOG, ISSWSH, AUA and others. Without you, the patient, this data would not be available! We thank you for helping us to gather this vital information!

The surveys below are either in-house ICN surveys or those that we are publicizing for other research teams.

Title: Cranberry and Urinary Tract Symptoms

CranberryNew! Cranberry has long been reported to be irritating to patients with interstitial cystitis. We thought we'd try to set the record straight by gathering data from IC, prostatitis and other patients. Does it really bother you? If so, how?? Which symptoms get worse?? Has cranberry ever helped you?

Please help us gather this info by participating in our very short, two minute survey today.  Click here to participate!

Title: Holiday Survival Strategies For IC Patients

New! The holiday season can be stressful for anyone. Throw in a chronic illness like IC or prostatitis that makes daily life a challenge and patients can easily feel overwhelmed. We'd appreciate your participation in this survey. We're hoping to gather some excellent holiday coping strategies, ideas and tips that can help newly diagnosed patients have a healthy and happy holiday season!

  • Has IC changed the way you celebrate your holidays?
  • What are your favorite holiday traditions?
  • Money saving ideas?
  • Making travelling during the holidays more comfortable?
  • Party  ideas?
  • Gift and shopping ideas when IC keeps you near home?
  • Favorite holiday meals and treats?

12 questions total! Should take just five minutes and, perhaps, give you some ideas for your holidays too ! Thank you for helping! Click Here to take the survey

Title: Procaim

PROCAIM (People-Reported Outcomes from Complementary, Alternative, and Integrative Medicine) was developed under a grant from the National Center for Complementary and Alternative Medicine to study (1) the effectiveness of the full range of mind/body medical interventions and other complementary and alternative therapies, and (2) the interactions among stress, pain, and responses to the various available treatments. This is a web based study composed of surveys that will occur over a period of time!

TO ENROLL

  • Log in to their web site: http://www.procaim.org/
  • Register as a New User.
  • Select clinic name: ClinicalTrials.gov.
  • Read and sign the Consent Form.

After participants"sign" the form with their email address, participants can begin to answer the first in a series of questionnaires. The system will send participants email reminders at the time of each scheduled follow-up for one year.

Investigators: UCLA Schools of Public Health and Medicine. 
Date Added - March 2007
Status - Open
Eligible Participants - Patients with IC, fibromyalgia, IBS and other chronic recurring conditions.

Research & Survey Services

Dr. Stanley Zaslau presenting at AUAAre you conducting research??

Looking for the opportunity to gather data from a large population of IC patients??

We offer a variety of research services, including:

Patient Recruitment: To assist with patient recruitment, we can publicize your research studies and/or clinical trials on our website or in blast e-mails. We have done this for several research centers, including the University of Maryland.

Web Based Surveys: Since our founding in 1995, we have hosted, conducted & managed a wide variety of web based surveys. Our on-line survey system provides real-time data analysis available for you and your staff 24/7 or your raw data can be sent directly to you for analysis. Downloadable and exportable in multiple formats.

For additional information, please contact ICN President Jill Osborne