The ICN has a long history of collaborating with researchers to develop data for various IC research studies. We're proud that data generated from our site has been presented at major medical conferences including the NIDDK Basic Bladder Science Symposium, ACOG, ISSWSH, AUA and others. Without you, the patient, this data would not be available! We thank you for helping us to gather this vital information!
The surveys below are either in-house ICN surveys or those that we are publicizing for other research teams.
Title: Gardasil and Bladder Symptoms
(Spring 2012) In the past five years, since the Gardasil HPV vaccination was implemented, we've had random reports from some patients who developed their IC and bladder symptoms after the vaccinations occurred. One patient, Amanda, experienced a severe flare after her second injection that improved after three months. She wondered if any other patients have experienced the same thing. We think this is a very interesting question and worth doing a survey on. Have you had the Gardasil vaccination?? Please complete this survey and tell us your experience.
Title: Interstitial Cystitis and Sexual Dysfunction
(Spring 2012) Researchers Stan Zaslau and Dale Riggs at West Virginia University are continuing their research into the impact of IC on relationships and sexual function. Please share your experience in this new survey!
Title: Weight Loss Programs and IC - Are any bladder friendly?
(Summer 2011) We're curious! With so many prepackaged foods prepared for weight loss programs, is there a program (or programs) which are more bladder friendly than others? We're asking for your personal experience with various national weight loss programs, including:
- Jenny Craig
- South Beach
- The Zone
- Weight Watchers
Please share your experience! Click here to take the survey!
Title: Ketamine Use and IC - Is there a connection?
This survey is for patients struggling with IC and/or other bladder symptoms.
(06/11) Ketamine is a recreational drug that is commonly used at parties and raves. Available throughout the world, recent research has demonstrated that ketamine can cause severe bladder ulceration that results in symptoms and bladder ulcers similar to IC. We're interested in seeing just how many IC patients may have used ketamine in their past. No personal information will be collected in this survey, nor will an email address be collected. Take the survey
Title: The Incidence of Urological Symptoms in Ketamine Users
This survey is for anyone using ketamine who may, or may not, be experienced bladder symptoms.
(05/11) Have you used, or are you using, ketamine?? Peeing blood? Can't sleep through the night without running to the restroom? Ketamine has a powerful, damaging effect on the bladder and kidneys. The purpose of this survey is to gather some baseline data about ketamine use and the incidence and/or awareness of bladder symptoms that may develop with ketamine use. Please help us learn more about this! No personal identifying information is required or will be collected other than your country and/or region of origin. Take the survey
Title: Medical Marijuana and IC
(07/10) Medical marijuana is a difficult, politically sensitive subject. While research studies have shown that medical marijuana can be effective in reducing neuropathic pain and/or muscle tension disorders, it is still illegal for use in many states. Our goal is to collect some data that can help determine if medical marijuana is helpful or hurtful in the management of pelvic pain and IC symptoms. Your answers are entirely anonymous. We will not ask for any identifying information from you. We simply want to know what your experience is. We hope that the preliminary data gathered in this survey may be used to support a larger funded study into the use of medical marijuana for IC or pelvic pain symptoms. Click here to take survey
Research & Survey Services
Are you conducting research??
Looking for the opportunity to gather data from a large population of IC patients??
We offer a variety of research services, including:
Patient Recruitment: To assist with patient recruitment, we can publicize your research studies and/or clinical trials on our website or in blast e-mails. We have done this for several research centers, including the University of Maryland.
Web Based Surveys: Since our founding in 1995, we have hosted, conducted & managed a wide variety of web based surveys. Our on-line survey system provides real-time data analysis available for you and your staff 24/7 or your raw data can be sent directly to you for analysis. Downloadable and exportable in multiple formats.
For additional information, please contact ICN President Jill Osborne