Clinical trials are used to determine whether new drugs or investigational treatments are both safe and effective. IC patients often choose to participate in studies because they may provide access to the latest investigational therapies and medications at no cost. Studies also allow the patient to interact with some of the best IC researchers in the country.
Should You Participate in a Clinical Trial?
Participating in a clinical trial is a fabulous and selfless gift to the IC movement. It also requires careful thought and consideration. Here are some articles worth reading that will help you understand what they involve and what you should know.
- Are Clinical Trials For You?
- My Body On The Line – Take Me, For Example – IC patient Meredith Small shares her clinical trial experience in an article featured in the Washington Post
Finding A Clinical Trial
1. Featured Clinical Trials & Research Studies
- My Fibroid Study
- Northwestern Study Seeks Men & Women With IC/BPS or CP/CPPS
- New LiNKA Study Launched In North America Seeks Bladder Pain Patients
- LiNKA Study Launched In North America Seeks Patients With Hunner’s Lesions
- Lipella Study Seeks Men & Women With IC/BPS
- San Diego IC Study Seeks Paid Volunteers To Donate Blood
- Interstitial Cystitis Stem Cell Study Seeks Participants
- Cyclosporine Study Seeks Men and Women Who Have Failed Previous IC/BPS Therapies
- Study Seeks Women With Moderate to Severe IC and Bladder Pain
- Doctoral Student Seeks Life Stories From Interstitial Cystitis Patients
ClinicalTrials.gov is a registry and results database of publicly and privately supported clinical studies of human participants conducted around the world. It is searchable by nation, topic and researcher. We use this free service regularly! Find it at: http://www.clinicaltrials.gov
3. MAPP Research Network
To help better understand the underlying causes of the two most prominent chronic urological pain syndromes—interstitial cystitis/painful bladder syndrome (IC/PBS) and chronic prostatitis/chronic pelvic pain syndrome (CP/CPPS)—the National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK) has launched the Multidisciplinary Approach to the Study of Chronic Pelvic Pain (MAPP) Research Network, embracing a systemic—or whole-body—approach in the study of IC/PBS and CP/CPPS. MAPP Network scientists are conducting a wide range of studies that patients can participate in.