Looking For A Support Group
Starting a Support Group
Support groups always begin with a motivated patient and/or family member who wants to make a difference. They developed their medical condition at various ages. They struggled with medical care. They agonized over friendships lost and family relationships strained. Most of all, they were determined not to give up. Instead of suffering in silence at home alone, these patients poured their energy into making a difference. You can to! As Margaret Mead once said “Never doubt that a small group of thoughtfully committed citizens can change the world;indeed, it’s the only thing that ever has.”
Support groups (and their leaders) are ambassadors for patients in their local communities. They work with and/or educate patients, work with local clinicians, support local researchers, coordinate IC Awareness Month activities and, perhaps, with the media, government entities and so forth. It’s immensely gratifying but shouldn’t be taken lightly.