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You are here: IC Network > Patient Handbook > Understanding Diet and IC (Revised 07/06) Understanding Diet and IC Patients' reactions to food: we're all alike, but differentThough a few people with IC have bladders that are not sensitive to food, for the overwhelming majority of us, what we consume plays a significant role in how severe our symptoms are. While it's true that some common trigger foods, such as coffee or cranberry juice, provoke IC symptoms for nearly everyone, it's also true that each of us has a different tolerance level for many of the trigger foods. For instance, some IC patients may comfortably eat a small quantity of a specific food, yet if they eat more, they will have an IC flare. Others, to their great frustration, may not be able to tolerate even a single bite of that same trigger food without suffering increased symptoms. Still others may be able to consume all they want of that food with no trouble at all. This variation in our response is why no one can create a list of foods to avoid that will apply uniformly to absolutely everyone with IC.IC patients usually spend their first six months to a year discovering the ways in which their IC food triggers are similar to others', and the ways in which their bladder reacts differently. They do this either through random trial and error, or via a systematic approach with an elimination diet. We've outlined here the most common IC triggers as well as a variety of elimination diet approaches and some IC friendly foods.
How some foods make IC symptoms worseWhile it hasn't been scientifically established exactly why the foods on the IC diet list cause flares, urologists and IC researchers have proposed some credible explanations based on what we currently know about the foods and about IC.If you recall the physiology of IC then you understand that IC involves mast cells in the bladder. These mast cells are not unlike the mast cells that line our sinuses and give us hay fever symptoms. Many of the foods on our IC Diet list are quite high in histamine, an irritating substance that can provoke mast cells. Another problem IC patients may have is increased nerve senstivity in the bladder. Some of the items on the diet list actually stimulate and sensitize nerves, and that's not something we want to do to an already oversensitive bladder. Dr. Lowell Parsons, a reknown IC researcher at the University of San Diego, has noticed that several foods on the list contain large amounts of potassium. Because some patients' bladders are known to react when potassium salts are instilled in the bladder, Dr. Parsons has suggested that for those patients, part of the problem may be the foods' potassium. Many people have noticed that some foods on the IC diet list, particularly fruits and tomatoes, contain a substantial amount of acid. Food acids and their potential effect on IC symptoms have been the focus of much discussion over the years. While we don't have any concrete answers yet to questions of why these foods bother IC patients, IC researchers do know that certain explantions for the acid food effect are not credible. Sometimes referred to "pseudo-science", the myths explaining the acid food effect may sound plausible, but are not founded on known medical facts or unbiased scientific evidence. Typically these myths are touted by someone trying to sell IC patients something. The pseudo-scientific food myth IC patients run into most often on the internet is the one that claims that IC urine (or the IC body in general) is too acidic and if it was alkaline, the patient wouldn't suffer. Acid foods, it says, bother the bladder because they make the body chemistry, and thus the urine, more acid. In truth, the effect of well-known urinary alkalinizers such as PolyCitra is not universal among IC patients. Some patients say it makes their IC better, others tell their doctors it actually makes their IC worse. What's more, some acid foods make the urine acid while others actually turn it alkaline. Drink a lot of cranberry juice and your urine will reliably turn acid, and if you're an IC patient, your IC will flare up. Do the same with orange juice and your urine will become alkaline. But even though your urine is alkaline, you'll probably have quite an IC flare-up! Why does one acidic food turn the urine acid and the other turn it alkaline? Because each substance is utilized by the body differently.
The IC Diet: A list of problem foodsThere are a variety of lists floating around the IC community which document some of the diverse IC food irritants. Many lists are similar, yet not identical. Whether or not a particular food is listed is sometimes a matter of the beliefs, priorities, or personal experience of the author(s).The problem foods we've listed below are the most common ones that thousands of IC patients have reported trouble with. Your goal is to determine IF these foods irritate you, perhaps by using an elimination diet! If you are like most, you'll probably be able to eat a few of the foods listed as "problematic". You also might have to avoid a few others listed as "okay". Remember, this list is only a rough guide. Be prepared to be creative with your meals and in your kitchen! Please note: About 15% of women with IC also have vulvar pain (vulvodynia). Some of the foods in the "May Be Okay" column have high levels of oxalates, which women with vulvodynia react to. Those who don't have vulvodynia typically don't react to the oxalates, so they may have a much easier time getting away with foods in the "May Be Okay" column.
These foods win our vote as the biggest misery makers for people with IC! These are the foods we hear about from IC patients all the time. Of course just because they cause trouble for so many others, that doesn't guarantee they'll make you miserable too. But if you do eat these, watch out! Be sure to pay close attention to how you feel afterwards. If you feel worse, then there is a good chance that this is a trigger food for you. Information is power. Whenever possible, talk with other patients and compare your trigger foods. They may help you discover some hidden triggers in your own diet. #1: Coffees and Teas Is decaf coffee safe?? For most patients in flares, it isn't. A decaffeinated coffee is still very high in acid and can provoke symptoms. There are a number of herbal coffees, such as Cafix or Pero, that patients have reported to enjoy. There are also low acid coffees, such as Euromild & Puroast, that may be more tolerable. If you're struggling with IC symptoms and/or a flare, the safest hot drink is hot water and honey! Teas can be surprisingly irritating to the bladder. A regular tea, such as Earl Grey, is usually out of the question. Remember, just as with coffees, decaf regular teas can still provoke symptoms. Herbal teas, particularly herbal blends, are also notorious for triggering symptoms due to the acidity added from other herbs, such as rosehips. Despite the hype, green tea is so acidic that it can create agonizing pain for some. If you're a tea lover, we suggest that you try a plain organic or mint tea! #2: Cranberry & Other Fruit Juices #3: Carbonated beverages The most difficult carbonated beverage for an IC bladder to tolerate appears to be diet cola. Diet colas are a quadruple whammy of acidic carbonation, citric and other acids, caffeine, and artificial sweeteners-- four well-known bladder irritants. Taken all at once it can be an IC bladder's nightmare! If you must have a soda, try a non-diet, usually non-caffeinated, root beer-- and load the cup with plenty of ice to dilute it! #4: Tomato Products #5: Multivitamins #6: Tobacco The two hardest foods to give upAs a support group leader, every once in a while I encounter an IC patient who, despite their horrible, continuous pain, insists on drinking coffee and/or eating chocolate bars. Coffee and chocolate are among the most common comfort foods. We depend on these to wake up, soothe our bad mood, or just give us a cheerful lift. In addition to caffeine, these both have a load of substances any one of which can potentially affect an IC bladder.For me, as an IC patient, it was a choice between pain and frequency or coffee. I chose not to be in pain. But, still, some coffee addicts insist that they can drink coffee and not experience discomfort.I say, PROVE IT! The only way to know if coffee, chocolate, (or any other comfort food) bothers your bladder is to do your own research! How? Complete a voiding diary for a few days, WITH COFFEE AND CHOCOLATE, in your diet. Then, keep the same diary and avoid drinking and/or eating either for a week! If your voiding diary shows that you urinate less and/or are in less pain when you're not consuming them, then they are clearly irritating you! Do you need any more evidence than that?
Prelief has been demonstrated
to be of value in the diets of Interstitial Cystitis (IC) patients in
a retrospective study of over 200 patients who consumed acidic foods and
beverages with and without Prelief (R.A. Bologna, A. Gomelsky, J.C. Lukban,
L.M. Tu, A.S. Holzberg, and K.E. Whitmore, 1998-99, data on file). We are delighted to
see this independent confirmation of Prelief’s value in reducing
the effect of food acid for those individuals who are acid sensitive.
Please visit the Prelief website (http://www.prelief.com)
for complete details. Prelief
is from the same developers that brought you Lactaid® and Beano® . Lactaid is a registered
trademark of McNeil Consumer Products Co.
Information is power. Whenever possible,
talk with other patients about their forbidden foods. The best approach
is to TAKE ACTION and keep a food diary. Either the list
above or the ICA-US's "Diet and IC" brochure is an excellent starting
point. Your starting list should include those foods which you suspect
inflame and irritate your bladder. Then, as you eat suspect food, keep
track of how you feel afterwards. Is your frequency and pain increased?
If it is, place it on your forbidden list and avoid it for a while. Another approach that IC patients
with determination take is to try an elimination diet. By avoiding
foods which you suspect are triggers for awhile, you can then re-introduce
suspected foods one at a time, and honestly assess whether it causes your
symptoms to worsen. If you feel fine, with no increase in symptoms, you
may be able to return this food to your diet in moderate quantities. If
it causes pain, definitely avoid it!
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The Best Guide to Allergy, Consumers Union Edition (by A. Giannin,
N.D. Schultz, T.T. Chang & D.C. Wong) has an outstanding and comprehensive
listing of food allergies, food groups & a variety of elimination diets.
Read more about Elimination Diets By Clicking Here! Created: June 1999 - Jill Osborne
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