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Understanding Diet and IC

"For almost six months, I drank a quart of cranberry juice every two days, thinking that cranberry would eventually heal my IC. Why? Because everyone said it would help. I had no idea that cranberry juice was an IC trigger. They were wrong. It hurt and made my IC much worse!" - J. Osborne

Patients' reactions to food: we're all alike, but different

Though a few people with IC have bladders that are not sensitive to food, for the overwhelming majority of us, what we consume plays a significant role in how severe our symptoms are. While it's true that some common trigger foods, such as coffee or cranberry juice, provoke IC symptoms for nearly everyone, it's also true that each of us has a different tolerance level for many of the trigger foods. For instance, some IC patients may comfortably eat a small quantity of a specific food, yet if they eat more, they will have an IC flare. Others, to their great frustration, may not be able to tolerate even a single bite of that same trigger food without suffering increased symptoms. Still others may be able to consume all they want of that food with no trouble at all. This variation in our response is why no one can create a list of foods to avoid that will apply uniformly to absolutely everyone with IC.

IC patients usually spend their first six months to a year discovering the ways in which their IC food triggers are similar to others', and the ways in which their bladder reacts differently. They do this either through random trial and error, or via a systematic approach with an elimination diet. We've outlined here the most common IC triggers as well as a variety of elimination diet approaches and some IC friendly foods.

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How some foods make IC symptoms worse

While it hasn't been scientifically established exactly why the foods on the IC diet list cause flares, urologists and IC researchers have proposed some credible explanations based on what we currently know about the foods and about IC.

If you recall the physiology of IC then you understand that IC involves mast cells in the bladder. These mast cells are not unlike the mast cells that line our sinuses and give us hay fever symptoms. Many of the foods on our IC Diet list are quite high in histamine, an irritating substance that can provoke mast cells.

Another problem IC patients may have is increased nerve senstivity in the bladder. Some of the items on the diet list actually stimulate and sensitize nerves, and that's not something we want to do to an already oversensitive bladder.

Dr. Lowell Parsons, a reknown IC researcher at the University of San Diego, has noticed that several foods on the list contain large amounts of potassium. Because some patients' bladders are known to react when potassium salts are instilled in the bladder, Dr. Parsons has suggested that for those patients, part of the problem may be the foods' potassium.

Many people have noticed that some foods on the IC diet list, particularly fruits and tomatoes, contain a substantial amount of acid. Food acids and their potential effect on IC symptoms have been the focus of much discussion over the years. While we don't have any concrete answers yet to questions of why these foods bother IC patients, IC researchers do know that certain explantions for the acid food effect are not credible.

Sometimes referred to "pseudo-science", the myths explaining the acid food effect may sound plausible, but are not founded on known medical facts or unbiased scientific evidence. Typically these myths are touted by someone trying to sell IC patients something.

The pseudo-scientific food myth IC patients run into most often on the internet is the one that claims that IC urine (or the IC body in general) is too acidic and if it was alkaline, the patient wouldn't suffer. Acid foods, it says, bother the bladder because they make the body chemistry, and thus the urine, more acid. In truth, the effect of well-known urinary alkalinizers such as PolyCitra is not universal among IC patients. Some patients say it makes their IC better, others tell their doctors it actually makes their IC worse. What's more, some acid foods make the urine acid while others actually turn it alkaline. Drink a lot of cranberry juice and your urine will reliably turn acid, and if you're an IC patient, your IC will flare up. Do the same with orange juice and your urine will become alkaline. But even though your urine is alkaline, you'll probably have quite an IC flare-up! Why does one acidic food turn the urine acid and the other turn it alkaline? Because each substance is utilized by the body differently.

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The IC Diet: A list of problem foods

There are a variety of lists floating around the IC community which document some of the diverse IC food irritants. Many lists are similar, yet not identical. Whether or not a particular food is listed is sometimes a matter of the beliefs, priorities, or personal experience of the author(s).

The problem foods we've listed below are the most common ones that thousands of IC patients have reported trouble with. Your goal is to determine IF these foods irritate you, perhaps by using an elimination diet! If you are like most, you'll probably be able to eat a few of the foods listed as "problematic". You also might have to avoid a few others listed as "okay". Remember, this list is only a rough guide. Be prepared to be creative with your meals and in your kitchen!

Please note: About 15% of women with IC also have vulvar pain (vulvodynia). Some of the foods in the "May Be Okay" column have high levels of oxalates, which women with vulvodynia react to. Those who don't have vulvodynia typically don't react to the oxalates, so they may have a much easier time getting away with foods in the "May Be Okay" column.

USUALLY OK MAY BE OK USUALLY PROBLEMATIC
Beverages
chamomile herb tea
Evian® water
pear juice
pure Blueberry Juice

milk
peppermint herb tea
alfalfa tea
bottled water
herbal coffees
lowacid decaf coffee

low acid baby juices
gin
rice milk
root beer w/ ice
rum
tap water
vodka
beer
carbonatedH20
chocolate milk
citrus juices
cranberry juice
herb tea blends
green teas
most fruit juices
regular coffee
sodas
soy milk
tea
wines
Grain
Products
buckwheat
corn bread
couscous
matzo
millet
oat bread
oatmeal
pasta
pitas
potato bread
quinoa
rice
spelt
white bread
amaranth
grits
rye bread
sourdoughbread
some graham
crackers w/o problem
ingredients
whole wheat bread
bread or cereal w/
preservatives
soy flour
Fats
and Nuts
butter
canola oil
coconut w/o preservatives
coconut oil
corn oil
margarine
olive oil
peanut oil
safflower oil
sesame oil
shortening
soy oil
almonds
almond butter
cashews
tahini
sunflower
seeds
filberts
hazelnuts
macadamia nuts
mayonnaise
most salad
dressings
peanuts
pecans
pistachio nuts
English and
black walnuts
Soups
homemade soups
from ok meats
and vegetables
Health Valley® chicken broth
Some canned soups w/o
problem ingredients

bouillion cubes
bouillion powder
most packaged
and canned soups
Meat, Fish
and Poultry
beef
chicken
eggs
fish
lamb
liver (beef or chicken)
pork
shellfish
shrimp
turkey
veal
anchovies
bacon
Canadian bacon
caviar
corned beef
liverwurst
prosciutto
some sausages
w/o problem
ingredients
bologna
ham
hot dogs
most sausage
pepperoni
salami
smoked fish
Cheeses and
Other Dairy
cream cheese
cottage cheese
feta
mozzarella
ricotta
string cheeses
whipped cream
vanilla ice cream
buttermilk
canned Parmesan
Cool Whip®
Monterey jack
some sherbets
some frozen yogurt
Rice Dream®
aged cheeses
blue cheese
brie
brick parmesan
camembert
cheddar
edam
emmenthaler
gruyer
hard jack
roquefort
sorbet
soy milk
soy cheese
sour cream
stilton
swiss
yogurt
Vegetables
and Dried
Beans
broccoli
brussels sprouts
cabbage
carrots
cauliflower
chives
collard greens
corn
cucumber
kale
lentils
lettuce
mustard greens
mushrooms
most dried beans
okra
parsley
peas
potatoes
pumpkin
radishes
snow peas
split peas
summer squash
turnips
winter squash
yams
zucchini
avocado
beets
chicory
cooked bulb
onions
cooked leeks
dandelion greens
eggplant
low acid tomatoes
purslane
raw green onions
rhubarb
rutabagas
swiss chard
spinach
turnip greens
watercress
chili peppers
black beans
fava beans
lima beans
pickles
raw bullb onions
sauerkraut
soy beans
(edamame)
tomato
tomato sauces
tomato juice
tofu
Fruits
dates w/o
preservatives
coconut w/o
preservatives
pears
- pear pear bars
- pear bluberry bars

bananas
blueberries
brown raisins
cherimoya
citrus peels
crenshaw melon
dried currants
Gala apples
honeydew
mango (small amt)
maraschino
cherries
rhubarb
watermelon
- cinnamon pear jelly
- cinnamon pear maple syrup

- blueberry preserves
apricots
all citrus fruit
cantaloupe
cherries
dried fruit w/
preservatives
peaches
most plums
most dried figs
golden raisins
grapes
guava
kiwi fruit
most berries
passion fruit
papaya
persimmon
pineapple
starfruit
Desserts
and
Sweets
brown sugar
carob
carrot muffins or cake
creme brulee
custards
divinity
homemade pound cake
homemade white/yellow cakes
homemade vanilla frosting
homemade caramel frosting
honey
licorice
maple syrup
pear pastries
sugar
sugar cookies
tapioca
vanilla ice cream
vanilla pudding
Dr. Oetkers Vanilla Cake Mix
Dr. Oetkers Vanilla Frosting Mix
Dr. Oetkers Corn Muffins
Dr. Oetkers Carrot Muffins
Dr. Oetkers Apple Muffins
Dr. Oetkers Bisquit Mix
Dr. Oetkers Vanilla Pudding

banana bread
blueberry pastries
caramel candies
peppermint ice cream
plain pastries w/ almonds
plain cheescakes
some frozen
yogurt
some hard
candies w/o acids
some popsicles
Splenda® (sucralose)
stevia
white chocolate
acesulfame K
aspartame
catsup
chocolate
coffee ice cream
desserts w/ problem nuts
mustard
pastries w/ problem fruits
pecan pie
sorbets
store-bought
fruitcakes
mincemeat pie
Nutrasweet®
saccharine
Seasonings
and
Additives
allspice
almond extract
anise
basil
caraway seed
coriander
dill
fennel
garlic
mace
marjoram
oregano
poppy seed
rosemary
sage
salt
thyme
tarragon
vanilla extract
black pepper
celery seed
cilantro
cinnamon
cumin (small amt)
dried parsley
dried chervil
ginger
lemon extract
malt powder
nutmeg
onion powder
orange extract
turmeric
ascorbic acid
autolyzed yeast
BHA and BHT
benzoates
caffeine
cayenne
cloves
chili powder
citric acid
hot curry powder
hydrolyzed
protein
meat tenderizers
miso
oleoresin paprika
paprika
red pepper
soy sauce
tamari
vinegar
worcestershire sauce
MSG (monosodium
glutamate)
metabisulfites
sulfites

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Our five worst foods

These foods win our vote as the biggest misery makers for people with IC! These are the foods we hear about from IC patients all the time. Of course just because they cause trouble for so many others, that doesn't guarantee they'll make you miserable too. But if you do eat these, watch out! Be sure to pay close attention to how you feel afterwards. If you feel worse, then there is a good chance that this is a trigger food for you. Information is power. Whenever possible, talk with other patients and compare your trigger foods. They may help you discover some hidden triggers in your own diet.

#1: Coffees and Teas
Yes, we know that "lattes" are all the rage these days. Coffee is, regrettably, our number one bladder irritant. In a sensitive bladder, the acid, caffeine and tannins in coffees have little competition for causing intense irritation and discomfort. In our experience, the patients who seem to struggle the most with symptoms are those who still have that one cup of coffee (or tea) in the morning.

Is decaf coffee safe?? For most patients in flares, it isn't. A decaffeinated coffee is still very high in acid and can provoke symptoms. There are a number of herbal coffees, such as Cafix or Pero, that patients have reported to enjoy. There are also low acid coffees, such as Euromild & Puroast, that may be more tolerable. If you're struggling with IC symptoms and/or a flare, the safest hot drink is hot water and honey!

Teas can be surprisingly irritating to the bladder. A regular tea, such as Earl Grey, is usually out of the question. Remember, just as with coffees, decaf regular teas can still provoke symptoms. Herbal teas, particularly herbal blends, are also notorious for triggering symptoms due to the acidity added from other herbs, such as rosehips. Despite the hype, green tea is so acidic that it can create agonizing pain for some. If you're a tea lover, we suggest that you try a plain organic or mint tea!

You can find a wide variety of low acid, IC Friendly coffees, herbal coffees & teas in the ICN Shop!

#2: Cranberry & Other Fruit Juices
Otherwise known as the ACID BOMB when it hits, cranberry juice may be the biggest bladder irritant in an IC patient's diet. It's often recommended for consumption during urinary tract infections because it is believed to have substances in it that help keep bacteria from sticking to the bladder wall. (If they can't stick, they can't infect. They just get flushed out). But cranberry juice can VERY be difficult for an IC bladder to tolerate. Citrus juices such as orange juice, grapefruit juice, lemonade, will also be very irritating to the bladder. If you're desperate for a juice, we recommend trying a Baby Pear or Apple Juice. Baby juices do not use as much citric acid and seem to be much more bladder friendly!

#3: Carbonated beverages
If we had $1 for everytime a patient reported that they had a flare from drinking a diet cola, we'd be rich today! Whether it be plain carbonated Perrier water or flavored sodas, IC patients often complain about their irritating effects on the bladder. The biggest problem appears to be the acid, though most flavored sodas also have big doses of caffeine.

The most difficult carbonated beverage for an IC bladder to tolerate appears to be diet cola. Diet colas are a quadruple whammy of acidic carbonation, citric and other acids, caffeine, and artificial sweeteners-- four well-known bladder irritants. Taken all at once it can be an IC bladder's nightmare! If you must have a soda, try a non-diet, usually non-caffeinated, root beer-- and load the cup with plenty of ice to dilute it!

#4: Tomato Products
They're found in so many foods these days, tomatoes and tomato products are darn hard to avoid. Though we think of them as mild mannered vegetables, those tempting red globes are really a very acidic fruit. A few IC patients can tolerate tomato sauces on pizzas and pasta, but most cannot. Low acid tomatoes may be good substitutes for some people. The book A Taste of the Good Life: A Cookbook for an Interstitial Cystitis Diet, has a lengthy list of lower-acid tomato varieties you can grow at home!

#5: Multivitamins
Multivitamins are notoriously irritating to the IC bladder due to both the Vitamin C (Ascorbic Acid) and Vitamin B6. Unless you require multivitamins for another medical condition, we suggest that stop any multivitamins to determine if they are irritating your bladder.

#6: Tobacco
Ok, we admit it, we cheated to get this one on the list... tobacco isn't really a food. But it does have some significant effects on an IC bladder. For one, it acts to constrict the bladder's blood vessels, interfering with the body's natural way of washing out inflammatory substances from the bladder tissues. Veteran IC patients prefer less pain rather than more. Is that cigarette worth a night and day of pain?

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The two hardest foods to give up

As a support group leader, every once in a while I encounter an IC patient who, despite their horrible, continuous pain, insists on drinking coffee and/or eating chocolate bars. Coffee and chocolate are among the most common comfort foods. We depend on these to wake up, soothe our bad mood, or just give us a cheerful lift. In addition to caffeine, these both have a load of substances any one of which can potentially affect an IC bladder.

For me, as an IC patient, it was a choice between pain and frequency or coffee. I chose not to be in pain. But, still, some coffee addicts insist that they can drink coffee and not experience discomfort.I say, PROVE IT!

The only way to know if coffee, chocolate, (or any other comfort food) bothers your bladder is to do your own research! How? Complete a voiding diary for a few days, WITH COFFEE AND CHOCOLATE, in your diet. Then, keep the same diary and avoid drinking and/or eating either for a week!

If your voiding diary shows that you urinate less and/or are in less pain when you're not consuming them, then they are clearly irritating you! Do you need any more evidence than that?

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Understanding Prelief

IC patients have long known that foods heavy in acid can induce bladder irritation and a classic "IC flare." Prelief is a dietary supplement that reduces the acid in foods by neutralizing it. It is not a drug. The active ingredient of Prelief is calcium glycerophosphate which, according to the company, has long been considered a safe food additive. The use of Prelief with acidic foods allows persons highly sensitive to food acid to enjoy normal comfortable eating of a regular diet.

Prelief has been demonstrated to be of value in the diets of Interstitial Cystitis (IC) patients in a retrospective study of over 200 patients who consumed acidic foods and beverages with and without Prelief (R.A. Bologna, A. Gomelsky, J.C. Lukban, L.M. Tu, A.S. Holzberg, and K.E. Whitmore, 1998-99, data on file).

  • 70% of IC patients reported a reduction in pain and discomfort with the use of Prelief when consuming acidic foods.
  • 61% of IC patients reported a reduction in urinary urgency after using Prelief.

We are delighted to see this independent confirmation of Prelief’s value in reducing the effect of food acid for those individuals who are acid sensitive. Please visit the Prelief website (http://www.prelief.com) for complete details. Prelief is from the same developers that brought you Lactaid® and Beano® .

Lactaid is a registered trademark of McNeil Consumer Products Co.
Beano is a registered trademark of Block Drug Company, Inc.

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Taking a pro-active role in your diet

As a support group leader, I sometimes talk to patients who won't take the time to explore the connection between pain and diet. I don't understand why. If I am eating something which is flaring my bladder, my pain requires that I stop. It's an easy choice... and, yes, even chocolate isn't worth it. If you want to TAKE CHARGE of your IC flares, your first step may be exploring the world of dietary triggers and IC.

Information is power. Whenever possible, talk with other patients about their forbidden foods. The best approach is to TAKE ACTION and keep a food diary. Either the list above or the ICA-US's "Diet and IC" brochure is an excellent starting point. Your starting list should include those foods which you suspect inflame and irritate your bladder. Then, as you eat suspect food, keep track of how you feel afterwards. Is your frequency and pain increased? If it is, place it on your forbidden list and avoid it for a while.

Another approach that IC patients with determination take is to try an elimination diet. By avoiding foods which you suspect are triggers for awhile, you can then re-introduce suspected foods one at a time, and honestly assess whether it causes your symptoms to worsen. If you feel fine, with no increase in symptoms, you may be able to return this food to your diet in moderate quantities. If it causes pain, definitely avoid it!

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Suggested Reading

A Taste of the Good Life: A Cookbook for an IC Diet by Beverly Laumann.
Currently available in the ICN Shop!

The Best Guide to Allergy, Consumers Union Edition (by A. Giannin, N.D. Schultz, T.T. Chang & D.C. Wong) has an outstanding and comprehensive listing of food allergies, food groups & a variety of elimination diets.

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Read more about Elimination Diets By Clicking Here!

Created: June 1999 - Jill Osborne
Content Rev: Dec. 12/16/03 - B. Laumann
Content Rev: 07/18/06 - J. Osborne


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