|
Our Sponsors:
Cystoprotek
Prelief
CystaQ
BladderQ
Lo Fric Catheters
NEW! Fall 2009 Now Available By Mail or Email
Winter 2010 Catalog Download A Copy
Heal Pelvic Pain
Klean Kanteen Stainless Steel Water Bottles
Please support this forum by making purchases in our shop!
ICN Subscriptions
ICN Contributions
Alternative Supplements
Books about IC
IC Diet Resources
Cystoprotek
CystaQ
Prelief
IC Friendly Beverages
Low Acid Coffees
Herbal Teas
Dry Mouth Products
IC Friendly Foods
Dr. Oetkers Mixes
Fiber & Laxatives
Pilates For Pelvic Pain
Feminine Hygiene
Chair Cushions
IBS Products
Men's Resources
Pelvic Pain Resources
Romance& Sex
Urine Test Kits
Very Private
Basis Soap
Water Bottles
Google ads help us generate revenue to keep this support site running. We strongly encourage you to be cautious consumers. The ICN does not endorse the products or services listed in these ads.
|
 |
08-04-2004, 05:51 AM
|
#1
|
|
IC Friend
Join Date: Dec 2003
Location: California
Posts: 62
|
Elavil - what's your dose?
Hi-
Just wondering how many mg. all of you are on for pain. I take 10mg and think that I may need more.
Thanks.
|
|
|
|
08-04-2004, 06:04 AM
|
#2
|
|
ICN Member
Join Date: Apr 2004
Location: phx, az
Posts: 248
|
Before I got pregnant I was on 25mg at bedtime... now that I am off it I can REALLY tell just how much it helped me!!!! Hope it can do the same for you...
__________________
ALEXIS,
 loving wife, and loving mommy to TJ and my newest one Conner born on 2-14-05!!!
Dx-
IC 1997, PPD 1997, Fibromyalgia 1997, IBD 2000, Cystic Ovaries 2006, scoleosis and DDD
Meds-
Elmiron 200mg TID, MS Contin 1 TID, Norco as needed, baclofen and Cymbolta 60 mg at HS
Alt therapies-
Baking soda to alkaline, tums, green tea, valerian root
The problem with doing nothing is not knowing when your finished
|
|
|
|
|
08-04-2004, 06:24 AM
|
#3
|
|
Angel watching over us
Join Date: Mar 2004
Location: Viera, Florida
Posts: 4,391
|
My dosage was 50 mg at night until I was put on Trazadone a few months ago. Worked well for me also. 10 mg is a relatively low dosage, that where most docs start to gauge effectiveness or the presence of any untoward side effects.
Hugs,
Barb
__________________
(Babs passed away in April 2009. We honor her memory and remember her fondly. - Jill O. ICN President & Founder)
[SIZE="1"]Proud mama of a gift named Lindsey who taught me through her autism what is important in life:angel:
:angel: IC Angel Volunteer Coordinator :angel:
:) Contact me via PM or e-mail if you would like to help
I have learned all about life in 3 words: It goes on! :D--Robert Frost
PCOS 7/85
RSD 7/94 :headbang:
Endometriosis 9/98 :toilet:
Antiphospholipid antibody syndrome 9/99
Kidney stones--too many to count
Factor V Leiden mutation 10/02
IC 6/03 :evilsmile
Deep Venous Thrombosis and Cellulitis 12/05 :loco: DVT and Greenfield Placed 3/14/08
"Spirit is an invisible force made visible in all of life"--Maya Angelou
"Ohana means family--no one gets left behind or forgotten." Stitch[/SIZE][/SIZE][/SIZE]
|
|
|
|
|
08-04-2004, 06:26 AM
|
#4
|
|
Registered User
Join Date: Dec 2003
Location: Michigan
Posts: 133
|
I take Elavil for IC and VV. I started out at 10mg, which helped with the pain, but there was still some pain left. I then went up to 20mg and have been doing good except for some pain during and after sex. They just upped me to 25mg and said to go to 30mg if there's still pain. They said that once you get to a level with no pain, you stay at that dosage for 6 monthes before you start to try lowering it again.
|
|
|
|
|
08-04-2004, 06:31 AM
|
#5
|
|
IC Friend
Join Date: Dec 2003
Location: California
Posts: 62
|
ChrissyH-
I've heard the same thing - at least 6 months before tappering down.
|
|
|
|
|
08-04-2004, 07:08 AM
|
#6
|
|
Support Volunteer
Join Date: Dec 2003
Location: California
Posts: 6,011
|
I started out at 10mg in Sept, went up to 20mg in April, will be talking to my doctor about going up to 25 or 30mg. Food cravings started at 20mg, so will have to be careful about this, so I don't balloon...
__________________
Kadi
-------------------------------------------------------------
I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
------------------------------------------------------
This week's favorite one-liner:
"I love deadlines. I especially like the whooshing sound they make as they go flying by...
New second favorite:
"And which dwarf are you?."
Adding a third because I'm just so darn easily amused...
"Eagles may soar, but weasels aren't sucked into jet engines."
Current treatments:
-IC diet
-Elavil 20mg at night
-Ditropan 5mg at night
-Continuous use birth control pills (4-5 periods/year)
-Heparin/Marcaine/Sodium Bicarb home instills every night & sometimes in the morning also
-Pyridium if needed, usually once a week or so
-1 Darvocet at bedtime,
-Flexeril 10mg at bedtime
-Dye Free Benadryl for allergies occasionally
-Pelvic floor & myofascial release (external only) physical therapy for 8 weeks, then home exercise program...
-Managing stress
-Fur therapy: Hugging the cat! 
|
|
|
|
|
08-04-2004, 08:20 AM
|
#7
|
|
IC Friend
Join Date: Mar 2003
Location: Atlanta
Posts: 1,427
|
I'm taking 25 mg and it works great for me. I usually sleep better because it helps me get through the night without having to get up to urinate. I haven't had an issue with food cravings. Sometimes it makes me a little groggy in the morning but it's better than having pain!
__________________
 Namaste
"You must be the change you want to see in the world." - Mahatma Gandhi
"The most important medicine is tender love and care" - Mother Teresa
Proud mother of Ahleia, born on April 9, 2007
-----------------------
Diagnosed with:
IC, OAB, Congenital urethral stricture, IBS, Vulvar vestibulitis, Heart murmur, Congenital cervical stenosis...but otherwise doing great! 
Meds:
Currently in remission, but took the following for 3 years: Elmiron 200 mg., Elavil 25 mg., Detrol LA 4mg, Ovcon-35
Health treatments/practices:
Kripalu yoga, Chiropractic, Massage therapy and Reiki
|
|
|
|
|
08-04-2004, 08:58 AM
|
#8
|
|
Registered User
Join Date: May 2004
Location: San Antonio
Posts: 454
|
I just started 25mg at night and have noticed a huge difference. I started out with only half that amount and it didn't really do anything for me.
Good luck.
__________________
Jen
Life is a collaboration and in a collaboration, you have to be willing to admit that you may be wrong. Validation is the thread that holds the key to understanding.
|
|
|
|
|
08-04-2004, 09:27 AM
|
#9
|
|
Registered User
Join Date: Jan 2004
Location: PARK RIDGE, NEW JERSEY
Posts: 259
|
I take anywhere from 20 to 40mgs depending on my pain level. It really is the one thing I can say helps me!!!!!!!!!
Jamie
|
|
|
|
|
08-04-2004, 10:18 AM
|
#10
|
|
ICN Member
Join Date: May 2001
Location: Eastern USA
Posts: 5,461
|
25 mg at bedtime.
__________________
Kim
Diagnosed August 2001
Current IC meds: Elmiron (since 2001), Levaquin (one pill after intercourse to prevent UTIs), Lexapro (since 2003 for depression & anxiety, but also helps my IC)
Past IC meds: Amitriptyline (Elavil), Hydroxyzine (Vistaril), Detrol LA (They all helped, but I was able to discontinue them.)
My IC story: http://www.ic-network.com/patientstories/kim.html It's very outdated now. I've been virtually symptom free and able to eat & drink whatever I'd like for several years now.
*****************************
“We who lived in concentration camps can remember the men who walked through the huts comforting others, giving away their last piece of bread. They may have been few in number, but they offer sufficient proof that everything can be taken from a man but one thing: the last of the human freedoms -- to choose one's attitude in any given set of circumstances, to choose one's own way.” ~ Viktor Frankl
“You cannot control what happens to you, but you can control your attitude toward what happens to you, and in that, you will be mastering change rather than allowing it to master you.” ~ Brian Tracy
|
|
|
|
|
08-04-2004, 11:24 AM
|
#11
|
|
Registered User
Join Date: May 2004
Location: NORTH CAROLINA
Posts: 61
|
25 mg @ bedtime also. Uro started me on the 25 mg in April. Didn't start out at a lower dosage then work up like some. I guess all docs are different, as are the patients! I think it's best to follow whatever dosage the doctor starts you at and see if it helps!! I still have not adjusted to the side of effects of the Elavil (added to the other meds that I take). I sometimes have to skip the Elavil @ night (if I know I have an appt early the next day) and will replace it with Ultracet. I don't like pain, nor do I like the feeling of being a zombie. Still trying to figure out how to control pain and live somewhat a normal life!
|
|
|
|
|
08-04-2004, 11:36 AM
|
#12
|
|
ICN Staff
Join Date: Jan 2002
Location: Memphis, TN
Posts: 10,489
|
25mg at bedtime for me, also. I was taking 50mg but have been able to reduce the doseage. If I try to go any lower, flares return. Needless to say, I think I will stay with the 25mg. 
__________________
Sharon
Shopping??? Did someone mention shopping? I'll get my hat... ;-)
Where I can be found most days.
If not there, then here
Link to the ICN Patient Handbook:
http://www.ic-network.com/handbook/
Link to the IC Diet:
http://www.ic-network.com/diet/
IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
|
|
|
|
|
08-05-2004, 06:19 AM
|
#13
|
|
Registered User
Join Date: Jul 2004
Location: Rochester, NY
Posts: 21
|
I was all the way up to 150 mg at one pt and my gyn said he will use dosages up to 200 mg if needed (!) I do know you have to taper up weekly (I usually add 25mgs a week)- definitely talk to your doc!
__________________
Chinacat :butterfly "I can be changed by what happens to me. But I refuse to be reduced by it" Maya
|
|
|
|
|
08-28-2004, 04:39 PM
|
#14
|
|
Registered User
Join Date: Aug 2004
Location: Southwest Georgia
Posts: 291
|
My Dr. Started me out on 50 mg at bedtime on August 16. I feel like a zombie in the mornings but after a little while I'm usually ok. He started me out on that mg because I was only sleeping about 2 hours a night...every night. I was an emotional wreck. I hurt constantly and was about to the point of wanting to end it all.
So far I have noticed a very slight easeing of pain in my bladder. I don't know if it's the Elavil or the Elmiron. Today I haven't taken a pain pill at all  it has been to a tolerable level today. All I want to do is sleep though.
__________________
My Furbabies
 
IC Diagnogsed 8/16/2004
Fibro Diagnosed 07/25/2005
Prolapse Vagina 10/16/05 With upcoming surgery to correct. 12/16/05 Just a couple of days away now.
Gee isn't life fun??????
|
|
|
|
|
09-02-2004, 01:08 PM
|
#15
|
|
Registered User
Join Date: Aug 2004
Location: Knoxville, Tennessee
Posts: 25
|
blondiecat-
Just read you emotions -----ZOMBIE----- Now for 2 weeks just ELMIRON100mg 3/day! I thought taking some caffeine---keep me awake---but it just burned my insides painfull. For depression---Lexapro 20mg. I'm so tired ----ZOMBIE---so I did split the Lexapro in half 10mg--morning / 10mg night.
What a job!!!! Large list of meds from my Liver Transplant, endometriosis, high blood pressure...WHAT NEXT?!!! Did your Dr. recomend foods etc. not harmfull to eat?
Hope to keep in TOUCH!
Kim
__________________
KimberlyKimberly   Prelief----isn't giving me relief at all . My Urologist even said that it isn't sure for healing. He did take me off Elmiron. ALSO---and mayjo change of foods & what can drink!
|
|
|
|
|
Currently Active Users Viewing This Thread: 1 (0 members and 1 guests)
|
|
|
| Thread Tools |
|
|
| Rate This Thread |
|
|
Posting Rules
|
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts
HTML code is Off
|
|
|
All times are GMT -11. The time now is 09:22 PM.
|
