Std - Interstitial Cystitis Network Support Forum

kate118 · 06-29-2004, 06:37 PM

I have not been diagnosed with IC but it is strongly suspected. I am like the majority of you having been put thru the ringer by numerous doctors. Been to the Emergency room etc...

I have not been to work for two weeks now and applied for STD.
My primary care physician says that he will only sign for disability that I have a limitation of the need to urinate frequently!

I am currently on Zoloft, Elmiron, Urelief, Ditrol, & Darvaset for pain.

I refuse to work in pain. (I will probably be living in the ditch soon). I see the IC specialist next Wednesday...I am hoping that he will sign the STD paperwork for me, unfortunately it will be two days after the deadline.

I can't believe that I have worked for so many years, incur a chronic medical condition and can get tossed out into the ditch!

Is anyone else on STD or LTD? Is this uncommon?

Any thoughts?

lotsofgirls · 06-29-2004, 06:44 PM

Hi Kate,
Hang in there, I hope your claim goes through, you certainly deserve the benefits.
Cath

***ICNDonna*** · 06-29-2004, 06:46 PM

Have you seen a urologist and had any diagnostic tests? If not, I really think you need to go that route.

I suggest you read the information in the Patient Handbook at http://www.ic-network.com/handbook/ You'll find some excellent self help tips there, including the IC diet, which is a real help to most of us.

Hopefully, once you are diagnosed and begin treatment, you will feel better.

Sending healing thoughts,
Donna

kate118 · 06-29-2004, 06:51 PM

I have seen a regular urologist. I had no reaction to the potassium test, he told me that if I had IC there would have been a reaction?? He is referring me to the specialist.

kate118 · 06-29-2004, 06:53 PM

My gyno says that my urologist is wrong and doesn't know what he what he is doing. He believes it is IC.

blue · 06-29-2004, 11:00 PM

Hopefully, the specialist will do a cysto/hydro. I can't see how you can win a claim without more tests done.

Marlana · 06-30-2004, 02:58 AM

I could be wrong, but most ICers do react to the potassium test. I also think as of now, the most accurate test is the cysto/hyrdo which is about 90% accurate[correct me if I am wrong gals,}. I would think if you test neg for both, chances are you may not have IC but some other problem, which would probably be a blessing in disguise. I wish you luck in your diagnosis and you claims but I do believe you need more tests. This is a good group to listen to as you will see.

Marlana