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Go Back   Interstitial Cystitis Network Support Forum > Experimental or Controversial Treatments > Antibiotics For Interstitial Cystitis Are Controversial
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Old 12-25-2003, 03:58 AM   #1
Kimberly31
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Post Update On My Antibiotic Therapy

Hi Everyone,
Just wanted to tell you about my Dr's visit about maybe doing antibiotic therapy.
Just in case you didn't read my post previously I have been fighting bladder infections on about a 3 week to month basis. Not really sure where they are all of a sudden coming from now. After having a few of these I went back to my URO that is a IC researcher and he has started me on antibiotic therapy. We are starting out just by taking one Microbid either right before or after having sex with hubbie. He has given me enough of a prescription though to be able to be in charge of treating myself when I feel the infection coming. He said that this is a good first step to try to see if sex is a big factor being as though I have such a severe case of IC he thinks it is truly debilitating my bladder. That is then keeping the bladder from being able to fight off the bad bacteria. I havent yet started the therapy still waiting on mail order to send it to me but I will sure keep ya'll up to date on how this might be working for me or not.
I hope this might help some that are curious about different types of antibiotic therapy also. If there is anyone out there that has started the same kind of therapy please let me know if and or how it is working for you.
*hugs to all*
grouphug Kim
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Old 12-25-2003, 09:09 AM   #2
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I haven't done a regular antibiotic therapy, but may be asking my doc about using them preventively after sex. I get about 6 UTIs a year, maybe? He said that can be normal for females, unfortunately, but I am sick of getting them despite lots of preventive measures like washing before and after sex, etc. I think he'd be open to doing an antibiotic after sex type thing.
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Kim

Diagnosed August 2001

Current IC meds: Elmiron (since 2001), Levaquin (one pill after intercourse to prevent UTIs), Lexapro (since 2003 for depression & anxiety, but also helps my IC)


Past IC meds: Amitriptyline (Elavil), Hydroxyzine (Vistaril), Detrol LA (They all helped, but I was able to discontinue them.)

My IC story: http://www.ic-network.com/patientstories/kim.html It's very outdated now. I've been virtually symptom free and able to eat & drink whatever I'd like for several years now.

*****************************

“We who lived in concentration camps can remember the men who walked through the huts comforting others, giving away their last piece of bread. They may have been few in number, but they offer sufficient proof that everything can be taken from a man but one thing: the last of the human freedoms -- to choose one's attitude in any given set of circumstances, to choose one's own way.” ~ Viktor Frankl

“You cannot control what happens to you, but you can control your attitude toward what happens to you, and in that, you will be mastering change rather than allowing it to master you.” ~ Brian Tracy
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Old 12-25-2003, 03:17 PM   #3
havingsuccess
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I have had great success with my antibiotic therapy. I'm entering month 4 and will be sending another urine culture in in about 2 weeks. I feel 75% better than I did before. I never had this kind of relief with the other therapies. I saw alot of doctors and my current one recommended antibiotics and after sending my urine in to be cultured and reading the report I decided to try it and it has been great. Dr F is my hero along with my uro. I hope it works for you also. I truly believe so many could could be helped by this. Just remember to be patient and take all the yeast precautions. PM me anytime.

Success
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Old 12-26-2003, 01:24 AM   #4
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Just to clarify my post, I am not interested in long term antibiotic therapy, per se. Just the "take an antibiotic after sex" therapy.
__________________
Kim

Diagnosed August 2001

Current IC meds: Elmiron (since 2001), Levaquin (one pill after intercourse to prevent UTIs), Lexapro (since 2003 for depression & anxiety, but also helps my IC)


Past IC meds: Amitriptyline (Elavil), Hydroxyzine (Vistaril), Detrol LA (They all helped, but I was able to discontinue them.)

My IC story: http://www.ic-network.com/patientstories/kim.html It's very outdated now. I've been virtually symptom free and able to eat & drink whatever I'd like for several years now.

*****************************

“We who lived in concentration camps can remember the men who walked through the huts comforting others, giving away their last piece of bread. They may have been few in number, but they offer sufficient proof that everything can be taken from a man but one thing: the last of the human freedoms -- to choose one's attitude in any given set of circumstances, to choose one's own way.” ~ Viktor Frankl

“You cannot control what happens to you, but you can control your attitude toward what happens to you, and in that, you will be mastering change rather than allowing it to master you.” ~ Brian Tracy
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Old 12-26-2003, 02:31 AM   #5
ICNDonna
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Kim: We have an acquaintance who takes an antibiotic after sex --- it seems to work well for her. She still occasionally gets and infection, but not every time like she used to. She's been taking the antibiotic after sex for several years now.

Good luck --- I hope it works for you.

Donna
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I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

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Old 12-26-2003, 03:19 AM   #6
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Thanks, Donna. Do you know if yeast has been an issue for her? That is my biggest concern,. Although with my low sex drive it probably wouldn't be an issue. LOL lmao
__________________
Kim

Diagnosed August 2001

Current IC meds: Elmiron (since 2001), Levaquin (one pill after intercourse to prevent UTIs), Lexapro (since 2003 for depression & anxiety, but also helps my IC)


Past IC meds: Amitriptyline (Elavil), Hydroxyzine (Vistaril), Detrol LA (They all helped, but I was able to discontinue them.)

My IC story: http://www.ic-network.com/patientstories/kim.html It's very outdated now. I've been virtually symptom free and able to eat & drink whatever I'd like for several years now.

*****************************

“We who lived in concentration camps can remember the men who walked through the huts comforting others, giving away their last piece of bread. They may have been few in number, but they offer sufficient proof that everything can be taken from a man but one thing: the last of the human freedoms -- to choose one's attitude in any given set of circumstances, to choose one's own way.” ~ Viktor Frankl

“You cannot control what happens to you, but you can control your attitude toward what happens to you, and in that, you will be mastering change rather than allowing it to master you.” ~ Brian Tracy
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Old 12-26-2003, 06:19 AM   #7
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I am on antibotics propactively for my utis and to see if they will prevent them. I don't know about the sex part. Still a virgin here. I just hope and pray it works for me. I am glad to see that some people are having success with antibotics but not all do. I keep hoping. gentle hugs to everyone.
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Old 12-26-2003, 05:02 PM   #8
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This is just my opinion here and by no means do I want to tick anyone off but I have had such a great response I want to share it with others. I truly believe that alot of people here would benefit from antibiotic therapy, if your careful the risk is very minimal and the key to it is to be sure your taking the right antibiotic. I'm sure all of you researched this fully when you were first diagnosed. I don't mean to sound like a know it all, I'm all for doing what makes you feel the best, and that's what I hope for all of you....to feel your best. Good Luck!

Success
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Old 12-26-2003, 10:06 PM   #9
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Well I must have jinxed myself banghead
Christmas day I noticed the feelings of a UTI returning and it has only been about 3 weeks from my last one. I started the antibiotics the 2 for 3 days so we will see how this works for me. I will now be also starting the after sex treatment I really hope this will work.
toilet Kim
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Old 12-26-2003, 11:40 PM   #10
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Kimberly, I hope and pray that you will feel better soon. sending gentle hugs and healing thoughts your way. Please let us know how you are doing. grouphug grouphug angel angel hat
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Old 12-27-2003, 04:05 AM   #11
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Good Luck Kimberely, I'll keep you in my prayers.

Success grouphug
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Old 12-27-2003, 08:28 AM   #12
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Kim, she has never said anything about a yeast problem. She doesn't take the antibiotics full time, just one after sex --- so she isn't as likely to develop the antibiotic resistant infections.

Donna
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I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

Anyone who says something is foolproof hasn't met a determined fool
.....My Meggie.....
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Old 12-29-2003, 01:35 AM   #13
Kimberly31
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Well,,,,,,,,,,,,,this infection has been one of my worst I have been in bed mostly all weekend with fever. I started the antibiotics on Friday and it is monday and should be through with my 3 days as of right now. I dont have fever as of today but not really sure if the infection part is gone or not. I might now be feeling the flare up that infections put me in. Hoping that by (tuesday) tomorrow I will be back to normal.
Just a reminder in case anyone hasnt been following my posts. As of friday I had not started the antibiotic therapy this is very new for me. I am really hoping that it will now work for me since I might be starting off w/o infection now.
I will keep in touch I really hope and pray that this helps me taking one after sex or just maybe even one a week. My infections have been getting worse and closer and closer together and that really scares me.
Maybe we will finally have the right answers to help me I hope!
*hugs to you all* and hoping you are pain free today!
Kim grouphug
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Old 05-04-2004, 03:16 AM   #14
Joyaur
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uti

Have you voided after sex?
I always got UTI's after sex, but no more since I get up right after and void..
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Old 05-04-2004, 04:23 AM   #15
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I drank water before, took a shower, voided before, voided after, showered after, etc. and still get UTIs from time to time after sex.

I have started the antibiotic after sex "thang" and so far so good. We'll see if it keeps helping.
__________________
Kim

Diagnosed August 2001

Current IC meds: Elmiron (since 2001), Levaquin (one pill after intercourse to prevent UTIs), Lexapro (since 2003 for depression & anxiety, but also helps my IC)


Past IC meds: Amitriptyline (Elavil), Hydroxyzine (Vistaril), Detrol LA (They all helped, but I was able to discontinue them.)

My IC story: http://www.ic-network.com/patientstories/kim.html It's very outdated now. I've been virtually symptom free and able to eat & drink whatever I'd like for several years now.

*****************************

“We who lived in concentration camps can remember the men who walked through the huts comforting others, giving away their last piece of bread. They may have been few in number, but they offer sufficient proof that everything can be taken from a man but one thing: the last of the human freedoms -- to choose one's attitude in any given set of circumstances, to choose one's own way.” ~ Viktor Frankl

“You cannot control what happens to you, but you can control your attitude toward what happens to you, and in that, you will be mastering change rather than allowing it to master you.” ~ Brian Tracy
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