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Go Back   Interstitial Cystitis (ICN) Support Forum > Miscellaneous Treatments For Interstitial Cystitis > Alternative Therapies
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Old 02-07-2010, 10:51 AM   #1
Cassaundra
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Location: Iowa
Posts: 330
Ester C

So I have been sick and run down lately and constantly get sick. I was thinking about ordering some of the buffered Vitamin C for ICers off of the ICN but found the ESTER-C Low Acid verison at Walmart for under $8.00.

Does this help anyone or does it bother your bladders?
__________________
-Cassie

20 year old female. Diagnosed as of November 2008 with onset of symptoms.

I am currently diagnosed with IC, PFD, endometriosis, asthma, and vulvodynia/contact dermititis, IBS, and fibromyalgia.

I am only taking medication for my fibromyalgia as my IC seems to be calmed down/in remission:
Neurontin (in place of lyrica because I can't afford it- lol) 300 mg x3 a day
Relafin (anti-inflammatory) 500 mg x2 a ay
Flexeril (muscle relaxer) 5-10 mg as needed
Seasonal (for endometriosis)

Endometriosis:
Continuous birth control (Seasonal)
First laparoscopy showed moderate to severe endo

Have been on with great success:

-Amitryptiline, Hydroxyzine, cocktail instillations, pelvic floor therapy... These things have led my IC to be under control.
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Old 02-07-2010, 02:57 PM   #2
ICtampa
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I feel the same as you! That my body was lacking nutrients especially vitamin C and was looking for a boost. Ester-C was on sale at walgreens and I pretty much got two for one and decided to try it. I have to say I have had no problems with it and have been taking it every morning for about 3 weeks. I can't tell if it's really helping me but I do feel better knowing I'm getting some vitamin C. If it's not hurting me why not?

Good luck!
__________________
best, Kate

I am a generally happy 23 year old, newly diagnosed(Nov 2009), newly-wed living in Tampa.

I graduated from college in Boston in May. And since then have been trying to get my pain regime for this disease under control!

Medications currently taking:

Elmiron (2 in the morning 1 at night)
Benadryl (1 in the morning and 1 at night)
Vesicare (1 a day)
Prosed as needed

I am constantly looking for alternatives to these medications to heal my body! I am open to suggestions (thinking about aloe, cystoprotek, accupuncture, etc) until then I am keeping my fingers crossed that elmiron works for me!!!

I started PT last week....this consists of electro stimulation through my ankle of my prudential nerve.

oh yeah I also practice yoga every day I can and am wishing I could work out like I used to!

I am lucky to have an extremely supportive husband and family

Thank you all for your help and support! It means more than I could ever say in words

"Standing on a hill in my mountain of dreams, telling myself it's not as hard as it seems." -Led Zeppelin
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Old 02-07-2010, 03:10 PM   #3
Snowden1
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I would only try a SMALL amount of these. I tried every single buffered brand out there and ALWAYS had major pain.
__________________
Teresa

Quote:
We are not HUMAN BEINGS going through a temporary SPIRITUAL EXPERIENCE. We are SPIRITUAL BEINGS going through a temporary HUMAN EXPERIENCE....so that we may become more SPIRITUAL.
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Old 02-07-2010, 04:35 PM   #4
Cassaundra
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Well, seeing as how I made my bladder made by eating French Onion chip dip... I'll wait until my flare passes BUT I took it last night and it seemed okay. I just want my immune system to be better so I don't catch every little thing. Thanks Teresa & ICTampa.
__________________
-Cassie

20 year old female. Diagnosed as of November 2008 with onset of symptoms.

I am currently diagnosed with IC, PFD, endometriosis, asthma, and vulvodynia/contact dermititis, IBS, and fibromyalgia.

I am only taking medication for my fibromyalgia as my IC seems to be calmed down/in remission:
Neurontin (in place of lyrica because I can't afford it- lol) 300 mg x3 a day
Relafin (anti-inflammatory) 500 mg x2 a ay
Flexeril (muscle relaxer) 5-10 mg as needed
Seasonal (for endometriosis)

Endometriosis:
Continuous birth control (Seasonal)
First laparoscopy showed moderate to severe endo

Have been on with great success:

-Amitryptiline, Hydroxyzine, cocktail instillations, pelvic floor therapy... These things have led my IC to be under control.
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Old 02-10-2010, 11:11 AM   #5
carole
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I believe when it come to supplements that you are wasting your money if you don't buy a good brand because the source(where they get it from) and the absorption in your body is poor. It's always better to buy a good brand and it is also less likely to have added ingredients as fillers.
*I know Oil of Oregano is a real good immune system booster but I don't know if we can take it with IC.*
*When I'm sick I drink Echinacea Plus tea by Traditional Medicinals. I swear by it and it has never given me a problem*
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Daughter your faith has made you well,go in peace, and be healed of your disease.(Mark 5:34)
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Old 02-10-2010, 03:29 PM   #6
CherylSLP
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Location: about 20 miles outside Dallas, TX
Posts: 263
Even Ester C is an ouch for me. But not nearly as bad as regular C and so when I think its really necessary I tough it out a day or two.
__________________
Currently dealing with IC (diagnosed May 2001), Fibromyalgia (January 2000) and ADHD (1998 sometime) and vulvodynia (Jan. 08)

I work in the schools helping students with disabilities. I am a speech language pathologist working as an Assistive Technology Specialist. A very do-able job with IC.

Medications

Meds that I take:
Elmiron 2 x day ; Effexor XR 37.5 ; Ritalin;
Nasonex; Atarax 10 mg (night); Lidocaine 5%; monthly B-12 shots; Pyridium as needed

Meds I am trying
Urell

Supplements that help:

Condroitin Sulfate; Calcium Citrate; Magnesium Glycinate; Olive Leaf Extract; daily probiotic

Other treatments that help:
Physical Therapy for PFD; Massage for Fibro; Chiropractic for Fibro; IF Unit (like a tens unit) for pain
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