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12-14-2009, 03:37 AM
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#1
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ICN Member
Join Date: Aug 2009
Posts: 225
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It's My Birthday Today and Elavil is Making it a Good One!
Hello all,
Today is my birthday and thanks to elavil, I feel like it'll be a good one! When my symptoms started back in July I have had constant pain. Granted, it has been at various levels but there has not truly been a whole day without some sort of pain! When I first started taking it about 7 weeks ago, I immediately noticed a lowering of the level of pain but then this last week, I realized I was having whole days without any pelvic symptoms! I've now had three days in a row pain free and would have had more in a row but I attempted to have some Earl Grey tea last week( I actually felt sooo normal that I thought geez, maybe its gone, maybe its just PFD) and it sent me into a one day flare  . But, it was only one day! 
So,after not feeling like I could go anywhere on a trip let alone a day trip, I'm actually going to go up to our casino with my "sis-in-law", which I truly didn't think would have been possible 7 weeks ago! Its like a little bit of my life is coming back and my lord its wonderful.
Now, it's not perfect. I have a constant stuffed nose from it and though the higher amount(20 mgs), lets me sleep better, it makes me too dopey, so am back to 10 mgs. I still have all of my joint pain ( and right now its worse but I think thats the winter weather causing it to flare) but I can deal with that. So here's wishing all of you a great day and hope that you find some joy and relief!
Cynthia
__________________
Initially diagnosed with IC July 2009.
Officially diagnosed with IC/PFD February 2010.
Additional problems past and present:
Hypothyroid, joint pain(fibromyalgia or arthritis), heart problems(so far in remission with this),pre total hysterctomy:severe endometriosis, ovarian cysts, cervical dysplasia,had intestinal obstruction due to adhesions. Allergies to Tetracycline, Bentyl and Bromocriptine. Skin allergy to latex, tomatoes and hard cheese.
Things that help my IC:
IC diet
Keeping stress(good or bad) to a minimum
Percocet as needed
Ativan as needed(rarely anymore!)
Prelief
Amitriptyline 20 mgs nightly
Physical therapy for PFD
Things that didn't help or made it worse:
Heparin Instillations
Prosed
Atarax
Pyridium
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12-14-2009, 04:42 AM
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#2
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Support Leader
Join Date: Jun 2002
Location: Iowa
Posts: 3,455
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Happy Birthday and I do hope you have a great one! Go have fun!!
__________________
Jolene
"Life is what happens when you are making other plans" John Lennon
The IC Handbook: http://www.ic-network.com/handbook/
The IC Diet Cheat Sheet http://www.ic-network.com/diet/dietcheatsheet.html
Here is a link to my photo website. I make and sell crafts and will be adding more pictures, so keep checking back to see if anything is new. Contact me if interested in anything. http://s918.photobucket.com/home/joscrafts
Newbie Angel...I will be happy to answer any questions or just listen. Email me at joleneb300@iowatelecom.net
"IC Angel Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you."
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12-14-2009, 06:04 AM
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#3
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ICN Member
Join Date: Aug 2009
Posts: 225
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thanks Dyno!
I'm double nickels today, so maybe thats what I'll play!
Cynthia
__________________
Initially diagnosed with IC July 2009.
Officially diagnosed with IC/PFD February 2010.
Additional problems past and present:
Hypothyroid, joint pain(fibromyalgia or arthritis), heart problems(so far in remission with this),pre total hysterctomy:severe endometriosis, ovarian cysts, cervical dysplasia,had intestinal obstruction due to adhesions. Allergies to Tetracycline, Bentyl and Bromocriptine. Skin allergy to latex, tomatoes and hard cheese.
Things that help my IC:
IC diet
Keeping stress(good or bad) to a minimum
Percocet as needed
Ativan as needed(rarely anymore!)
Prelief
Amitriptyline 20 mgs nightly
Physical therapy for PFD
Things that didn't help or made it worse:
Heparin Instillations
Prosed
Atarax
Pyridium
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12-14-2009, 07:07 AM
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#4
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ICN Member
Join Date: Oct 2008
Location: Pennsylvania
Posts: 1,234
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 Have a great day!!
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12-14-2009, 07:32 AM
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#5
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ICN Member
Join Date: May 2001
Location: Eastern USA
Posts: 5,519
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How awesome! That's about the best birthday gift EVER.
__________________
Kim
Diagnosed August 2001
Current IC meds: Elmiron (since 2001), Levaquin (one pill after intercourse to prevent UTIs), Lexapro (since 2003 for depression & anxiety, but also helps my IC)
Past IC meds: Amitriptyline (Elavil), Hydroxyzine (Vistaril), Detrol LA (They all helped, but I was able to discontinue them.)
My IC story: http://www.ic-network.com/patientstories/kim.html It's very outdated now. I've been virtually symptom free and able to eat & drink whatever I'd like for several years now.
*****************************
“We who lived in concentration camps can remember the men who walked through the huts comforting others, giving away their last piece of bread. They may have been few in number, but they offer sufficient proof that everything can be taken from a man but one thing: the last of the human freedoms -- to choose one's attitude in any given set of circumstances, to choose one's own way.” ~ Viktor Frankl
“You cannot control what happens to you, but you can control your attitude toward what happens to you, and in that, you will be mastering change rather than allowing it to master you.” ~ Brian Tracy
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12-14-2009, 09:02 AM
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#6
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ICN Member
Join Date: Aug 2004
Location: Northern California
Posts: 497
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Happy Birthday Cynthia! I'm glad you're feeling pretty good these days!
Jill
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12-14-2009, 10:37 AM
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#7
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ICN Member
Join Date: Jul 2008
Posts: 1,086
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Happy Birthday and hope you win some money at the casino. It's so good to know that you are finding relief with Elavil...I have found relief with Imipramine.
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12-14-2009, 11:19 AM
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#8
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ICN Member
Join Date: Mar 2004
Location: N. Idaho
Posts: 3,836
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It's wonderful that you're feeling better! Do they have card tables at the casino you're going to? (That's my favorite casino draw!  ) I hope you win big, -or at least break even, and have a wonderful pain-free happy birthday!
Vicki
__________________
Last off the easel:
"Kootenai Crossing"
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12-14-2009, 09:32 PM
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#9
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ICN Member
Join Date: Oct 2009
Location: Sweden
Posts: 99
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__________________
******************************************
I am not an English native so I apologize for grammatical mistakes
******************************************
Right now I am on:
Atarax 20-30 mg per day
Vesicare 5-10 mg per day
Other stuff:
CystoProtek
DH Aloe Vera
Coral Calcium
Marshmallow root
Flax seed oil
Probiotics
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12-15-2009, 03:32 AM
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#10
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ICN Member
Join Date: Aug 2009
Posts: 225
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Thanks Everyone!
I have to say it was one of my best birthdays in a long time! My "sis-in-law" and I were laughing and joking the whole time(we played the one armed bandits), lost all of my money and then at the very end came back and one 2/3rds of it back! The drive home was gorgeous with a beautiful pink sunset and......she has a new car that had heated seats(Yeah I started to flare a little) and OMG those seats felt sooooo good! . My boyfriend cooked us a beautiful "chinese" IC safe meal(Iate a little sweet and sour sauce on the side with prelief) and then we had danish kringle for my cake. When I got home there was the most beautiful fragrant bouquet of stargazer lilies with a card on which he wrote:
"To my Love
My Strength
My Compassion
My Laughter
I love you in all ways
Always!"
I just lost it when I read that. It was such a perfect day and then I wake up to all of these great birthday wishes from you ladies, I truly feel blessed.
Thank you!
Cynthia
__________________
Initially diagnosed with IC July 2009.
Officially diagnosed with IC/PFD February 2010.
Additional problems past and present:
Hypothyroid, joint pain(fibromyalgia or arthritis), heart problems(so far in remission with this),pre total hysterctomy:severe endometriosis, ovarian cysts, cervical dysplasia,had intestinal obstruction due to adhesions. Allergies to Tetracycline, Bentyl and Bromocriptine. Skin allergy to latex, tomatoes and hard cheese.
Things that help my IC:
IC diet
Keeping stress(good or bad) to a minimum
Percocet as needed
Ativan as needed(rarely anymore!)
Prelief
Amitriptyline 20 mgs nightly
Physical therapy for PFD
Things that didn't help or made it worse:
Heparin Instillations
Prosed
Atarax
Pyridium
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12-15-2009, 05:28 AM
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#11
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ICN Member
Join Date: Mar 2008
Posts: 1,311
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Happy Bday glad to heAR SOMETHING HAS HELLPED YOU.
MG
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12-15-2009, 06:34 AM
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#12
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ICN Staff
Join Date: Jan 2002
Location: Memphis, TN
Posts: 10,782
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__________________
Sharon
Shopping??? Did someone mention shopping? I'll get my hat... ;-)
Where I can be found most days.
If not there, then here
Link to the ICN Patient Handbook:
http://www.ic-network.com/handbook/
Link to the IC Diet:
http://www.ic-network.com/diet/
IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
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12-15-2009, 06:43 AM
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#13
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ICN Member
Join Date: Jun 2009
Posts: 426
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I'm so glad for you and
__________________
-23.
-Started having symptoms in May 2009.
-Doing pretty well on diet alone.
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12-15-2009, 12:30 PM
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#14
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ICN Member
Join Date: Aug 2009
Posts: 225
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Thanks guys!
__________________
Initially diagnosed with IC July 2009.
Officially diagnosed with IC/PFD February 2010.
Additional problems past and present:
Hypothyroid, joint pain(fibromyalgia or arthritis), heart problems(so far in remission with this),pre total hysterctomy:severe endometriosis, ovarian cysts, cervical dysplasia,had intestinal obstruction due to adhesions. Allergies to Tetracycline, Bentyl and Bromocriptine. Skin allergy to latex, tomatoes and hard cheese.
Things that help my IC:
IC diet
Keeping stress(good or bad) to a minimum
Percocet as needed
Ativan as needed(rarely anymore!)
Prelief
Amitriptyline 20 mgs nightly
Physical therapy for PFD
Things that didn't help or made it worse:
Heparin Instillations
Prosed
Atarax
Pyridium
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