ICN Support Forum & Message Boards
Sign up for our free ICN E-Newsletters!
Email:
- Take a moment each day to say "I am proud of myself." YOU are working VERY hard to live your life with IC with dignity and respect. Have you rewarded yourself recently??
- YOUR WORDS have the power to inspire or discourage other patients. Whenever possible, write ENCOURAGING messages.
- Illnesses and injuries can create tremendous anxiety and uncertainty. If you are struggling with suicidal thoughts, please read this. You can also find great resources at: www.suicide.org

Share

Our Sponsors:
Prelief
CystaQ
BladderQ
JAVAcid.com
Lo Fric Catheters
Cystoprotek


NEW! Spring 2010 Now Available By Mail or Email



Please support this forum by making purchases in our shop!
ICN Subscriptions
ICN Contributions
Alternative Supplements
Books about IC
IC Diet Resources
Cystoprotek
CystaQ
Prelief
IC Friendly Beverages
Low Acid Coffees
Herbal Teas
Dry Mouth Products
IC Friendly Foods
Dr. Oetkers Mixes
Fiber & Laxatives
Pilates For Pelvic Pain
Feminine Hygiene
Chair Cushions
IBS Products
Men's Resources
Pelvic Pain Resources
Romance& Sex
Urine Test Kits
Very Private
Basis Soap
Water Bottles



Google ads help us generate revenue to keep this support site running. We strongly encourage you to be cautious consumers. The ICN does not endorse the products or services listed in these ads.



Go Back   Interstitial Cystitis (ICN) Support Forum > Treatments For Mild Interstitial Cystitis (frequency/urgency) > Food Supplements: Algonot, CystaQ, Cystoprotek, Aloe & More
Register Blogs FAQ Calendar Mark Forums Read

Reply
 
Thread Tools Rate Thread
Old 12-03-2009, 07:32 PM   #1
Shamay
ICN Member
 
Shamay's Avatar
 
Join Date: Mar 2008
Location: Seattle
Posts: 97
Cystoprotek Bladder Pain and Stomache upset?

Hello,

I just ordered Cystoprtek for the first time and was wondering if it has caused anyone bladder pain?

Also, it doesn't say how long it takes to reach my house... does anyone know how many days it takes to get to you?

Gosh I hope this works, I've been taking Elavil for several years and have noticed I have gained a ton of weight and finding it VERY hard to keep it down... I used to weigh 100lbs and am now up to 120! And no matter how hard I try and how much I watch my intake of food and such I cant seem to get back to square 1 and my 5'1 frame just looks awful right now...

Cheers,
Shamay
__________________
Live Well
Love Much
Laugh Often!




Diagnosed:
Dec 2006
Diagnosis:
IC
Cysto/Hydro:
Dec 2006
Other Conditions:
Anxiety, Chronic Insomnia, Chronic Sinusitis, Bursitis of the hip, Chronic Fatigue Syndrome, PFD, Allergy to Yeast and Dairy
Meds for IC:
Doxepin (Elavil) 20mg before bed, Prosed/DS which works much better for me than Pyridium, Prelief 2 twice a day
Other Meds:
Ambien, Xanax, Skelaxin (as needed)
Didn't work:
Detrol LA (didn't help symptoms), Pyridium 200mg isn't working very well anymore.
Tried:
Elmiron (adverse reaction), Hydrodistention (greatly exacerbated IC symptoms), Urised (hard time breathing), Ditropan (bladder pain the next day), Rescue Instillations (all over body rash with itching),

Last edited by Shamay; 12-04-2009 at 06:22 AM.
Shamay is offline   Reply With Quote
Old 12-03-2009, 09:06 PM   #2
justice4j
No longer active
 
Join Date: Jul 2007
Posts: 646
Cystoprotek -- aggravated IBS

Shamay,
A lot of patients here have great luck w/Cystoprotek. I had to discontinue it b/c it LAUNCHED IBS into overdrive. I hope it works for you. Hugs.
justice4j is offline   Reply With Quote
Old 12-03-2009, 10:08 PM   #3
Skynard
ICN Member
 
Skynard's Avatar
 
Join Date: Sep 2009
Location: Indiana
Posts: 371
Blog Entries: 1
Cystoprotek is your natural Elmiron. I have had HORRIBLE IBS-D for 22 years and had to play with it at first. Now my body is used to it and I can take four a day. It was not easy. I found that if I took one (when I could only take one) right smack dab in the middle of my meal, it was easier on my stomach. I also freeze the entire bottle - this allows the pill to be released slower into the system. Some agree and others disagree with the method of freezing, but it works for me. Between the DH Aloe and the Cystoprotek, I have had great results. I am by no means pain free, but I sure can tell a difference. I took the one per day for about two weeks, then gradually increased. I started in late September of this year.

Hope this helps. Stick with it, I think you will be pleased. It was well worth the struggle at first.

God Bless,

Skyn
__________________
IBS diagnosed - 1987
Severe IC diagnosed - July 10, 2009 (Sister diagnosed 2004)

IC/IBS WILL NOT DEFEAT ME OR DEFINE ME

Allergic to: Penicillan, Imitrex, Levbid, Loestrin, Detrol, Cipro, Morphine, Dilaudid, Pryridium Plus, Fentyl,Toradol, Neurontin, Zoloft, Amitriptyline, , Elmiron, Atarax, Levaquin and most generics.

Tried: Dye Free Benadryl (nausea) and Prelief

Trying: Valium Suppositories, Vitamin E Suppositories, Estrace Cream, Marcaine Home Instills and Lutera.

Emergency Flare Meds: Percocet (pain management), Valium (anxiety management) and Pyridium (before installations).

What's working: Cystoprotek, Shaklee Pro/Prebiotics and DH Aloe Vera.


* Stay with me God the night is dark, the night is cold. My little spark of courage dies. The night is long. Be with me God and make me strong.

Last edited by ICNDonna; 12-04-2009 at 02:29 AM. Reason: Removed sales sites.
Skynard is offline   Reply With Quote
Old 12-04-2009, 06:21 AM   #4
Shamay
ICN Member
 
Shamay's Avatar
 
Join Date: Mar 2008
Location: Seattle
Posts: 97
Thank you, I sure hope it works as well. I wonder what in the suppliment is causing the stomache for people?
__________________
Live Well
Love Much
Laugh Often!




Diagnosed:
Dec 2006
Diagnosis:
IC
Cysto/Hydro:
Dec 2006
Other Conditions:
Anxiety, Chronic Insomnia, Chronic Sinusitis, Bursitis of the hip, Chronic Fatigue Syndrome, PFD, Allergy to Yeast and Dairy
Meds for IC:
Doxepin (Elavil) 20mg before bed, Prosed/DS which works much better for me than Pyridium, Prelief 2 twice a day
Other Meds:
Ambien, Xanax, Skelaxin (as needed)
Didn't work:
Detrol LA (didn't help symptoms), Pyridium 200mg isn't working very well anymore.
Tried:
Elmiron (adverse reaction), Hydrodistention (greatly exacerbated IC symptoms), Urised (hard time breathing), Ditropan (bladder pain the next day), Rescue Instillations (all over body rash with itching),
Shamay is offline   Reply With Quote
Old 12-04-2009, 08:50 AM   #5
Skynard
ICN Member
 
Skynard's Avatar
 
Join Date: Sep 2009
Location: Indiana
Posts: 371
Blog Entries: 1
Sometimes it is just trying something new in your body and it has to get used to it.

Skyn
__________________
IBS diagnosed - 1987
Severe IC diagnosed - July 10, 2009 (Sister diagnosed 2004)

IC/IBS WILL NOT DEFEAT ME OR DEFINE ME

Allergic to: Penicillan, Imitrex, Levbid, Loestrin, Detrol, Cipro, Morphine, Dilaudid, Pryridium Plus, Fentyl,Toradol, Neurontin, Zoloft, Amitriptyline, , Elmiron, Atarax, Levaquin and most generics.

Tried: Dye Free Benadryl (nausea) and Prelief

Trying: Valium Suppositories, Vitamin E Suppositories, Estrace Cream, Marcaine Home Instills and Lutera.

Emergency Flare Meds: Percocet (pain management), Valium (anxiety management) and Pyridium (before installations).

What's working: Cystoprotek, Shaklee Pro/Prebiotics and DH Aloe Vera.


* Stay with me God the night is dark, the night is cold. My little spark of courage dies. The night is long. Be with me God and make me strong.
Skynard is offline   Reply With Quote
Reply


Currently Active Users Viewing This Thread: 1 (0 members and 1 guests)
 
Thread Tools
Rate This Thread
Rate This Thread:

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Forum Jump

Similar Threads
Thread Thread Starter Forum Replies Last Post
Anyone with itching/rash from Cystoprotek? sunny2 Food Supplements: Algonot, CystaQ, Cystoprotek, Aloe & More 10 03-11-2010 12:59 AM
Cystoprotek and effect on bowel movements CyberCrone Food Supplements: Algonot, CystaQ, Cystoprotek, Aloe & More 1 09-10-2008 03:27 PM
cystoprotek and sore throat Kita Food Supplements: Algonot, CystaQ, Cystoprotek, Aloe & More 3 06-24-2008 10:52 AM
6 questions about Cystoprotek littlebear Food Supplements: Algonot, CystaQ, Cystoprotek, Aloe & More 3 09-15-2007 10:45 PM
Cystoprotek log for Helen HB Food Supplements: Algonot, CystaQ, Cystoprotek, Aloe & More 21 05-01-2006 08:31 AM



All times are GMT -11. The time now is 04:52 PM.


Powered by vBulletin® Version 3.8.1
Copyright ©2000 - 2010, Jelsoft Enterprises Ltd.
Copyright 2009 - IC Network