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12-03-2009, 04:43 PM
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#1
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ICN Member
Join Date: Sep 2008
Posts: 34
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elavil
what's the first line of treatment if vulvodynia is suspected? my doc suggested elavil. has elavil helped anyone with the vulvodynia? thanks everybody!
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12-03-2009, 05:14 PM
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#2
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Support Leader
Join Date: Nov 2006
Location: Louisiana
Posts: 8,893
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Elavil helped my Vuluvodynia! BUT I had to discontinue it due to side effects of a racing heart, HB and weight gain.. But it was the best medicine I have been on so far for V.. Sad I could not take it.. I am on Lyrica now and it is helping..
__________________
Hugs
Ronda 
ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!
Link to Patient Handbook:
http://www.ic-network.com/handbook/
Diet Reference Sheet:
http://www.ic-network.com/diet/icndi...tsheet0909.pdf
Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring
Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure
Meds I have Tried:
Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
Lexapro< Bad reaction to this med!
Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..
Dx With IC in Nov 2006 with Hydro/Cysto
Hydro/Cysto Caused Bladder to Rupture.
Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.
ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
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12-04-2009, 06:43 AM
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#3
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ICN Member
Join Date: Sep 2008
Posts: 34
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thanks so much leelee! i hope it works for me. how long did it take till you started to notice a difference?
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12-15-2009, 02:16 PM
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#4
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ICN Member
Join Date: Sep 2008
Posts: 34
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has elavil helped anyone else with vulvodynia??
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12-16-2009, 12:13 PM
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#5
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ICN Member
Join Date: Mar 2009
Posts: 189
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It helped me a lot. With in a month of starting...it brought my pain from a 10 to a 3 or less.
Lately, I am having perineum pain that the Elavil isn't helping...but OVER ALL it brought down my pain A LOT.
I feel like I have a decent life MOST of the time, with horrible days SOMETIMES as opposed to before Elavil when my life turned into pain hell.
I may have gained 6 pounds or so...but haven't had the crazy weight gain or sugar cravings some others have had.
And as a bonus, if you're an insomniac, you won't be one anymore. I have had insomnia for years and elavil lets me sleep.
__________________
Dx Vulvodynia April 2009
Dx Vular Vestibulitis May 2009
Dx Pelvic Floor Dysfunction May 2009
Dx General Anxiety Disorder January 2010
Have had vaginal pain on and off since 2002...but never was taken seriously until it got bad in Feb. 2009
Current Treatment:
Effexor 150 mg
Lidocaine 2%
OTC pain meds
Ice packs/heating pads
Valium 10 mg
Praying for everyone's pain to stop 
I do not have IC...just some how wound up with many of the related pelvic pain conditions.
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12-17-2009, 02:17 AM
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#6
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ICN Member
Join Date: Jan 2009
Posts: 34
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Does it seem to help more with the irritation on a daily basis??? Would it be helpful if most of my pain is associated with intercourse??? I have been using a cream with Amitripiline in it and that helps with the irritation on a daily basis but does not help with the pain during sex....
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