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02-27-2009, 02:26 AM
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#1
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ICN Member
Join Date: Oct 2008
Location: Austin, TX
Posts: 276
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MSM/Glucosamine is helping tremendously already!
 I am so happy!!! I just started the MSM/Glucosamine and I swear it is already working. I was so sad because when I tried Elmiron it started working within a couple weeks of me taking it, it was awesome....but then slowly it started causing my heart to pound/race and was causing great anxiety. I have been taking the MSM/Glucosamine in addition to my Cystoprotek, it is already helping quite a bit. I am now down to only 1 med (.5 mg of Klonopin). I quit the tofranil last night so we will see how that goes. It was also causing my heart to race like crazy. I think my body is just so sick of all of these meds. I am really excited to be on mainly natural meds and am crossing my fingers that they continue to work and this continues to get better!
p.s. For those who are interested in the MSM/Glusoamine, I bought it a GNC. There are no add'l ingredients added...this seems to be key. With those other ingredients, that is what would cause a flare when I tried this combo in the past. I did not realize it needed (for me specifically) to be straight up MSM/Glucosamine.
__________________
As I think, so I shall be....
I have had IC for 3 years now. It has taught me to never take my health for granted ever again, I often daydream of life before this demon  . When I feel good, I embrace it with all of my heart! I pray  that someday I will feel 100% again, we all deserve it!
WENT TO SCHOOL GOT A DEGREE, 2 YRS LATER SEVERE IC!!! HUNG ONTO WORKING BY A TINY THREAD TIL I COULD NOT DO IT ANYMORE. NOW HAVE IC, CFS, & FIBRO...APPROVED FOR SSDI FOR MYSELF AND DAUGHTER (8/10). THANK GOODNESS!!! 
Medications:
Cystoprotek 2 twice per day (as of 8/9/09)
Vicodin (as needed, so daily!)
Percocet (at night)
Klonopin (1 mg at night)
Zanaflex (4 mg each night)
D. Ribbose (each morning)
Thyroid med for low thyroid (hypo)
leuko-stim
probiotic (super)
Vitamin D (4000)
Doxycycline (300 mg per day) currently taking a break from
100 mg 5-HTP (at night)
Diagnosis:
IC, CFS, Fibro, Hypothyroid, Mycoplasma Infection (high count detected in blood)
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02-27-2009, 02:40 AM
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#2
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Support Leader
Join Date: Nov 2006
Location: Louisiana
Posts: 8,893
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I have also have great success with MSM/Glucosamine!! Glad it is working for you!!
__________________
Hugs
Ronda
ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!
Link to Patient Handbook:
http://www.ic-network.com/handbook/
Diet Reference Sheet:
http://www.ic-network.com/diet/icndi...tsheet0909.pdf
Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring
Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure
Meds I have Tried:
Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
Lexapro< Bad reaction to this med!
Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..
Dx With IC in Nov 2006 with Hydro/Cysto
Hydro/Cysto Caused Bladder to Rupture.
Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.
ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
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02-27-2009, 04:12 AM
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#3
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ICN Member
Join Date: Nov 2007
Location: Pennsylvania
Posts: 2,036
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I am so glad to hear it is working, I am also going to try it, so thanks to both of you for sharing.
__________________
Lisa
Current meds:Elavil, Lortab as needed, Vivelle dot hormone patch 0.1mg, estrace cream, lidocaine ointment, pepcid
Diagnosis: IC in 1999 , IBS, Pelvic floor dysfunction, vulvodynia, vestibulitis, chronic low back pain, scoliosis, hunners ulcers on bladder, hysterectomy 2/08, fibro 3/08, sciataca
Me and my girls, my son, me and my wonderful fiance, and our puppy Miley (who loves to cuddle).
      
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02-27-2009, 08:03 AM
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#4
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ICN Member
Join Date: Oct 2008
Location: Austin, TX
Posts: 276
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Hi Rnnda and Lisa,
Thank ya'll for your responses. I am always worried to mention something working to soon, but sometimes I can just tell, and with this one....I can tell tremendously! I get scared to say my bladder feels happy because afterall, it does have ears attached to it somehow  , but MY BLADDER FEELS HAPPY! There, I said it!!! I hope my bladder heard it and continues on this path!!!
Good luck with it Lisa, and I am happy to hear that it helps you as well Ronda!
I can't beleive I am so happy right now. I go through ups and downs as we all do...and right now I am truly enjoying my up! 
__________________
As I think, so I shall be....
I have had IC for 3 years now. It has taught me to never take my health for granted ever again, I often daydream of life before this demon . When I feel good, I embrace it with all of my heart! I pray that someday I will feel 100% again, we all deserve it!
WENT TO SCHOOL GOT A DEGREE, 2 YRS LATER SEVERE IC!!! HUNG ONTO WORKING BY A TINY THREAD TIL I COULD NOT DO IT ANYMORE. NOW HAVE IC, CFS, & FIBRO...APPROVED FOR SSDI FOR MYSELF AND DAUGHTER (8/10). THANK GOODNESS!!!
Medications:
Cystoprotek 2 twice per day (as of 8/9/09)
Vicodin (as needed, so daily!)
Percocet (at night)
Klonopin (1 mg at night)
Zanaflex (4 mg each night)
D. Ribbose (each morning)
Thyroid med for low thyroid (hypo)
leuko-stim
probiotic (super)
Vitamin D (4000)
Doxycycline (300 mg per day) currently taking a break from
100 mg 5-HTP (at night)
Diagnosis:
IC, CFS, Fibro, Hypothyroid, Mycoplasma Infection (high count detected in blood)
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02-27-2009, 09:10 AM
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#5
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ICN Member
Join Date: Jun 2008
Posts: 18
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msm
What brand of msm are you taking? I've tied msm before, but it seems to make things flare up for me - maybe it's the brand I'm using.
Thanks.
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02-27-2009, 10:40 AM
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#6
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Support Leader
Join Date: Nov 2006
Location: Louisiana
Posts: 8,893
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I use Spring Valley brand from Wal-Mart
__________________
Hugs
Ronda
ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!
Link to Patient Handbook:
http://www.ic-network.com/handbook/
Diet Reference Sheet:
http://www.ic-network.com/diet/icndi...tsheet0909.pdf
Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring
Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure
Meds I have Tried:
Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
Lexapro< Bad reaction to this med!
Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..
Dx With IC in Nov 2006 with Hydro/Cysto
Hydro/Cysto Caused Bladder to Rupture.
Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.
ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
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02-27-2009, 10:42 AM
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#7
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ICN Member
Join Date: Oct 2008
Location: Austin, TX
Posts: 276
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MSM straight up was flaring me to, but for some reason...
the MSM/Glucosamine brand from GNC does not flare me at all! There are no added ingredients.
__________________
As I think, so I shall be....
I have had IC for 3 years now. It has taught me to never take my health for granted ever again, I often daydream of life before this demon . When I feel good, I embrace it with all of my heart! I pray that someday I will feel 100% again, we all deserve it!
WENT TO SCHOOL GOT A DEGREE, 2 YRS LATER SEVERE IC!!! HUNG ONTO WORKING BY A TINY THREAD TIL I COULD NOT DO IT ANYMORE. NOW HAVE IC, CFS, & FIBRO...APPROVED FOR SSDI FOR MYSELF AND DAUGHTER (8/10). THANK GOODNESS!!!
Medications:
Cystoprotek 2 twice per day (as of 8/9/09)
Vicodin (as needed, so daily!)
Percocet (at night)
Klonopin (1 mg at night)
Zanaflex (4 mg each night)
D. Ribbose (each morning)
Thyroid med for low thyroid (hypo)
leuko-stim
probiotic (super)
Vitamin D (4000)
Doxycycline (300 mg per day) currently taking a break from
100 mg 5-HTP (at night)
Diagnosis:
IC, CFS, Fibro, Hypothyroid, Mycoplasma Infection (high count detected in blood)
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02-27-2009, 10:52 AM
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#8
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ICN Member
Join Date: Jul 2008
Posts: 611
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I also have great success with glucosimine. I take the Jamison name brand.
peace
blue
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02-27-2009, 01:41 PM
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#9
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Support Leader
Join Date: Jun 2002
Location: Iowa
Posts: 3,455
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Add me to the list of those who this is helping. I also take the one with no additives. This supplement with the Hydroxyzine is working great for me.
__________________
Jolene
"Life is what happens when you are making other plans" John Lennon
The IC Handbook: http://www.ic-network.com/handbook/
The IC Diet Cheat Sheet http://www.ic-network.com/diet/dietcheatsheet.html
Here is a link to my photo website. I make and sell crafts and will be adding more pictures, so keep checking back to see if anything is new. Contact me if interested in anything. http://s918.photobucket.com/home/joscrafts
Newbie Angel...I will be happy to answer any questions or just listen. Email me at joleneb300@iowatelecom.net
"IC Angel Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you."
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03-07-2009, 03:36 AM
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#10
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ICN Member
Join Date: Oct 2008
Location: Austin, TX
Posts: 276
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Strong Recommendation to any of those who have not tried
Well, I thought my world was simply falling apart until about 2 weeks ago. I started going to a non-denominational church in which prayer groups are now praying for me, and I also started taking Klonopin and MSM/Glucosamine in addition to my other items listed below in my signature line. I am not sure which one is working so well, or if it is all of them together...but things are really looking up for me. I did get brave and had quit the tofranil and that was a big mistake as it left me peeing non-stop all day, then I took it and boom-within 30 min the constant peeing stopped. I am so grateful for my new regimen. I can't quite pin point which is helping the most because I started Klonopin and MSM/Glucosamine at the same time. Whichever, or if it is both...I am feeling so much happier. That along with accepting God back into my life again.
__________________
As I think, so I shall be....
I have had IC for 3 years now. It has taught me to never take my health for granted ever again, I often daydream of life before this demon . When I feel good, I embrace it with all of my heart! I pray that someday I will feel 100% again, we all deserve it!
WENT TO SCHOOL GOT A DEGREE, 2 YRS LATER SEVERE IC!!! HUNG ONTO WORKING BY A TINY THREAD TIL I COULD NOT DO IT ANYMORE. NOW HAVE IC, CFS, & FIBRO...APPROVED FOR SSDI FOR MYSELF AND DAUGHTER (8/10). THANK GOODNESS!!!
Medications:
Cystoprotek 2 twice per day (as of 8/9/09)
Vicodin (as needed, so daily!)
Percocet (at night)
Klonopin (1 mg at night)
Zanaflex (4 mg each night)
D. Ribbose (each morning)
Thyroid med for low thyroid (hypo)
leuko-stim
probiotic (super)
Vitamin D (4000)
Doxycycline (300 mg per day) currently taking a break from
100 mg 5-HTP (at night)
Diagnosis:
IC, CFS, Fibro, Hypothyroid, Mycoplasma Infection (high count detected in blood)
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03-07-2009, 04:48 AM
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#11
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ICN Staff
Join Date: Jan 2002
Location: Memphis, TN
Posts: 10,782
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__________________
Sharon
Shopping??? Did someone mention shopping? I'll get my hat... ;-)
Where I can be found most days.
If not there, then here
Link to the ICN Patient Handbook:
http://www.ic-network.com/handbook/
Link to the IC Diet:
http://www.ic-network.com/diet/
IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
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03-07-2009, 05:47 AM
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#12
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Support Leader
Join Date: Nov 2006
Location: Louisiana
Posts: 8,893
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asIshallbe, this is great to hear!!!
__________________
Hugs
Ronda
ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!
Link to Patient Handbook:
http://www.ic-network.com/handbook/
Diet Reference Sheet:
http://www.ic-network.com/diet/icndi...tsheet0909.pdf
Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring
Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure
Meds I have Tried:
Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
Lexapro< Bad reaction to this med!
Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..
Dx With IC in Nov 2006 with Hydro/Cysto
Hydro/Cysto Caused Bladder to Rupture.
Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.
ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
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03-08-2009, 01:16 AM
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#13
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ICN Member
Join Date: Nov 2007
Posts: 43
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Do any of you take Ester C with your Glucosamine/MSM I was reading it helps the MSM absorb better.
__________________
32 year old mommy to a precious 1 year old
Symptoms: Annoying frequency and urgency
Did not work
Vesicare, Prosed ds (increased my symptoms), Elmiron (tons of hair loss, LPR - reflux, swallowing problems)
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03-08-2009, 09:17 AM
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#14
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ICN Member
Join Date: Jul 2006
Posts: 328
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I'm also taking Glucosamine/MSM and have had some success with it. I had tried it before, but then I ran out and stopped. I'm now back on it, and I think it took awhile for it to work, but I'm so glad I gave it another try. I take a brand called Schiffs because they are a little smaller and coated, and easier for me to swallow.
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03-08-2009, 12:32 PM
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#15
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ICN Member
Join Date: Feb 2009
Posts: 52
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How long does it take to see that the MSM/glucosamine is working? I just started today. And is it best to take 500mg 3 times a day?
mish
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