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Go Back   Interstitial Cystitis Network Support Forum > Managing Interstitial Cystitis Flares > Help! I'm in an interstitial cystitis flare!
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Old 06-12-2007, 01:15 PM   #1
rachann
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Msm gel

Where can I get MSM gel? I have alot of urethral pain and if this helps I will get it. Thanks, Rachann
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When life hands you lemons make lemonade. But when life hands you a load of crap, don't make anything. Trust me on this one.

Diagnosed in 2001
Meds
Elmiron, Elavil, Atarax, Ditropan, Prosed DS, Hydracodone when needed
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Old 06-17-2007, 09:06 PM   #2
Myca
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I don't know I haven't heard of it. I will ask my doc when I go this week and let you know.
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Old 06-18-2007, 05:26 AM   #3
rachann
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Myca

Roxanne pmd me with the info. You can order msm gel at www.jacoblab.com. I ordered some. I'll let you know if it helps. Rachann
__________________
When life hands you lemons make lemonade. But when life hands you a load of crap, don't make anything. Trust me on this one.

Diagnosed in 2001
Meds
Elmiron, Elavil, Atarax, Ditropan, Prosed DS, Hydracodone when needed
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Old 06-20-2007, 03:38 PM   #4
Homeskizz
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I went to that site, I think I may try it. I get a lot of urethra pain. I hope this helps...Has anyone tried the oral MSM or just the gel?
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Old 06-20-2007, 04:08 PM   #5
Roxie2007
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HI! I've only tried the MSM gel........but love it. Roxie
__________________

Double Spinal Cord Stimulator surgery 8/09
Unsuccessful MiniArc sling surgery 12/07
Dx'd Hypothyroid
Dx'd Chronic Axonal Neuropathy & Myopathy
June 2007
Dx'd IC May 2006 (after suffering for 25+ yrs!)
First Cysto 1979
First Hydro 1981 (Many treatments since then!)
Collagin"Durasphere" injections for urethra
Gall bladder surgery Aug. 2004
Gastric Bypass Dec. 2004
Dx'd: Barrett's Esphogus July 2004
Dx'd: Vaginal Atrophy 2005
Bladder surgery 2000
Dx'd: IBS 2000
Hysterectomy (fibroids) 1999
Laminectomy 1989
Dx'd: Degerative Disk Disorder 1989

For IC I use Elmiron, Elavil and Freeze dried Aloe Vera (it works likes Elmiron, but naturally)and Azo as needed. I also take Zegerid, Randitine for Barrett's Esophagus. (which causes me to have constant yeast infections!)I take Cymbalta for Neuopathy/Myopathy pain. I use the Climara patch for menopause symptoms. I'm on a very strict diet because of the IC, IBS and Gastric Bypass. I take Primal Defense Probiotics and whole food Iron.
I no longer have the awful urethral pain! I've been using MSM gel now for 4 mo. and haven't had a flare up or the urethra pain.....it's amazing stuff!!
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Old 06-20-2007, 04:13 PM   #6
Homeskizz
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Quote:
Originally Posted by Roxie2007 View Post
HI! I've only tried the MSM gel........but love it. Roxie
Thanks for the reply Roxie.

Do you recommend a certain brand? I found it on Jacobslab.com...
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Old 07-06-2007, 05:47 PM   #7
tizib
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Hi Roxie,
I'm sorry to sound so newbie but WHERE do you apply the MSM gel? I just got some and want to use it but was wondering if you use it on the abdomen or around the urethra (outside) or do you instill it???
Thanks
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Old 01-04-2008, 02:47 PM   #8
rachann
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where to put the gel

Hi everyone! I've been off the computer for a long time do to not having a computer that works. Do to the nice donations from our family we have a new one. I did get the gel this summer and haven't used it because I'm not sure where to put it. Does it go directly on the ureathral opening? This would be fantastic to know for my next flair. Thanks, Rach
__________________
When life hands you lemons make lemonade. But when life hands you a load of crap, don't make anything. Trust me on this one.

Diagnosed in 2001
Meds
Elmiron, Elavil, Atarax, Ditropan, Prosed DS, Hydracodone when needed
rachann is offline   Reply With Quote
Old 01-04-2008, 02:50 PM   #9
Roxie2007
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Hi! Just put some on your finger and put it inside......it's a gel so it sorta melts where it needs to go. I used it 3 times during the day and then put some in at bedtime.......I wear a light pad when I use the gel. Hope it works for you!!
__________________

Double Spinal Cord Stimulator surgery 8/09
Unsuccessful MiniArc sling surgery 12/07
Dx'd Hypothyroid
Dx'd Chronic Axonal Neuropathy & Myopathy
June 2007
Dx'd IC May 2006 (after suffering for 25+ yrs!)
First Cysto 1979
First Hydro 1981 (Many treatments since then!)
Collagin"Durasphere" injections for urethra
Gall bladder surgery Aug. 2004
Gastric Bypass Dec. 2004
Dx'd: Barrett's Esphogus July 2004
Dx'd: Vaginal Atrophy 2005
Bladder surgery 2000
Dx'd: IBS 2000
Hysterectomy (fibroids) 1999
Laminectomy 1989
Dx'd: Degerative Disk Disorder 1989

For IC I use Elmiron, Elavil and Freeze dried Aloe Vera (it works likes Elmiron, but naturally)and Azo as needed. I also take Zegerid, Randitine for Barrett's Esophagus. (which causes me to have constant yeast infections!)I take Cymbalta for Neuopathy/Myopathy pain. I use the Climara patch for menopause symptoms. I'm on a very strict diet because of the IC, IBS and Gastric Bypass. I take Primal Defense Probiotics and whole food Iron.
I no longer have the awful urethral pain! I've been using MSM gel now for 4 mo. and haven't had a flare up or the urethra pain.....it's amazing stuff!!
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Old 01-04-2008, 03:06 PM   #10
rachann
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Location: Pittsburgh, PA
Posts: 124
Thanks Roxie! I will give it a try.
__________________
When life hands you lemons make lemonade. But when life hands you a load of crap, don't make anything. Trust me on this one.

Diagnosed in 2001
Meds
Elmiron, Elavil, Atarax, Ditropan, Prosed DS, Hydracodone when needed
rachann is offline   Reply With Quote
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