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05-09-2007, 11:34 AM
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#1
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ICN Member
Join Date: Aug 2001
Location: Sudbury Ontario Canada
Posts: 39
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Hi
A quick hello just so say i miss you so.
I finally got around to having Jill help me get my log in info and i finally got signed in. Anyway, not been well so I've been bad at keeping in touch. I can barely eat because of swallowing troubles probably related to the muscle condition and need go for tests and stuff with that. How are you all doing?
Anyway, I'm expecting someone any minute now and have to go. If you don't hear from me as much as you would like, I'm still around, just laying low but I'll come back sometime when i feel up to it and things have settled some. Wishing you an enjoyable spring and summer.
Chantal
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05-09-2007, 11:37 AM
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#2
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Support Volunteer
Join Date: Oct 2005
Location: Central, NY
Posts: 2,829
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Nice to hear from you! Have a nice Summer as well.
__________________
TO VIEW MY CURRENT AND ONGOING VIDEO DIARY OF MY PUDENDAL NERVE DECOMPERSSION OPERATION AND RECOVERY, YOU CAN VISIT My Facebook Page:
http://www.facebook.com/profile.php?id=1158566812
You can also view my CURRENT PHOTO ALBUMS and some other secrets about me. Once you sign up, I'll add you as a friend if you mention you are from the ICN. It's FREE
Complex Case: Severe IC 1999, Interstim 2001, Endometriosis 2001, End Stage Refractory IC 2002, Bladder Removal (Cystectomy) 2002, Gall Bladder Removal 2005, Infertility 2003, Urethra Removal, Bladder Reconstruction (Urethrectomy/Indiana Pouch) 2006, Celiac Disease 2007, Adhesion Disease 2007, Pudendal Nerve Entrapment, Ovarian Cysts, Vestibulitis, Vulvodynia, Total Vestibulectomy and removal of both Skene's Glands, 2007 and Coccydynia 2007. Fibromyalgia and, Chronic Myofascial Pain Syndrome both in my neck and knees, 2007, PNE Decompression Operation May, 2009.Multiple Chemical Sensitivities, Anesthesia Awareness (to awaken during operations)
Unrelated to my Indiana Pouch and Urethrectomy, which were very successful and have improved my quality of life to a much better degree, I’ve also been diagnosed with a very painful condition known as Pudendal Nerve Entrapment, with Vestibulodynia. It's a very poorly understood condition that could have been treated years ago had we known what it was. To learn more about PNE, symptoms, diagnosis, causes, and treatments feel free to visit: [b] http://www.pudendalhelp.com/home.html
"One hour at a time, this was NOT my American Dream but it has to work out somehow."
I also have some journals of my journeys, past and some present at:
http://karasnewblog2008.blogspot.com/ and http://icnkaralynn.blogspot.com/
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05-09-2007, 01:35 PM
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#3
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Canada IC Coordinator
Join Date: Mar 2000
Location: Ontario, Canada
Posts: 604
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Hi Chantal,
So sorry to hear you are having a rough time of it , been thinking of you so much ...
Thanks for the e-mail , I was kind of worry about you Chantal..
I just wished I live closer to you that I could be there for you to help you out...
Please take care and I will keep you updated on my surgery as well..
Lots of warm hugs, Debbie
__________________
Thinking positive has got me through to another day!!
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