|
Our Sponsors:
Cystoprotek
Prelief
CystaQ
BladderQ
Lo Fric Catheters
NEW! Fall 2009 Now Available By Mail or Email
Winter 2010 Catalog Download A Copy
Heal Pelvic Pain
Klean Kanteen Stainless Steel Water Bottles
Please support this forum by making purchases in our shop!
ICN Subscriptions
ICN Contributions
Alternative Supplements
Books about IC
IC Diet Resources
Cystoprotek
CystaQ
Prelief
IC Friendly Beverages
Low Acid Coffees
Herbal Teas
Dry Mouth Products
IC Friendly Foods
Dr. Oetkers Mixes
Fiber & Laxatives
Pilates For Pelvic Pain
Feminine Hygiene
Chair Cushions
IBS Products
Men's Resources
Pelvic Pain Resources
Romance& Sex
Urine Test Kits
Very Private
Basis Soap
Water Bottles
Google ads help us generate revenue to keep this support site running. We strongly encourage you to be cautious consumers. The ICN does not endorse the products or services listed in these ads.
|
 |
02-20-2007, 05:33 PM
|
#1
|
|
ICN Member
Join Date: Dec 2005
Posts: 673
|
IC article in Globe and Mail today
Did anyone else see the article on Interstitial cystitis in the Globe and Mail today? It was written by a Dr.Gary Gray.
-jane
|
|
|
|
02-21-2007, 12:18 AM
|
#2
|
|
IC Friend
Join Date: Nov 2006
Location: Vancouver, B.C. (Canada)
Posts: 62
|
I missed it! But I wish I had seen it!!
__________________
Caroline
-Diagnosed November 29th, 2006
Take 400 mg of Elmiron since January 2007 and am happy to report that I'm almost symptom free or have very mild, managable symptoms as of around 9 months on my meds!!
- 50 mgs of hydroxizine
- 10 mgs of elavil
-pyridium as needed (on burny flarey days)
- am pretty much off the i.c. diet. I even eat tomatoes now (although I'm careful!)
|
|
|
|
|
02-21-2007, 10:54 AM
|
#3
|
|
Canada IC Coordinator
Join Date: Mar 2000
Location: Ontario, Canada
Posts: 604
|
Here is the the article on Interstitial cystitis in the Globe and Mail from yesterday paper at this web site ..
http://www.theglobeandmail.com/servl...itial+cystitis
Debbie
__________________
Thinking positive has got me through to another day!!
|
|
|
|
|
02-21-2007, 06:18 PM
|
#4
|
|
ICN Member
Join Date: Dec 2004
Location: Toronto Canada
Posts: 1,001
|
That was great! Thanks
Hugs Sandra 
|
|
|
|
|
03-19-2007, 08:17 AM
|
#5
|
|
ICN Member
Join Date: Mar 2001
Location: Alberta, Canada
Posts: 216
|
Dr Gray Article On Ic
Many Thanks For Posting Dr. Gray's Article On Ic. I Just Happen To Live In Edmonton, Alberta, Canada And Dr. Gray Is My Urologist!!
What A Coincidence - I Was Not Aware Of This Article So I Appreciate Very Much Your Posting About It.
Sincere Thanks,
Louise
|
|
|
|
|
03-19-2007, 09:13 AM
|
#6
|
|
Support Leader
Join Date: Nov 2006
Location: Louisiana
Posts: 8,593
|
Thanks Deb!
__________________
Hugs
Ronda 
ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!
Link to Patient Handbook:
http://www.ic-network.com/handbook/
Diet Reference Sheet:
http://www.ic-network.com/diet/icndi...tsheet0909.pdf
Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring
Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure
Meds I have Tried:
Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
Lexapro< Bad reaction to this med!
Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..
Dx With IC in Nov 2006 with Hydro/Cysto
Hydro/Cysto Caused Bladder to Rupture.
Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.
ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
|
|
|
|
|
03-20-2007, 12:21 PM
|
#7
|
|
Canada IC Coordinator
Join Date: Mar 2000
Location: Ontario, Canada
Posts: 604
|
You are very welcome !! 
Debbie
__________________
Thinking positive has got me through to another day!!
|
|
|
|
|
03-20-2007, 12:36 PM
|
#8
|
|
ICN Member
Join Date: Jan 2007
Location: Houston, Texas
Posts: 960
|
HI! I tried opening your link but it says I have to join and pay for the article....bummer! Roxie
__________________
Unsuccessful MiniArc sling surgery 12/07 
Dx'd Hypothyroid
Dx'd Chronic Axonal Neuropathy & Myopathy
June 2007
Dx'd IC May 2006 (after suffering for 25+ yrs!)
First Cysto 1979
First Hydro 1981 (Many treatments since then!)
Collagin"Durasphere" injections for urethra
Gall bladder surgery Aug. 2004
Gastric Bypass Dec. 2004
Dx'd: Barrett's Esphogus July 2004
Dx'd: Vaginal Atrophy 2005
Bladder surgery 2000
Dx'd: IBS 2000
Hysterectomy (fibroids) 1999
Laminectomy 1989
Dx'd: Degerative Disk Disorder 1989
For IC I use Elmiron, Elavil and Freeze dried Aloe Vera (it works likes Elmiron, but naturally)and Azo as needed. I also take Zegerid, Randitine for Barrett's Esophagus. (which causes me to have constant yeast infections!)I take Cymbalta for Neuopathy/Myopathy pain. I use the Climara patch for menopause symptoms. I'm on a very strict diet because of the IC, IBS and Gastric Bypass. I take Primal Defense Probiotics and whole food Iron.
I no longer have the awful urethral pain! I've been using MSM gel now for 4 mo. and haven't had a flare up or the urethra pain.....it's amazing stuff!! 
|
|
|
|
|
03-20-2007, 12:44 PM
|
#9
|
|
Canada IC Coordinator
Join Date: Mar 2000
Location: Ontario, Canada
Posts: 604
|
It was there, I guess you only can view it for a short time , sorry !!
Debbie
__________________
Thinking positive has got me through to another day!!
|
|
|
|
|
03-20-2007, 01:24 PM
|
#10
|
|
IC Friend
Join Date: Jun 2004
Posts: 4,304
|
I joined and paid for a single article and then immediately regretted it, LOL - it doesn't say anything new. But it is nice that IC is being recognized, and that it is recognized as being painful, and that it is recognized these treatments do not work for everyone, and that a substantial minority of us have nothing that works for us of the current treatments available. (I think the article stated 1/3 of us aren't helped by available therapies?)
Anyhoo, it's always nice to have more publicity about our disease, that's always something to be excited about!
Blessings,
Lori
|
|
|
|
|
03-21-2007, 02:48 AM
|
#11
|
|
Canada IC Coordinator
Join Date: Mar 2000
Location: Ontario, Canada
Posts: 604
|
I thought it was a good article , it is always good to read any kind of publicity of IC ...
Debbie
__________________
Thinking positive has got me through to another day!!
|
|
|
|
|
Currently Active Users Viewing This Thread: 1 (0 members and 1 guests)
|
|
|
| Thread Tools |
|
|
| Rate This Thread |
|
|
Posting Rules
|
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts
HTML code is Off
|
|
|
All times are GMT -11. The time now is 12:50 AM.
|
