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11-29-2004, 09:30 AM
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#1
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ICN Member
Join Date: Aug 2004
Location: Southern Ca.
Posts: 1,270
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Decongestants and IC
Why are decongestants bad for IC patients? I have a really bad cold and my sinuses are really stuffed. Any advice?
Thanks,
bunnykinb
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11-29-2004, 04:41 PM
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#2
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Support Leader
Join Date: Aug 2001
Location: Green Bay WI
Posts: 9,738
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Well they may not hurt us all....but some have said they have hurt their bladder. Just as anything can. We can usually have more luck to try antihistamines since they often can help treat our IC and our cold or sinus symptoms. Look for the meds out there that are newly non prescription for allergies such as Allervert. Also try sprays and vics. You can try decogestions to find out if they hurt you. My experience has been that most people have complained of decogestions hurting them though. Good luck.
__________________
Faith, Hope, and Love,
Katrina
~I’m a newbie angel~Moderator of Alternatives, Antibiotics, Flare Coping Strategies, and Yeast Infections
I believe God is using me, even now with my health so bad. He uses me for God. Things I gain from all my suffering are meant to help others. I hope I can help you too. Email me or start a chat if you like my help or anything. I CARE!Illnesses: IC,IBS, IBD, GERD, PFD, Epilepsy, Endo, Allergies, RLM,Rapid heart beat, low blood pressure,Gastritis,Gall stones,Tendonitis,migraines, Shingles, Prolapsed pouch,ext. fatigue (current problem) My hope story http://www.ic-network.com/patientstories/katrina.html
http://get-me.to/mandk http://www.mandksales.com
IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
http://www.myspace.com/Kat_671 or find me on facebook http://www.facebook.com/kat671?ref=profile
Be the Miracle! & Pay it Forward!
carmelann@charter.net please contact me...I am here to help! http://health.groups.yahoo.com/group/ICinWI/ if your from WI please contact me!
http://icandme.9.forumer.com/
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11-30-2004, 06:23 AM
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#3
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ICN Member
Join Date: Aug 2004
Location: Southern Ca.
Posts: 1,270
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I have Nasonex but that's for allergies and it doesn't help my conjestion. I had to take a Sudafed D last night and 1/2 a tablet this morning. My head is in laa laa ville. I have slight irritated urethra feeling, but nothing major. Might be that my head has taken over the pain instead. I put vick's on the outside of my nostrils, but my head is hurting.
Thanks,
bunnykinb
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11-30-2004, 04:42 PM
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#4
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Support Leader
Join Date: Aug 2001
Location: Green Bay WI
Posts: 9,738
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Well if you have a cold you will probably need more medicine than what you take all the time. Allavert usually helps me with my colds....
When I get more desperate I try sprays like Afrin ....less likely to affect my bladder. HOpe you feel a lot better soon.
__________________
Faith, Hope, and Love,
Katrina
~I’m a newbie angel~Moderator of Alternatives, Antibiotics, Flare Coping Strategies, and Yeast Infections
I believe God is using me, even now with my health so bad. He uses me for God. Things I gain from all my suffering are meant to help others. I hope I can help you too. Email me or start a chat if you like my help or anything. I CARE!Illnesses: IC,IBS, IBD, GERD, PFD, Epilepsy, Endo, Allergies, RLM,Rapid heart beat, low blood pressure,Gastritis,Gall stones,Tendonitis,migraines, Shingles, Prolapsed pouch,ext. fatigue (current problem) My hope story http://www.ic-network.com/patientstories/katrina.html
http://get-me.to/mandk http://www.mandksales.com
IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
http://www.myspace.com/Kat_671 or find me on facebook http://www.facebook.com/kat671?ref=profile
Be the Miracle! & Pay it Forward!
carmelann@charter.net please contact me...I am here to help! http://health.groups.yahoo.com/group/ICinWI/ if your from WI please contact me!
http://icandme.9.forumer.com/
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11-30-2004, 08:12 PM
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#5
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ICN Member
Join Date: Jan 2004
Location: Michigan
Posts: 834
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Hi there! I take generic version of the Sudafed Non Drying Sinus capsules that have the decongestant and the expectorant in it. I sometimes take them once a day - it seems I wake up feeling a little stuffed in the morning. I usually take three prelief with them and I do okay. Once a day, sometimes twice has not bothered me yet. I took them once over the weekend, but prior to that I hadn't needed them in about a month. I also take an allergy med at bedtime for IC - so that usually helps me too. Sometimes I think we just need to pick our pain. Bladder or head? Whichever is bothering us the most at the time, I think that's the one that wins.
Hope you feel better soon!
Jennifer
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12-02-2004, 11:57 AM
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#6
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ICN Member
Join Date: Aug 2004
Location: Southern Ca.
Posts: 1,270
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I bought some Theraflu cough strips. About 1 hour later, I started having urethra pain which I then had to take pyridium. I really think it was the cough medicine that caused this since I didn't eat anything else out of the ordinary. I was suppose to have another instill today, but decided to call the uro's office to see if I could still get the instill while I wasn't feeling good, I was told it would be better to wait. So I am rescheduled in two weeks.
I think after the next heparin, I will most likely go on Elmiron.
Thank you for all your well wishes. I'll have to try taking Prelief with the decongestants.
bunnykinb
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12-03-2004, 09:30 AM
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#7
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IC Friend
Join Date: Mar 2003
Location: Atlanta
Posts: 1,427
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Decongestants always seem to act as a diuretic for me, so I end up urinating more, which then irritates my bladder and causes urethral burning. I try not to take decongestants unless I'm so congested I can't breathe or think straight.
__________________
 Namaste
"You must be the change you want to see in the world." - Mahatma Gandhi

"The most important medicine is tender love and care" - Mother Teresa
Proud mother of Ahleia, born on April 9, 2007
-----------------------
Diagnosed with:
IC, OAB, Congenital urethral stricture, IBS, Vulvar vestibulitis, Heart murmur, Congenital cervical stenosis...but otherwise doing great!
Meds:
Currently in remission, but took the following for 3 years: Elmiron 200 mg., Elavil 25 mg., Detrol LA 4mg, Ovcon-35
Health treatments/practices:
Kripalu yoga, Chiropractic, Massage therapy and Reiki
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12-04-2004, 03:39 PM
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#8
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ICN Member
Join Date: Aug 2004
Location: Southern Ca.
Posts: 1,270
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It's me, I can't believe I'm still congested. Does anyone know if Singular helps with the congestion or is that just for allergies? It would be nice I could take both Singular for IC and congestion.
Christmas is near and it's difficult to think about it when we are all trying to deal with our pain. Best wishes to all.
bunnykinb
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