ICN Support Forum & Message Boards
Sign up for our free ICN E-Newsletters!
Email:
- Take a moment each day to say "I am proud of myself." YOU are working VERY hard to live your life with IC with dignity and respect. Have you rewarded yourself recently??
- YOUR WORDS have the power to inspire or discourage other patients. Whenever possible, write ENCOURAGING messages.

Our Sponsors:
Cystoprotek
Prelief
CystaQ
BladderQ
Lo Fric Catheters


NEW! Fall 2009 Now Available By Mail or Email




Winter 2010 Catalog Download A Copy




Heal Pelvic Pain


Klean Kanteen Stainless Steel Water Bottles


Please support this forum by making purchases in our shop!
ICN Subscriptions
ICN Contributions
Alternative Supplements
Books about IC
IC Diet Resources
Cystoprotek
CystaQ
Prelief
IC Friendly Beverages
Low Acid Coffees
Herbal Teas
Dry Mouth Products
IC Friendly Foods
Dr. Oetkers Mixes
Fiber & Laxatives
Pilates For Pelvic Pain
Feminine Hygiene
Chair Cushions
IBS Products
Men's Resources
Pelvic Pain Resources
Romance& Sex
Urine Test Kits
Very Private
Basis Soap
Water Bottles


Google ads help us generate revenue to keep this support site running. We strongly encourage you to be cautious consumers. The ICN does not endorse the products or services listed in these ads.


NOW AVAILABLE!



Go Back   Interstitial Cystitis Network Support Forum > Experimental or Controversial Treatments > Antibiotics For Interstitial Cystitis Are Controversial
Register Blogs FAQ Calendar Mark Forums Read

Reply
 
Thread Tools Rating: Thread Rating: 11 votes, 5.00 average.
Old 10-14-2004, 07:12 PM   #1
songbird7
ICN Member
 
songbird7's Avatar
 
Join Date: Mar 2000
Location: California
Posts: 521
Does Anyone Take Antibiotics That Don't Cause Flares?

Does anyone take antibiotics that doesn't cause flares? The treatment is painful but for a UTI it works. For hours today I felt like I had a bonfire in my bladder.
((((( )))))))
Songbird
__________________
If you keep a green bough in your heart
the singing bird will come.
http://homepage.mac.com/chirper
songbird7 is offline   Reply With Quote
Old 10-15-2004, 08:58 AM   #2
holles
Registered User
 
holles's Avatar
 
Join Date: Jul 2003
Location: dfw, texas
Posts: 384
i've used cipro and levaquin with no problem. macrobid always causes flares for me.

i just finished a month of doxycycline to put my IC in remission. it worked for me. doesn't work for everyone, but i got lucky!
__________________
holly 35
IC, endometriosis, graves, chronic uterine infection
no kids, just me and my man (and some furry things that beg for food a lot)
"if the Lord has set you free, be free indeed"

IC dx 2003/mysteriously developed while on depot lupron to treat endometriosis
treatments tried so far:
elmiron, elavil, pyridium, urelle, heparin instills, doxycycline regimen (most successful, but not completely), IC diet
holles is offline   Reply With Quote
Old 10-15-2004, 09:41 AM   #3
tigger_gal
ICN Member
 
tigger_gal's Avatar
 
Join Date: Apr 2002
Location: Warren
Posts: 8,372
I have used Cipro and Levaquin also with no problems... I once was on Macrobid, for 3 months straight, because I had a never ending bladder infection...
hugs
Brat
__________________
'The will of God will never take you where the Grace of God will not protect you.'
My lovely children
Ashley 21, Jake 4 and Savannah 2
tigger_gal is offline   Reply With Quote
Old 10-15-2004, 05:11 PM   #4
songbird7
ICN Member
 
songbird7's Avatar
 
Join Date: Mar 2000
Location: California
Posts: 521
Thank you..............
With love to all,
Songbird
__________________
If you keep a green bough in your heart
the singing bird will come.
http://homepage.mac.com/chirper
songbird7 is offline   Reply With Quote
Old 10-15-2004, 07:47 PM   #5
Katrina
Support Leader
 
Katrina's Avatar
 
Join Date: Aug 2001
Location: Green Bay WI
Posts: 9,738
I use Cipro and find it helps.....((hugs))
__________________
Faith, Hope, and Love,
Katrina

~I’m a newbie angel~Moderator of Alternatives, Antibiotics, Flare Coping Strategies, and Yeast Infections
I believe God is using me, even now with my health so bad. He uses me for God. Things I gain from all my suffering are meant to help others. I hope I can help you too. Email me or start a chat if you like my help or anything. I CARE!Illnesses: IC,IBS, IBD, GERD, PFD, Epilepsy, Endo, Allergies, RLM,Rapid heart beat, low blood pressure,Gastritis,Gall stones,Tendonitis,migraines, Shingles, Prolapsed pouch,ext. fatigue (current problem) My hope story http://www.ic-network.com/patientstories/katrina.html
http://get-me.to/mandk http://www.mandksales.com
IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
http://www.myspace.com/Kat_671 or find me on facebook http://www.facebook.com/kat671?ref=profile
Be the Miracle! & Pay it Forward!

carmelann@charter.net please contact me...I am here to help!http://health.groups.yahoo.com/group/ICinWI/ if your from WI please contact me!
http://icandme.9.forumer.com/
Katrina is offline   Reply With Quote
Old 10-16-2004, 12:50 PM   #6
stacyann_1
Registered User
 
Join Date: Jun 2004
Posts: 29
I had good luck with Bactrim. In general I don't notice my IC symptoms are worse when I take antibiotics. Usually there better the first 2 days then get worse after
stacyann_1 is offline   Reply With Quote
Old 10-16-2004, 02:06 PM   #7
windwalker
ICN Member
 
windwalker's Avatar
 
Join Date: May 2004
Location: Michigan
Posts: 1,555
All antibiotics cause(d) me to flare three days AFTER finishing them, then that lasts almost a week. Spoke to my doc about putting me on the month long doxy (I was just on it two weeks ago for ten days for my tonsils), I felt great the last seven days on them then it all came back three days later, doc was convinced enough to start me on the month long doxy and throw two weeks at my hubby, cross yer fingers, gonna post some of this in a new threat too. But as for an anti w/no flares, thats gonna depend on the person. Take care!
Dawn
windwalker is offline   Reply With Quote
Old 10-23-2004, 05:29 AM   #8
spickett4USA
Registered User
 
Join Date: Oct 2004
Location: Beaverton, OR
Posts: 18
bonfire in the bladder

Thank you Songbird for coming up with this great description of how my bladder has been feeling. LOL
About a week ago I started to get the bladder cramping and was sure I was coming down with a bladder infection. I took some Macrobid cause I had it here for Maintenance in case I felt one coming on. Took it for two days, then stopped. A couple of days later I had the "bonfire" feeling in my bladder. Is it the Macrobid? Anyway, I've since gone to the doctor and am now on a new antibiotic but I still have the "bonfire" in my bladder. I searched the forums and I see I'm not the only one that maybe has trouble with antibiotics hurting their bladder even more. Anywords of advise of the wise? I sat at the ER last night with my mom. Apparently my dad has a very large tumor in his liver and is end-stage cancer. So I guess now is not a good time for a flare-up. Anyway, if someone can tell me if that feeling will go away after the antibiotics have cleared out I'll be thinking there's a light at the end of the tunnel so I can cope better with the other thing. I have muscle relaxers from the doc for about 2 more days then they're gone. I haven't had any major flare-ups in probably more than a year. Thanks, Sherrie
spickett4USA is offline   Reply With Quote
Old 10-24-2004, 09:54 AM   #9
the_lost_lenore
Registered User
 
the_lost_lenore's Avatar
 
Join Date: Oct 2004
Location: Raleigh, NC
Posts: 14
I'm taking minocycline for my acne. It seems to keep the UTIs away too, which is great. I have no side effects from this medicine.
__________________
Miranda
the_lost_lenore is offline   Reply With Quote
Old 11-13-2004, 03:01 PM   #10
since1868
Registered User
 
Join Date: Sep 2004
Location: VA
Posts: 8
I have to take Keflex every day for prevention of bladder infections on top of the Elmiron. The Keflex does not bother me. It is a good all purpose antibiotic.
since1868 is offline   Reply With Quote
Old 12-05-2004, 09:08 AM   #11
songbird7
ICN Member
 
songbird7's Avatar
 
Join Date: Mar 2000
Location: California
Posts: 521
Levaquin - Ouch! But it worked. I seldom get UTI, but did recently. Since the Sulfa type antibiotics hurt last time and Macrobid is out of the question I tried Levaquin. Potent thing. It knocked out the UTI in 2 days and almost me along with it. Big time pain as my bladder did the IC thing. Had to take pain med. I don't know what's worse, taking the Septra type antibiotic for 5 days longer and dealing with that or the intensity of the 2 days I was on the Levaquin. And, if I choose Levaquin again it's going to cost a co pay out of pocket of $50 on top of my regular meds. Ouch in the pocketbook. So, still looking for ideas. Not that I'm expecting another UTI but still open to hear which ones don't flare the IC. I thiink Cipro hurt the IC some years ago. I just pray I don't get UTI's and care and pray for everyone here.
With hugs,
Songbird
__________________
If you keep a green bough in your heart
the singing bird will come.
http://homepage.mac.com/chirper
songbird7 is offline   Reply With Quote
Old 12-06-2004, 01:43 PM   #12
Katrina
Support Leader
 
Katrina's Avatar
 
Join Date: Aug 2001
Location: Green Bay WI
Posts: 9,738
Songbird, I so feel for you, my life would be pure *&%# if antibiotics did that to me. Thank you for letting us know how you do. Hopefully your experiences of this pain will help prevent someone else's pain. I so wish I could help you more now.
__________________
Faith, Hope, and Love,
Katrina

~I’m a newbie angel~Moderator of Alternatives, Antibiotics, Flare Coping Strategies, and Yeast Infections
I believe God is using me, even now with my health so bad. He uses me for God. Things I gain from all my suffering are meant to help others. I hope I can help you too. Email me or start a chat if you like my help or anything. I CARE!Illnesses: IC,IBS, IBD, GERD, PFD, Epilepsy, Endo, Allergies, RLM,Rapid heart beat, low blood pressure,Gastritis,Gall stones,Tendonitis,migraines, Shingles, Prolapsed pouch,ext. fatigue (current problem) My hope story http://www.ic-network.com/patientstories/katrina.html
http://get-me.to/mandk http://www.mandksales.com
IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
http://www.myspace.com/Kat_671 or find me on facebook http://www.facebook.com/kat671?ref=profile
Be the Miracle! & Pay it Forward!

carmelann@charter.net please contact me...I am here to help!http://health.groups.yahoo.com/group/ICinWI/ if your from WI please contact me!
http://icandme.9.forumer.com/
Katrina is offline   Reply With Quote
Old 12-06-2004, 03:34 PM   #13
songbird7
ICN Member
 
songbird7's Avatar
 
Join Date: Mar 2000
Location: California
Posts: 521
Katrina,
Thank you for your warm wishes. Thank you everyone who answered me. Not everyone is alike. Someone else might take the very same antibiotic and feel fine. I pray I don't have any more UTI's. IC is quite enough to handle.
((((( )))))
Songbird
__________________
If you keep a green bough in your heart
the singing bird will come.
http://homepage.mac.com/chirper
songbird7 is offline   Reply With Quote
Reply


Currently Active Users Viewing This Thread: 1 (0 members and 1 guests)
 
Thread Tools
Rate This Thread
Rate This Thread:

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Forum Jump

Similar Threads
Thread Thread Starter Forum Replies Last Post
Antibiotics for acne blackcat Antibiotics For Interstitial Cystitis Are Controversial 5 10-08-2004 07:55 AM
Are flares only caused by things you eat??? tommygal Help! I'm in an interstitial cystitis flare! 9 09-05-2004 02:25 PM
anti-inflammatory effects of antibiotics dminton Antibiotics For Interstitial Cystitis Are Controversial 2 07-21-2004 04:06 AM
Flares From Antibiotics, any IC Friendly Ones? songbird7 Symptoms of IC 3 03-21-2004 05:25 PM
antibiotics and inflammation tacoma58 Share Your Interstitial Cystitis Story 2 03-08-2004 12:51 AM



All times are GMT -11. The time now is 11:04 PM.


Powered by vBulletin® Version 3.8.1
Copyright ©2000 - 2009, Jelsoft Enterprises Ltd.
Copyright 2009 - IC Network