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11-27-2009, 11:51 AM
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#1
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ICN Member
Join Date: Jan 2008
Posts: 41
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I thought I'd just share this
I was just thinking last night about how much pain and hell we do have, then on top all the crap we get from others who judge us when we do things to take care of ourselves. Tina, and lots others, your posts have been on my mind alot. especially how we feel attacked and have to excuse ourselves for the meds we take or put up with the excuses people give us when they judge us without understanding us. I wrote this last night before reading any posts, and the timing seems to hit a big chord to me, so I thought I'd share this and hope that you guys like it. thanks for giving this a second to read and big hugs to you all this weekend.
bromwynn
the bottle and me.
I look at the bottle of medicene, it's that time of night
the house is silent, my children and husband asleep, where I should be too.
Instead I'm staring at the bottle that sits high up on its' shelf. I'm afraid again.
I hate taking them. But I hate being alone with the pain worse. I war within myself:
do I take them or try to put off the pain longer? I try to do the relaxation breathing,
I try to mediate,I try to imagine myself in a "happy place" somewhere warm and
beautiful, the breeze teasing my hair as I walk hand in hand with my love, and listen
to the laughter of our children echo back to us. I try so hard.
If you only knew how I hate having to take this and every other medience this disease
calls for. I don't want them, I want to live without it all. In my head I know, take the
pill and take care of myself, I need my strength for tomorrow. Take it and take care of me.
Only I know others think otherwise, that I take it for uses I can't fathom chaining myself to.
They think its all for attention, for sympathy,for the excuse.
Let them think it.
I wouldn't curse anyone with this. I wouldn't condemn them for only doing what they have to,
to live with, to survive.
So I stare at the pill that's in my hand now. I'll take my medicene and stay strong, stay on top
of this. I will get through this night, this moment. I will stand tall and unflinching when they make
their claims. I know the truth, and I don't have to excuse myself for anything.
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11-27-2009, 12:18 PM
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#2
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Support Leader
Join Date: Nov 2006
Location: Louisiana
Posts: 8,814
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((((hugs)))) I TRULY understand...I live by this:
ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!
__________________
Hugs
Ronda
ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!
Link to Patient Handbook:
http://www.ic-network.com/handbook/
Diet Reference Sheet:
http://www.ic-network.com/diet/icndi...tsheet0909.pdf
Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring
Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure
Meds I have Tried:
Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
Lexapro< Bad reaction to this med!
Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..
Dx With IC in Nov 2006 with Hydro/Cysto
Hydro/Cysto Caused Bladder to Rupture.
Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.
ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
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11-27-2009, 06:02 PM
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#3
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ICN Member
Join Date: Jan 2004
Location: Riverside County
Posts: 1,209
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meds
OMG I feel the same way. I wish I could translate this to my mom in spanish, you have done a wonderful job. Thanks for sharing.
__________________
Blessings,
Ruth
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11-28-2009, 02:54 AM
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#4
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ICN Member
Join Date: Jul 2008
Posts: 882
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Bravo!! You hit the nail on the head.
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11-28-2009, 04:05 AM
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#5
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ICN Member
Join Date: Jul 2004
Location: dayton oh
Posts: 936
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Yep, I understand completely!!
IC is a hard road to travel. Always a lot of bumps. Wether they come from the outside or inside. I know exactly where you are coming from!!!
hugs and blessings
__________________
MARY
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11-28-2009, 05:43 AM
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#6
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ICN Member
Join Date: Sep 2009
Location: Indiana
Posts: 372
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Thanks - having just that kind of day today.
__________________
IBS diagnosed - 1987
Severe IC diagnosed - July 10, 2009 (Sister diagnosed 2004)
IC/IBS WILL NOT DEFEAT ME OR DEFINE ME
Allergic to: Penicillan, Imitrex, Levbid, Loestrin, Detrol, Cipro, Morphine, Dilaudid, Pryridium Plus, Fentyl,Toradol, Neurontin, Zoloft, Amitriptyline, , Elmiron, Atarax, Levaquin and most generics.
Tried: Dye Free Benadryl (nausea) and Prelief
Trying: Valium Suppositories, Vitamin E Suppositories, Estrace Cream, Marcaine Home Instills and Lutera.
Emergency Flare Meds: Percocet (pain management), Valium (anxiety management) and Pyridium (before installations).
What's working: Cystoprotek, Shaklee Pro/Prebiotics and DH Aloe Vera.
* Stay with me God the night is dark, the night is cold. My little spark of courage dies. The night is long. Be with me God and make me strong.
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11-28-2009, 06:30 PM
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#7
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ICN Member
Join Date: Mar 2006
Location: East Central IL (near Champaign and Bloomington)
Posts: 1,539
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Thank you for sharing this!
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12-01-2009, 03:14 PM
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#8
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ICN Member
Join Date: Sep 2009
Location: Wisconsin
Posts: 112
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Bromwynn,
Very well said! You expressed what so many of us feel... Thank you for sharing it.
dawn
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