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09-26-2009, 08:12 AM
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#1
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ICN Member
Join Date: Apr 2002
Location: Philadelphia
Posts: 75
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Helped by Elavil?
For those of you who have been helped by Elavil for frequency and urgency how long before you noticed a reduction of symptoms? I could not tolerate it before but now seem to be able to (10 mgs. at night). I think it is helping but it may be my imagination. Thanks. Ratchada
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09-26-2009, 01:53 PM
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#2
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Support Volunteer
Join Date: Dec 2003
Location: California
Posts: 6,008
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I noticed a difference the very first night I took it, I went from voiding every 15 minutes around the clock to sleeping 4 hours the first night I took it. I was so happy to get 4 hours sleep I cried. Within a week, I was able to sleep 7 hours a night & within a month my voiding went from 60x a day down to a more manageable 20.
This was on 10mg. When I went up to 20 mg, my IC improved even more. I still need instillations, but Elavil has been a mainstay of my treatment plan.
Good luck, I hope you feel better & better,
__________________
Kadi
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I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
------------------------------------------------------
This week's favorite one-liner:
"I love deadlines. I especially like the whooshing sound they make as they go flying by...
New second favorite:
"And which dwarf are you?."
Adding a third because I'm just so darn easily amused...
"Eagles may soar, but weasels aren't sucked into jet engines."
Current treatments:
-IC diet
-Elavil 20mg at night
-Ditropan 5mg at night
-Continuous use birth control pills (4-5 periods/year)
-Heparin/Marcaine/Sodium Bicarb home instills every night & sometimes in the morning also
-Pyridium if needed, usually once a week or so
-1 Darvocet at bedtime,
-Flexeril 10mg at bedtime
-Dye Free Benadryl for allergies occasionally
-Pelvic floor & myofascial release (external only) physical therapy for 8 weeks, then home exercise program...
-Managing stress
-Fur therapy: Hugging the cat!
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09-26-2009, 04:18 PM
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#3
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ICN Member
Join Date: Sep 2008
Location: Upstate NY
Posts: 121
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I am on 50 mg and sleep great now! Love it, I was on 25 for awhile but wasnt enough
__________________
[i]Dx: 10/08
Meds
Elmiron 3x a day
Prosed 3x a day
birth control to try and stop period so no pain, (even though my tubes are tied)
Effexor XR 1x a day, 75mg
Elavil 50mg before bed
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09-26-2009, 05:32 PM
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#4
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ICN Member
Join Date: Oct 2008
Location: Pennsylvania
Posts: 878
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I noticed a big improvement within a week on 10 mg., & started sleeping through the night the second week I went up to 20 mg.
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09-27-2009, 03:13 AM
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#5
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ICN Member
Join Date: Apr 2002
Location: Philadelphia
Posts: 75
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Thanks for your replies. In addition to sleeping better did the sensation (urgency) become less intense? Thanks, R.
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09-27-2009, 04:39 AM
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#6
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Support Volunteer
Join Date: Dec 2003
Location: California
Posts: 6,008
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Yes
__________________
Kadi
-------------------------------------------------------------
I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
------------------------------------------------------
This week's favorite one-liner:
"I love deadlines. I especially like the whooshing sound they make as they go flying by...
New second favorite:
"And which dwarf are you?."
Adding a third because I'm just so darn easily amused...
"Eagles may soar, but weasels aren't sucked into jet engines."
Current treatments:
-IC diet
-Elavil 20mg at night
-Ditropan 5mg at night
-Continuous use birth control pills (4-5 periods/year)
-Heparin/Marcaine/Sodium Bicarb home instills every night & sometimes in the morning also
-Pyridium if needed, usually once a week or so
-1 Darvocet at bedtime,
-Flexeril 10mg at bedtime
-Dye Free Benadryl for allergies occasionally
-Pelvic floor & myofascial release (external only) physical therapy for 8 weeks, then home exercise program...
-Managing stress
-Fur therapy: Hugging the cat!
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09-27-2009, 07:13 AM
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#7
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ICN Member
Join Date: Sep 2008
Location: Upstate NY
Posts: 121
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It only seem to help me with sleeping
__________________
[i]Dx: 10/08
Meds
Elmiron 3x a day
Prosed 3x a day
birth control to try and stop period so no pain, (even though my tubes are tied)
Effexor XR 1x a day, 75mg
Elavil 50mg before bed
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09-28-2009, 07:29 AM
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#8
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ICN Member
Join Date: Jan 2003
Location: Hutto, Texas (30 miles or so outside of Austin)
Posts: 3,182
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I think it took me a week to notice a difference. I still don't sleep thru the night - probably get up at least once a night sometimes 2 times. I was actually prescribe this for headaches which it helps a great deal ( if I don't take it I found out that after 2 days my headaches come roaring back)
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10-02-2009, 06:39 PM
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#9
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ICN Member
Join Date: Jul 2009
Posts: 36
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That very first night I took it, I noticed a decrease in my pain and urgency. I really don't have that much frequency. I only take 10mg, but I am only 110 lbs. so that might be all that I need for my weight. Every day that I've been on it, I've noticed a gradual decrease in my symptoms. It's now been a week and a half on it, and I feel quite a drastic difference in my symptoms. A GREAT drastic difference. However, along with the Elavil, I just started Urelle which is an antispasmodic mixed with other things that help other IC symptoms. I also increased my Elmiron, so I don't know if it's the combo of these three meds, or if Elavil is the one that made the drastic difference. But, what I do know (like I said earlier) that when I popped that first pill that very first night. I noticed a decrease in my urgency and pain symptoms and it's been getting gradually better every day. Hope this helped.
__________________
IC symptoms began July 10, 2009. They came out of nowhere. I have NEVER had any urinary problems in my life! (except for two UTI's when I was a teenager)
Diagnosed with IC via cystoscopy/hydrodistention under anesthesia September 11, 2009.
Current Treatments:
Elmiron (200 mg twice daily)-I started out taking 100 mg twice daily. One month later I saw my new urologist who ended up officially diagnosing me, and he has increased the dosage.
Amitriptyline (Elavil) (10mg once daily)
Urelle (twice daily)
Strict IC Diet- I've completely eliminated EVERYTHING from my diet, and I'm only eating a handful of stuff, for now, on the "Eat with Confidence" section of the IC Diet list.
Gluten Free Diet- I don't have Celiac disease, but my Uro has seen new research that food with gluten in them have some sort of effect on IC. I haven't read this anywhere yet, but I'm going to follow doctor's orders!
Past Treatments:
Enablex (15 mg once daily)- After two months of being on it, I never really felt it made a significant difference, so both my Urologist and I didn't feel it was necessary to stay on it.
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10-03-2009, 04:07 PM
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#10
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ICN Member
Join Date: Dec 2006
Location: Dartmouth, NS
Posts: 205
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Elavil helped me most out of many drugs tried...I started on a very low dose in conjunction with an antispasmodic and could not believe how relaxed it made me - I could actually sleep!! Took a while to get the dose right for me as I started it just before I got pregnant, so about 8-10 weeks until it was REALLY noticeable once the dose was correct for me..
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