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08-25-2009, 05:18 AM
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#1
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ICN Member
Join Date: Oct 2008
Location: Austin, TX
Posts: 253
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What do ya'll think is causing the Fluid Retention
I started the Elmiron at the same time that I started the Hydroxyzine and that was 3 weeks ago as of this upcoming Friday. I have gained about 6 lbs in this this time frame. My weight was at 143 a week ago, then on Sunday it was 140, and here it is just 3 days later and it is 146. I know for a fact it is one of the meds and one of them is causing fluid retention. I am trying to figure out which one of these 2 is the culprit. Which do ya'll think? Any advice, words of wisdom, etc is very much appreciated!
Is Elmiron known to cause water retention or is Hydroxyzine?
__________________
As I think, so I shall be....
I have had IC for nearly 2.5 years now. It has taught me to never take my health for granted ever again, I often daydream of life before this demon  . When I feel good, I embrace it with all of my heart! I pray  that someday I will feel 100% again, we all deserve it! 
Medications:
Cystoprotek 2 twice per day (as of 8/9/09)
Vicodin (as needed, so daily!)
Percocet (at night)
Klonopin (1 mg at night)
D. Ribbose (each morning)
Thyroid med for low thyroid
Cortisol med for low cortisol
leuko-stim
pregenolone
probiotic (femdophilus)
D' Mannose
Gabapentin (400 mg at night)
Melatonin (3 mg at night)
Vitamin D (2000)
Diagnosis:
IC, Fibro, Hypothyroid, Mycoplasma Infection (high count detected in blood)
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08-25-2009, 06:48 AM
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#2
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ICN Member
Join Date: Oct 2008
Location: Austin, TX
Posts: 253
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Please chime in on this one...
I am getting so frantic about what is causing this. Please see post above.
__________________
As I think, so I shall be....
I have had IC for nearly 2.5 years now. It has taught me to never take my health for granted ever again, I often daydream of life before this demon . When I feel good, I embrace it with all of my heart! I pray that someday I will feel 100% again, we all deserve it!
Medications:
Cystoprotek 2 twice per day (as of 8/9/09)
Vicodin (as needed, so daily!)
Percocet (at night)
Klonopin (1 mg at night)
D. Ribbose (each morning)
Thyroid med for low thyroid
Cortisol med for low cortisol
leuko-stim
pregenolone
probiotic (femdophilus)
D' Mannose
Gabapentin (400 mg at night)
Melatonin (3 mg at night)
Vitamin D (2000)
Diagnosis:
IC, Fibro, Hypothyroid, Mycoplasma Infection (high count detected in blood)
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08-25-2009, 08:06 AM
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#3
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ICN Member
Join Date: Nov 2008
Location: Austin, TX
Posts: 63
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I can chime in by saying all the time I took Elmiron (200mg/day for almost a year) I didn't have any fluid retention issues with it at all. I've never taken antihistamines so I can't speak to those. Hope that helps! 
__________________
Namasté,
Jen
"Just when the caterpillar thought the world was over... it became a butterfly."
* Diagnosed w/IBS in 1989
* Diagnosed w/IC on 11/14/08
* Tested positive for Celiac Disease on 11/6/09; awaiting lower bowel biopsy on 12/2/09
* Labs taken to test for Fibromyalgia on 11/9/09; awaiting test results
IC DIET 24/7 - No gluten, no dairy, no sugar, no caffeine, no alcohol
Current Vitamins/Supplements:
Cal-Mag-Zinc; Vit D; Sublingual B12; Gentle Iron; Flaxseed Oil
Current Treatments:
Interstim Implant Trial 3/17/09; Perm. 3/31/09; Revision 5/12/09; 2nd Revision 8/18/09; 3rd Revision 9/8/09; 4th Revision scheduled for 11/20/09
Physical Therapy 1x/week - Myofascial Release/Trigger Point/Pelvic Floor/TENS
Current Meds:
Uroxatral - 10mg 1x/day
Dexedrine - 10mg 1x/day
Oxycontin - 10mg 3x/day
Percocet - 5mg 2x/day
Topamax - 25mg 3x/day
Tramadol - 50mg 2x/day (as needed)
Continuous birth control (to limit cycle flares)
Discontinued Meds/Treatments:
Elmiron, Urelle, Detrol, Hydroxyzine, Prosed, Elavil, Tofranil, Voltaren, Flomax, Neurontin, Norco, Darvocet, Lyrica, Fentanyl patch; Acupuncture; Rescue Instillations
Things That Help Me Forget My Pain:
Henry the Heating Pad
Warm Baths
My loving husband & stepson
My dear friends
Cuddling w/my beagle Hazel
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08-25-2009, 08:42 AM
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#4
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ICN Member
Join Date: Oct 2008
Location: Austin, TX
Posts: 253
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I am having a feeling it has to be the Hydroxyzine
I am going to stop taking it as of tonight. My primary reason for taking it (50 mg per night) is to go to sleep and at first it helped a tad with that, and now it does not help at all.
__________________
As I think, so I shall be....
I have had IC for nearly 2.5 years now. It has taught me to never take my health for granted ever again, I often daydream of life before this demon . When I feel good, I embrace it with all of my heart! I pray that someday I will feel 100% again, we all deserve it!
Medications:
Cystoprotek 2 twice per day (as of 8/9/09)
Vicodin (as needed, so daily!)
Percocet (at night)
Klonopin (1 mg at night)
D. Ribbose (each morning)
Thyroid med for low thyroid
Cortisol med for low cortisol
leuko-stim
pregenolone
probiotic (femdophilus)
D' Mannose
Gabapentin (400 mg at night)
Melatonin (3 mg at night)
Vitamin D (2000)
Diagnosis:
IC, Fibro, Hypothyroid, Mycoplasma Infection (high count detected in blood)
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08-25-2009, 05:36 PM
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#5
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ICN Member
Join Date: Sep 2004
Location: east coast, USA
Posts: 3,895
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When in doubt about a medication and possible side effects, call your rx'ing pharmacy.
__________________
(\__/)
(o.O )
(> < ) This is Bunny. He's on his way to world domination.
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08-25-2009, 05:53 PM
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#6
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Support Leader
Join Date: Mar 2000
Location: Clarkston, Michigan
Posts: 2,123
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I agree...check with the pharmacy. I take Atarax and have edema in my legs but I don't believe it is related. We have to have the head of our bed raised because I have GERD and the doc said that is the reason.
Makes me wonder..........
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08-26-2009, 03:40 AM
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#7
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ICN Staff
Join Date: Mar 2000
Location: Junction City, Oregon, USA
Posts: 26,114
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You should also be looking at your diet. I know if I eat many "prepared" foods, such as canned soup, I retain fluid from the sodium content.
We've slept with the head of our bed elevated for many years because my hubby has a hiatus hernia --- at first it was not fun --- after the first night we woke up at the foot of the bed but now if I lay flat I feel strange.
Donna
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08-26-2009, 09:14 PM
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#8
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ICN Member
Join Date: Jan 2009
Posts: 673
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Could it be anything to do with your cycle? I haven't heard about fluid retention on either of these, but anything is possible.
__________________
33 Years old, live in Northern California
Getting married to a wonderful guy in August 2010
Pelvic pain began July 2008. Urinary frequency began in November of 2008.
Cystoscopy showed evidence of glomerulations on the bladder.
Main symptoms: Frequency mostly. Also some mild to moderate pain. Completed 8 months of physical therapy.
Currently on: IC Diet, Elavil (30mg), Elmiron since June '09 (500mg/day), Hydroxyzine (50mg), Cystoprotek, DH Aloe, Alesse Birth Control to regulate hormones, and Flowmax. I also just started PTNS. I have done 4 of 12 weekly sessions.
Previously tried and quit: one series of six instillations, Neurontin, Ditropan, Oxytrol, electric stimulation to the pelvic floor.
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08-27-2009, 03:38 AM
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#9
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ICN Member
Join Date: Oct 2008
Location: Austin, TX
Posts: 253
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Unfortunately no
I do not start my period for another 3 weeks. It is definately one of the meds. I quit the hydroxyzine 2 days ago and have already lost 2 lbs. I am pretty sure that was the culprit.
__________________
As I think, so I shall be....
I have had IC for nearly 2.5 years now. It has taught me to never take my health for granted ever again, I often daydream of life before this demon . When I feel good, I embrace it with all of my heart! I pray that someday I will feel 100% again, we all deserve it!
Medications:
Cystoprotek 2 twice per day (as of 8/9/09)
Vicodin (as needed, so daily!)
Percocet (at night)
Klonopin (1 mg at night)
D. Ribbose (each morning)
Thyroid med for low thyroid
Cortisol med for low cortisol
leuko-stim
pregenolone
probiotic (femdophilus)
D' Mannose
Gabapentin (400 mg at night)
Melatonin (3 mg at night)
Vitamin D (2000)
Diagnosis:
IC, Fibro, Hypothyroid, Mycoplasma Infection (high count detected in blood)
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