ICN Support Forum & Message Boards
Sign up for our free ICN E-Newsletters!
Email:
- Take a moment each day to say "I am proud of myself." YOU are working VERY hard to live your life with IC with dignity and respect. Have you rewarded yourself recently??
- YOUR WORDS have the power to inspire or discourage other patients. Whenever possible, write ENCOURAGING messages.

Our Sponsors:
Cystoprotek
Prelief
CystaQ
BladderQ
Lo Fric Catheters


NEW! Fall 2009 Now Available By Mail or Email




Winter 2010 Catalog Download A Copy




Heal Pelvic Pain


Klean Kanteen Stainless Steel Water Bottles


Please support this forum by making purchases in our shop!
ICN Subscriptions
ICN Contributions
Alternative Supplements
Books about IC
IC Diet Resources
Cystoprotek
CystaQ
Prelief
IC Friendly Beverages
Low Acid Coffees
Herbal Teas
Dry Mouth Products
IC Friendly Foods
Dr. Oetkers Mixes
Fiber & Laxatives
Pilates For Pelvic Pain
Feminine Hygiene
Chair Cushions
IBS Products
Men's Resources
Pelvic Pain Resources
Romance& Sex
Urine Test Kits
Very Private
Basis Soap
Water Bottles


Google ads help us generate revenue to keep this support site running. We strongly encourage you to be cautious consumers. The ICN does not endorse the products or services listed in these ads.


NOW AVAILABLE!



Go Back   Interstitial Cystitis Network Support Forum > Miscellaneous Treatments For Interstitial Cystitis > Drug Costs & Expenses
Register Blogs FAQ Calendar Mark Forums Read

Closed Thread
 
Thread Tools Rate Thread
Old 07-27-2009, 09:50 AM   #1
JennyBird
ICN Member
 
JennyBird's Avatar
 
Join Date: May 2007
Location: New Jersey
Posts: 97
Healthcare Reform??

I've been hearing so much in the news recently about Obama's plan to reform healtcare, and the fact that the government will have control over when a patient gets treated for chronic conditions. I have insurance through work, and it's not prefect, but it's been good with my IC treatments. First, I'm worried about my company dropping my health insurance if Obama passes the healthcare reform since there is no reason for the company to keep paying for health benefits if the current bill is passed. Second, I'm also worried about being able to get care when i need it, (ie bladder instills) if the government takes over healthcare. I can't take Elmiron due to a serious side effect, and I depend on my instills when I flare up. I realize IC isn't considered a life-threatening illness...but delays on my IC treatment, etc... will make my life (and the lives of many IC'ers) miserable.

Does anyone know how this new heathcare reform may affect how our IC is treated if the bill passes as is? I realize the senate/house is still debating this and changing the bill, but I'm VERY worried about what this means for IC'ers and my healthcare. Anyone have any idea?
JennyBird is offline  
Old 07-27-2009, 10:39 AM   #2
ICNDonna
ICN Staff
 
ICNDonna's Avatar
 
Join Date: Mar 2000
Location: Junction City, Oregon, USA
Posts: 26,114
Blog Entries: 1
Health care reform is still in the planning stage. Hopefully there will be a plan come out that will not only allow those of us who are fortunate enough to have excellent (though expensive) health care will be able to continue as they are now --- and hopefully those who are without insurance and can't afford or are not eligible for coverate --- will also be able to have health care.

Let's all stay hopeful that a plan will come that will guarantee that everyone will be able to have basic health care.

Donna
__________________
Have you checked the ICN Shop?
http://www.icnsales.com for US & Canada
http://www.icnshop.com for all others

Patient Handbook: http://www.ic-network.com/handbook

Diet list: http://www.ic-network.com/diet/2009icdietlist.pdf

You'll find my story at: http://www.ic-network.com/patientstories/donna.html

I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

Anyone who says something is foolproof hasn't met a determined fool
.....My Meggie.....
ICNDonna is offline  
Old 07-27-2009, 01:17 PM   #3
dyno
Support Leader
 
dyno's Avatar
 
Join Date: Jun 2002
Location: Iowa
Posts: 3,347
Blog Entries: 3
I agree that there is much to be worked out with the Reform bill but something needs to change. I am one of millions without insurance. I am self employed and simply can't afford it. Right now even if I could my IC wouldn't be covered because it would be considered a pre existing condition.

I have to do something in this next year, it scares me to death to be without insurance but I have simply not found an option I can afford yet.
__________________
Jolene

"Life is what happens when you are making other plans" John Lennon

The IC Handbook: http://www.ic-network.com/handbook/

The IC Diet Cheat Sheet http://www.ic-network.com/diet/dietcheatsheet.html

Here is a link to my photo website. I make and sell crafts and will be adding more pictures, so keep checking back to see if anything is new. Contact me if interested in anything. http://s918.photobucket.com/home/joscrafts




Newbie Angel...I will be happy to answer any questions or just listen. Email me at joleneb300@iowatelecom.net

"IC Angel Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you."
dyno is offline  
Old 07-28-2009, 11:21 AM   #4
JennyBird
ICN Member
 
JennyBird's Avatar
 
Join Date: May 2007
Location: New Jersey
Posts: 97
I agree that something needs to change, so people who are not insured can have affordable healthcare available. But socialized healthcare scares me...with good reason. I just hope the healthcare reform isn't passed hastily just to get it passed, and they work out something that's really going to benefit everyone.
JennyBird is offline  
Old 07-30-2009, 02:44 PM   #5
snowgirl
ICN Member
 
snowgirl's Avatar
 
Join Date: May 2001
Posts: 1,625
they the House need to take their time looking over this 1000page health care reform. So far no indications of what it entails other then people making over 250k a year would help pay for it.
It would avoid duplication of services is only thing I get from that speech.
Try to do something for medicare donut hole gap
Cobra- so those out of work don't have to pay such high premiums - Obama passed that already. Yes right after I just paid my 19,000 out of pocket Cobra payments
Medicare it could effect medicare pt's
No one knows yet what the plan entails details etc too soon.
They hope to have it done ready October. It could effect hosp business and I could see some more potential lay offs there.
too soon to say - but every american must have health insurance!
snowgirl is offline  
Old 08-08-2009, 11:45 PM   #6
justice4j
No longer active
 
Join Date: Jul 2007
Posts: 647
Health Care Reform

45-47 million Americans are w/o insurance. The estimates I've read say that 1:4 Americans is underinsured-- almost worse b/c it's harder to get help. The definition of underinsured is 20% of one's income spent on health care.

We have the HIGHEST prices in the world for medications. NOw why is that? We rank 37th in the world in terms of our health care system access, afforadbility -- WHAT AFFORDABILITY???????

I feel SO bad for anyone here who cannot afford Elmiron and needs it. Someone correct me if I'm wrong here, but I believe I read that specialty drugs like Elmiron NEVER COME OFF PATENT!!?? ERRRRRRRRRRRRRR

Last edited by ICNDonna; 08-09-2009 at 02:18 AM. Reason: This is a fine line, but political discussions are not allowed here.
justice4j is offline  
Old 08-09-2009, 02:24 AM   #7
ICNDonna
ICN Staff
 
ICNDonna's Avatar
 
Join Date: Mar 2000
Location: Junction City, Oregon, USA
Posts: 26,114
Blog Entries: 1
I am closing this thread because it has become political, which is not allowed on these forums.

And the patent for Elmiron expires on January 19, 2010.

Donna
__________________
Have you checked the ICN Shop?
http://www.icnsales.com for US & Canada
http://www.icnshop.com for all others

Patient Handbook: http://www.ic-network.com/handbook

Diet list: http://www.ic-network.com/diet/2009icdietlist.pdf

You'll find my story at: http://www.ic-network.com/patientstories/donna.html

I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

Anyone who says something is foolproof hasn't met a determined fool
.....My Meggie.....
ICNDonna is offline  
Closed Thread


Currently Active Users Viewing This Thread: 1 (0 members and 1 guests)
 
Thread Tools
Rate This Thread
Rate This Thread:

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Forum Jump

Similar Threads
Thread Thread Starter Forum Replies Last Post
Buying Individual Insurance Problems?! glowstrz Drug Costs & Expenses 7 03-01-2008 11:30 PM
Speaking out for healthcare reform CA Senate! justice4j Share Your Interstitial Cystitis Story 2 01-19-2008 04:18 AM
CNA/YouTube re my Healthcare Story justice4j Share Your Interstitial Cystitis Story 5 01-09-2008 08:39 PM
Speaking out on IC and HEALTHCARE REFORM at Cardinal Mahony's Public Policy Breakfast justice4j Share Your Interstitial Cystitis Story 4 10-01-2007 08:58 AM
Speaking out on IC and HEALTHCARE REFORM at Cardinal Mahony's Public Policy Breakfast justice4j Share Your Interstitial Cystitis Story 0 09-29-2007 01:08 PM



All times are GMT -11. The time now is 04:32 AM.


Powered by vBulletin® Version 3.8.1
Copyright ©2000 - 2010, Jelsoft Enterprises Ltd.
Copyright 2009 - IC Network