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Go Back   Interstitial Cystitis Network Support Forum > The IC Diet > General Diet Questions
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Old 02-04-2007, 03:33 PM   #1
Hollyd
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Join Date: Jan 2007
Location: Melbourne, Australia
Posts: 122
So confused about diet!

okay, I'm new to this and I read the 5 basic foods you should avoid but I'm really confused about the "acidic" foods.

I assume acidic relates to ph and that a more alkaline diet should be eaten. Yet when I look at lists of alkaline and acid foods they contradict a lot of foods said to be too acidic for this disease. Are we avoiding foods that in and of themselves are acidic or ones that are "acid forming"?

Here's a list and a quote from a website I found:

"Although it might seem that citrus fruits would have an acidifying effect on the body, the citric acid they contain actually has an alkalinizing effect in the system.

Note that a food's acid or alkaline forming tendency in the body has nothing to do with the actual pH of the food itself. For example, lemons are very acidic, however the end products they produce after digestion and assimilation are very alkaline so, lemons are alkaline forming in the body. Likewise, meat will test alkaline before digestion, but it leaves very acidic residue in the body so, like nearly all animal products, meat is very acid forming."

http://home.bluegrass.net/~jclark/alkaline_foods.htm

That being said, this list says cheese is acid forming but not yogurt. Though in some of my reading here it says some people might not be able to eat either. That would have a lot of negative consequences on bones (i.e. osteoporosis). It also puts tomatoes on the alkaline side. Is it not the acidity of tomatoes that is the concern, but some other aspect?

I've read suggestions that say cut out everything that could be a problem when you're in a flare and slowly add back one thing at a time. I guess I'm not sure what to cut out.

Any help would be appreciated:-)

Holly
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Old 02-04-2007, 03:40 PM   #2
Roxie2007
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HI! Acidic foods.....food with acid are no-no's. Any night shade food...pototos, tomatos, peppers etc...are also no-no foods. Aged Cheeses can really bother the IC sufferer. Yogert is ok....it's not like reg. dairy products. Some times I don't totally understand the WHY? issue.....but use trial and error.....if it hurts...don't eat it! Chocolate, caffeine, carbonation (some people can drink carbonated drinks and some can't) I know this doesn't answer the why questions very well.....just know that these are all the list, and avoid them. Roxie
__________________

Double Spinal Cord Stimulator surgery 8/09
Unsuccessful MiniArc sling surgery 12/07
Dx'd Hypothyroid
Dx'd Chronic Axonal Neuropathy & Myopathy
June 2007
Dx'd IC May 2006 (after suffering for 25+ yrs!)
First Cysto 1979
First Hydro 1981 (Many treatments since then!)
Collagin"Durasphere" injections for urethra
Gall bladder surgery Aug. 2004
Gastric Bypass Dec. 2004
Dx'd: Barrett's Esphogus July 2004
Dx'd: Vaginal Atrophy 2005
Bladder surgery 2000
Dx'd: IBS 2000
Hysterectomy (fibroids) 1999
Laminectomy 1989
Dx'd: Degerative Disk Disorder 1989

For IC I use Elmiron, Elavil and Freeze dried Aloe Vera (it works likes Elmiron, but naturally)and Azo as needed. I also take Zegerid, Randitine for Barrett's Esophagus. (which causes me to have constant yeast infections!)I take Cymbalta for Neuopathy/Myopathy pain. I use the Climara patch for menopause symptoms. I'm on a very strict diet because of the IC, IBS and Gastric Bypass. I take Primal Defense Probiotics and whole food Iron.
I no longer have the awful urethral pain! I've been using MSM gel now for 4 mo. and haven't had a flare up or the urethra pain.....it's amazing stuff!!
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Old 02-04-2007, 03:47 PM   #3
kadi
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If you scroll down the page that contains the five worst IC offenders, you will find a 3-column list of foods, "foods that are usually ok", "foods that are sometimes ok", "foods that are usually problematic" for IC patients.

What worked well for me was to print out the list & eat only out of the "usually ok" column for 3 weeks, til my symptom level dropped. Then I reintroduced one by one foods from the middle column, checking after each one whether it increased my IC symptoms of frequency, urgency or pain. Eventually, I had a complete list of foods that work well for me. I kept it on the fridge til it became automatic for me. My parents also did this when my mom developed IC (about a year & a half after I did) & this helped my dad learn the diet for my mom, so he could cook for her & shop!

You might also consider purchasing the book, "Confident Choices". It's written by a dietician who also has IC (she's one of us!) & it's very comprehensive, gives sample menus & recipes too. You can buy it in the ICN shop, click the link for ICN shop at the top of the page & look for it in the books.

Good luck! I found the diet really reduces my symptoms. Though I do still need other treatments, following the diet is probably my #1 most effective way to manage IC (and there are no side effects, no expensive copays or insurance hassles!).

Hoping you are feeling better soon!
__________________
Kadi

-------------------------------------------------------------
I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
------------------------------------------------------

This week's favorite one-liner:
"I love deadlines. I especially like the whooshing sound they make as they go flying by...


New second favorite:
"And which dwarf are you?."

Adding a third because I'm just so darn easily amused...
"Eagles may soar, but weasels aren't sucked into jet engines."


Current treatments:
-IC diet
-Elavil 20mg at night
-Ditropan 5mg at night
-Continuous use birth control pills (4-5 periods/year)
-Heparin/Marcaine/Sodium Bicarb home instills every night & sometimes in the morning also
-Pyridium if needed, usually once a week or so
-1 Darvocet at bedtime,
-Flexeril 10mg at bedtime
-Dye Free Benadryl for allergies occasionally
-Pelvic floor & myofascial release (external only) physical therapy for 8 weeks, then home exercise program...
-Managing stress
-Fur therapy: Hugging the cat!
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Old 02-04-2007, 04:09 PM   #4
Hollyd
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Thanks to both of you:-)

woweee this is gonna be tricky because I already have fructose malabsorption and the best fruits for that are the citrus ones and I can't tolerate any wheat and am gluten-free as a result. I'm also a vegetarian. I don't know what I'm going to be able to eat!

Well, turning on the printer and gonna get rolling on it. One step at a time, one day at a time I guess.

Thanks for being these (supposed to see the little angel icon LOL)

Holly

Last edited by ICNDonna; 02-04-2007 at 05:24 PM.
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Old 02-04-2007, 05:25 PM   #5
ICNDonna
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I try not to analyze foods. If something bothers me, I avoid it --- I used to go crazy trying to figure out why some specific thing might be a problem when other things are not.

Donna
P.S. I edited your post so the little angel shows.
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Diet list: http://www.ic-network.com/diet/2009icdietlist.pdf

You'll find my story at: http://www.ic-network.com/patientstories/donna.html

I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

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Old 02-04-2007, 11:24 PM   #6
Wolfe
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I've been living with IC for 17 years now, and I'm starting to get really worried about nutrition.

It has been that long since I've taken a C vitamin, any B vitamins. I haven't had a glass of orange juice in almost 2 years. I miss it! But mostly I'm concerned that my body might be missing lots of things it needs if I avoid all the foods that bother me. And taking vitamins is like pouring acid straight into my bladder!

It seems to me that injectible vitamins would do the same thing -- eventually make their way through my urinary tract. I've seen so much about the IC diet and what to avoid for the sake of not flaring, but I haven't seen anything at all about maintaining nutrition. Can anybody here point me in the right direction? Thanks!
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HUGS,
July Wolfe

DIAGNOSES: (All in 1990 or before)
All the "Fibro Five": Fibromyalgia, IC
(but IBS, Endometriosis and CFS now all dormant).
MEDS:
Been on 100 mg. x3 Elmiron off and on for 17 years
Tramadol (pain) 50 mg. every 6 hours
Skelaxin (muscle relaxer) 800 mg. x2 daily
Imipramine (generic for Tofranil) 50 mg.
Tapering off Ambien
Back on Estrace after 3 years off (thank God!)
Am very faithful to Prelief
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Old 02-05-2007, 02:18 AM   #7
Berkshire Road
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Other food sources of vitamin C are broccoli, bananas, avocados, pears, apples, some berries, kiwifruit, most melons, green peppers, brussels sprouts -- it all depends on what you can tolerate. B vitamins are in leafy green vegetables. Vitamin A is in eggs, milk, sweet potatos, and spinach. Vitamin D is best absorbed from the sun; spend at least 15 minutes outside each day if you can. Vitamin E is in whole grains and leafy green vegetables.

So it all depends on what you can tolerate. You can have a doctor run blood tests for nutritional deficiencies if you're really worried.
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Je vous souhaite de la joie, de la bonne santée, et tout ce qu'il y a de bon dans la vie.
Wishing you happiness and good health, and all the best out of life.

Peace, Carolyn
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Old 02-05-2007, 11:48 AM   #8
Hollyd
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Quote:
Originally Posted by ICNDonna
I try not to analyze foods. If something bothers me, I avoid it --- I used to go crazy trying to figure out why some specific thing might be a problem when other things are not.

Donna
P.S. I edited your post so the little angel shows.
Thanks for the angel fix up LOL. I'm trying the drop down smiley menu now. Yesterday I clicked on it from the right. Must be doing something wrong! Maybe it's all the painkillers taken the night before LOL! I'm surprised I can type! :-)
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Old 02-05-2007, 11:51 AM   #9
kadi
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In terms of trying to maintain nutrition, you can look at the book, "Confident Choices". It's written by a nutritionist who has IC herself. You can buy it in the ICN shop, link at the top of the page.
__________________
Kadi

-------------------------------------------------------------
I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
------------------------------------------------------

This week's favorite one-liner:
"I love deadlines. I especially like the whooshing sound they make as they go flying by...


New second favorite:
"And which dwarf are you?."

Adding a third because I'm just so darn easily amused...
"Eagles may soar, but weasels aren't sucked into jet engines."


Current treatments:
-IC diet
-Elavil 20mg at night
-Ditropan 5mg at night
-Continuous use birth control pills (4-5 periods/year)
-Heparin/Marcaine/Sodium Bicarb home instills every night & sometimes in the morning also
-Pyridium if needed, usually once a week or so
-1 Darvocet at bedtime,
-Flexeril 10mg at bedtime
-Dye Free Benadryl for allergies occasionally
-Pelvic floor & myofascial release (external only) physical therapy for 8 weeks, then home exercise program...
-Managing stress
-Fur therapy: Hugging the cat!
kadi is offline   Reply With Quote
Old 02-05-2007, 10:44 PM   #10
Wolfe
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Thanks for the nutrition info!
So many of those things are on the "no" list my uro gave me. He and I seriously looked at the list and decided that maybe boiled eggs and water were the only safe foods!

I do try to eat really healthy. And for those who haven't tried Prelief (see the Prelief thread), it really does help prevent damage and/or a flare when you're eating or drinking something that might "hurt."
__________________

HUGS,
July Wolfe

DIAGNOSES: (All in 1990 or before)
All the "Fibro Five": Fibromyalgia, IC
(but IBS, Endometriosis and CFS now all dormant).
MEDS:
Been on 100 mg. x3 Elmiron off and on for 17 years
Tramadol (pain) 50 mg. every 6 hours
Skelaxin (muscle relaxer) 800 mg. x2 daily
Imipramine (generic for Tofranil) 50 mg.
Tapering off Ambien
Back on Estrace after 3 years off (thank God!)
Am very faithful to Prelief
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Old 02-06-2007, 02:52 AM   #11
jen48446
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Cool

I agree with Donna, it's so tricky because we're all different on the inside, that is why some meds work for some & not others. It's a trial & error thing unfortunately, but when you do get the courage to try something try the smallest portion that you can & leave it @ that. Also I would only try one thing @ a time that way if you flare you can pinpoint the "culprit". If you consistently worry about things that won't help either try to relax, I know it's hard as I have genetic anxiety...NOT FUN!!!
__________________

Jen
I have: IC, IBS-C, arthritis, carpal tunnel, hypoglycemia, RLS seasonal allergies, sinusitis, depression, anxiety, infertility, hormone imbalance.

Have tried too many things to list, e-mail me for a list. I recommend reading Screaming to be heard by Dr. Elizabeth Vliet

IC in remission for over two years now Most health conditions in remission since 7/06. I take Ortho Tri Cyclen Lo, eat Fiber one bars.

Married for 15 years, have 1 cat that I consider my "son"
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