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01-28-2007, 07:15 AM
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#1
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ICN Member
Join Date: May 2006
Location: DFW Texas
Posts: 282
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OMG, My Worst Flare Ever!
This is awful.  The burning is driving me crazy. I have drinking plenty of water and watching what I eat pretty well. I don't have a uti. My culture results were negative.This flare started last Tuesday and the burning and frequency has increased each day. My IC symptoms had been under contol since late September. I thinking about having another round of instillations done but I am not sure what type. I had a round of dmso instillations back in August last year. I have been taking Elmiron since I was diagnosed last May. I was wondering what the difference is between Dmso instillations and rescue instillations. I haven't been visting these boards much lately so I haven't kept up with the lastest treatment news too well. I spend a lot time on an MS message board since MS is my main disease. I sure would appreciate any advice you gals have on instillations. Thanks for reading.
__________________
Natalie
I am multi-diseased with : MS, IC, IBS, and PDF
Diagnosed with IC - May 2006 IC symptoms : burning and frequency
Diagnosed with MS - March 2004 MS symptoms numbness in arms and legs, muscle weakness, major lack of bladder control and increasing bowel control problems. I wear Depend underwear 24/7.
Diagnosed with IBS - Sept 23, 2008
Diagnosed with PFD - Oct 1, 2008
Divorced Oct. 2009
IC Meds
Elmiron
Hydroxyzine
Elavil
Lortab for pain
Uristat
MS Meds:
Betaseron
Novantrone
Corticosteroids
Skelaxin ( muscle relaxer)
Neurototin for pain
"For God so loved the world, that he gave his only begotten son, that whosoever believeth in him shall not perish, but have everlasting life." - John 3:16  
The Serenity Prayer:
God grant me the serenity to accept the things I cannot change; courage to change the things I can; and wisdom to know the difference.
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01-28-2007, 07:22 AM
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#2
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No longer active
Join Date: Jan 2003
Posts: 5,656
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Goodness, this one sounds like it doesn't want to leave. Sounds like your doing a good job at trying to ease it up. Hope you figure out what is causing this and it settles down
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01-30-2007, 07:09 AM
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#3
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ICN Member
Join Date: May 2006
Location: DFW Texas
Posts: 282
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I saw my urologist yesterday and I am going to be starting rescue instillations next Monday (twice a week for three weeks). I sure hope they do the trick. I aam still expiriencing a lot of burning and I have a lot of pain all over my pelvic area.
__________________
Natalie
I am multi-diseased with : MS, IC, IBS, and PDF
Diagnosed with IC - May 2006 IC symptoms : burning and frequency
Diagnosed with MS - March 2004 MS symptoms numbness in arms and legs, muscle weakness, major lack of bladder control and increasing bowel control problems. I wear Depend underwear 24/7.
Diagnosed with IBS - Sept 23, 2008
Diagnosed with PFD - Oct 1, 2008
Divorced Oct. 2009
IC Meds
Elmiron
Hydroxyzine
Elavil
Lortab for pain
Uristat
MS Meds:
Betaseron
Novantrone
Corticosteroids
Skelaxin ( muscle relaxer)
Neurototin for pain
"For God so loved the world, that he gave his only begotten son, that whosoever believeth in him shall not perish, but have everlasting life." - John 3:16
The Serenity Prayer:
God grant me the serenity to accept the things I cannot change; courage to change the things I can; and wisdom to know the difference.
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01-30-2007, 10:26 AM
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#4
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No longer active
Join Date: Jan 2003
Posts: 5,656
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I will be keeping my fingers crossed for you that they help. Keep us posted and I am sure if you have questions someone will be glad to help you out.
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02-01-2007, 01:49 PM
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#5
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ICN Member
Join Date: Apr 2001
Location: erie pa usa
Posts: 41
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Rescue installations
What excatly are those? I live in erie, pa and My uro talks about rimso or dmso?
Anyone
Thanks, Rita
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02-01-2007, 02:06 PM
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#6
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No longer active
Join Date: Jan 2003
Posts: 5,656
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Rita,
Maybe check under the installation boards, there are tons of posts over there loaded with information.
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02-10-2007, 05:27 AM
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#7
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ICN Member
Join Date: Apr 2001
Location: erie pa usa
Posts: 41
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Instillations!!
Leslie,
Thaks so much. I have been reading alot about them...just worried that I can't take anymore time off work...
Will talk with the P/A at my uro's office on Monday..
Rita
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