ICN Support Forum & Message Boards
Sign up for our free ICN E-Newsletters!
Email:
- Take a moment each day to say "I am proud of myself." YOU are working VERY hard to live your life with IC with dignity and respect. Have you rewarded yourself recently??
- YOUR WORDS have the power to inspire or discourage other patients. Whenever possible, write ENCOURAGING messages.
- Illnesses and injuries can create tremendous anxiety and uncertainty. If you are struggling with suicidal thoughts, please read this. You can also find great resources at: www.suicide.org

Share

Our Sponsors:
Prelief
CystaQ
BladderQ
JAVAcid.com
Lo Fric Catheters
Cystoprotek


NEW! Spring 2010 Now Available By Mail or Email



Please support this forum by making purchases in our shop!
ICN Subscriptions
ICN Contributions
Alternative Supplements
Books about IC
IC Diet Resources
Cystoprotek
CystaQ
Prelief
IC Friendly Beverages
Low Acid Coffees
Herbal Teas
Dry Mouth Products
IC Friendly Foods
Dr. Oetkers Mixes
Fiber & Laxatives
Pilates For Pelvic Pain
Feminine Hygiene
Chair Cushions
IBS Products
Men's Resources
Pelvic Pain Resources
Romance& Sex
Urine Test Kits
Very Private
Basis Soap
Water Bottles



Google ads help us generate revenue to keep this support site running. We strongly encourage you to be cautious consumers. The ICN does not endorse the products or services listed in these ads.



Go Back   Interstitial Cystitis (ICN) Support Forum > Self-Help For Interstitial Cystitis > Depression & Anxiety
Register Blogs FAQ Calendar Mark Forums Read

Reply
 
Thread Tools Rate Thread
Old 01-08-2007, 05:11 AM   #1
mattmom
ICN Member
 
mattmom's Avatar
 
Join Date: Oct 2000
Location: Norcross, GA, USA
Posts: 108
Unhappy What do you do when you don't know what to do??

I had a hard time going to sleep again last night, and after I got my son off to school I climbed back into bed and slept for two hours.

This is not good. I can't keep this up. I had a sleep study done two years ago and they showed no signs of apnea . . . but I didn't sleep very much so how could they tell?? There have been a few times that I've snored so loudly that I've woken myself up.

I have Vicodin for my bladder pain--only 30 pills--and I"m using those sparingly. Last night I took one before I went to bed and I wonder if that had anything to do with me having trouble sleeping.

I'm very frustrated with my inability to get a decent night's sleep. Then there's the bladder pain I deal with constantly. Handling Matthew day by day wears me down at times. I struggle with past ghosts--although I THINK I'm on my way to forgiving my childhood bullies, those memories are not easy to handle. There's still the spiritual/religious abuse I encountered in college, and also memories of some toxic relationships I went through in both places. DH had a VERY bad fight with my mother on Christmas Eve, and that did NOT help matters any. Add in how I feel about politics these days, and I guess it's no wonder I feel so frustrated and angry!!

Thing is, I don't know what to do now. My DH and I are seeing our counselor Thursday. That's a start for those issues. But with my sleep problems and bladder problems, I don't know what to do half the time. Go to another doctor? I'm tired of going to doctors and finding no help. And I frankly don't know which doctors are going to help and which ones won't!
__________________
Tina
mattmom is offline   Reply With Quote
Old 01-08-2007, 08:13 AM   #2
Ginny
ICN Member
 
Join Date: Mar 2000
Posts: 1,049
Sleepless nights

Have you tried Elavil? If not, please call your doctor and ask if you can try it. Many people get help from bladder pain from it. I did not but it does help me sleep at night. I would be up all night going to the bathroom if it was not for Elavil. Ask him to start you on a low dose (10mg) because it does make you groggy the next day. Increase it slowly. I am on 50 mg and have been for many years.

Ginny
Ginny is offline   Reply With Quote
Old 01-08-2007, 09:40 AM   #3
Trishann
ICN Member
 
Trishann's Avatar
 
Join Date: Apr 2006
Posts: 2,187
Tina, I noticed you say you take vicodin. Vicodin can work two ways: one, it can knock you out and you sleep. Or it can keep you up and won't be able to sleep. It really depend on each individual. I just thought I would mention this to you, but I don't know, if this might be the issue with you not sleeping. I know it is frustrating to keep going to doctors, but you really need to find out what is happening. Sleeping is so important for the body to be able to function right. Without sleeping properly it can cause you to get irritable and depressed, and do things because of despair.

Hope you find the problem soon,
Sending hugs, Trishann
Trishann is offline   Reply With Quote
Old 01-08-2007, 09:55 AM   #4
catlover2
ICN Member
 
Join Date: Aug 2006
Location: Georgia, USA
Posts: 203
I would get a new sleep study to start. If you have gained any weight the sleep apnea could show up on this sleep study. The sleep study can also tell you about other sleep problems such as restless legs syndrome, or the inability to reach stage 4 or REM sleep. You could try asking your doc for a sleep aid. I have tried all of them and Ambien CR is the best. I have also taken two of them together every night. If you need to get a regular sleep schedule ask your doc about combining Ambien CR and Rozerem or Lunesta and Rozerem. If you think the Vicoden is keeping you awake, ask your doc about switching to a different pain med. If you are sleepy during the day, a med named Provigil might help you. Your regular doctor such as a family practitioner or internist can refer you to a sleep specialist usually a neurologist, and he/she can help you with your pain medications unless you are in pain management. I hope you feel better.
catlover2 is offline   Reply With Quote
Old 01-08-2007, 12:28 PM   #5
leelee88
Support Leader
 
leelee88's Avatar
 
Join Date: Nov 2006
Location: Louisiana
Posts: 8,893
Blog Entries: 3
Hello,
I just wanted to let you know if I take anything with codeine or hydrocodone, It wires me up..Thats why I can only take a half of one at a time, because it gives me to much energy and then I over do it on housework or stay up most of the night and thats not good for my bladder...
__________________
Hugs
Ronda

ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!


Link to Patient Handbook:
http://www.ic-network.com/handbook/

Diet Reference Sheet:
http://www.ic-network.com/diet/icndi...tsheet0909.pdf

Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring

Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure

Meds I have Tried:
Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
Lexapro< Bad reaction to this med!
Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..

Dx With IC in Nov 2006 with Hydro/Cysto
Hydro/Cysto Caused Bladder to Rupture.

Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.



ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
leelee88 is offline   Reply With Quote
Reply


Currently Active Users Viewing This Thread: 1 (0 members and 1 guests)
 
Thread Tools
Rate This Thread
Rate This Thread:

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Forum Jump



All times are GMT -11. The time now is 08:46 PM.


Powered by vBulletin® Version 3.8.1
Copyright ©2000 - 2010, Jelsoft Enterprises Ltd.
Copyright 2009 - IC Network