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11-14-2006, 04:49 PM
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#1
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ICN Member
Join Date: Apr 2004
Location: Tennessee
Posts: 47
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Prayer Request for my Daughter Larissa
 Hello Everyone, I don't get on the boards very much and and post but I do read the boards daily and have found a lot of great advise. I would like to be more active. I was diagnosed in March of '03. But yestereday we got some very bad news my 22 year old daughter has been having bladder problems for sometime now and they did a cystoscopy and hydrodistention and they DX her with IC. Her Dr. said she had lots of cuts on the bladder wall. Please pray for her she has had a lot of things going on the last year and half she lost her husband of 3 years in a car wreck and now to have to go through the whole IC thing is a lot for a 22 year old. She does have a very loving and supporting family but she really needs prayers. Thank you all for adding her to your daily prayer list. I am really beginning to think IC is inherited, we go to church with another mother and daughter that have IC. Anyone out there think the same thing??? 
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11-14-2006, 06:27 PM
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#2
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ICN Staff
Join Date: Mar 2000
Location: Junction City, Oregon, USA
Posts: 26,114
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Donna
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11-14-2006, 11:35 PM
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#3
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No longer active
Join Date: Jan 2003
Posts: 5,656
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11-15-2006, 01:54 AM
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#4
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IC Friend
Join Date: Dec 2005
Location: Connecticut
Posts: 459
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Sure does sound like your daughter has been thru alot, my goodness!
I also worry alot about the possibility of IC being inherited, in fact, when my kids have anything wrong with them, I question them about it to be sure their symptoms are not anything like IC. (It drives them nuts) I don't know of any other inherited IC cases, but I still worry.
I will include your daughter, you, and your family in my prayers.
__________________
 Thank You all so much to everyone here for all your sharing, caring and support! 
 < My "Bear" 
CurrentTreatments:
Started herbal teas 6/2/06 Marshmallow root, comfrey root, and catnip. 6/25/06 added Mullein Leaf Powder to tea.
IC Diet
Hydroxyzine 50 or 100mg at night (Is restarted)
Zoloft 100mg 4/8/07 (Is restarted)
Klonopin 1/2 mg 4 X Day (started 3/17/07)
Past Treatments: Amitriptyline, Neurontin, Hytrin, Heparin instills (was Dc'd after 5 weekly tx's due to severe urethritis), Superior hypogastric plexus block, E-stim, Elmiron instills (started 4/18/06-Dc'd 5/30/06 due to severe urethritis/infection requiring foley cath @ home 4 days), Oxycontin (oxycodone) (4/18/06)-pain (Dc'd 5/31/06), Levsin S/L (hyoscyamine) (3/17/06)-antispasmotic (Dc'd 5/31/06), Elmiron (1/24/06)-(Dc'd 6/25/06), Prelief, Zanaflex 4mg for PFD (Dc'd 10/1/06), CystaQ 1 in am & 1 in pm with food(started 5/12/06-increased to 2 in am & 1 in pm 9/20/06---Dc'd 10/18/06), Lyrica (started 10/26/06 up to 600 mg-Dc'd 12/4/06 due to urinary retention), Vicodin (hydrocodone) ES PRN for pain (Dc'd 1/4/07); Cymbalta 30mg (start 1/17/07) up to 60mg in am (1/26/07) (D/c'd 3/17/07); Ativan 1mg(Lorazepam)- PRN Anxiety (changed to Klonopin 1/2mg 4Xday 3/17/07); Pyridium (phenazopyridine) PRN-bladder analgesic; MSM (6/12/06) 1000mg after breakfast & dinner (Dc'd 3/15/07); Acidophilus (Natrol) 100mg. 1 capsule 1/2 hour before breakfast (5/20/06) (Dc'd 3/17/07)
Added BACK in - Atarax (hydroxyzine) (started 4/6/06 Dc'd 5/31/06) Restart 50mg at night 8/18/06, up to 100mg at night 1/4/07. Zoloft 100mg-Depression (Dc'd 7/25/06) Restart 4/8/07) 100mg.
Dx'd: Dec 05 (Positive PST in November and positive cystoscopy in Dec) Symptoms: Pain, frequency, urgency & retention
My Myspace page - http://www.myspace.com/42620225
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11-15-2006, 05:17 AM
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#5
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ICN Staff
Join Date: Jan 2002
Location: Memphis, TN
Posts: 10,693
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Yes, I agree that this is bad news. It is always bad news when we read of someone else having been diagnosed with IC. It must be especially hard on you as her mother knowing what she is facing. I am so sorry. Does she know about this site and all the great information available to her? Please encourage her to come here and to learn all she can.
Both of you are in a very unique situation. Not only do you both have IC, but you have others in your lives who you know and who have IC. It is rare when we get to meet anyone else face to face who has this condition.
__________________
Sharon
Shopping??? Did someone mention shopping? I'll get my hat... ;-)
Where I can be found most days.
If not there, then here
Link to the ICN Patient Handbook:
http://www.ic-network.com/handbook/
Link to the IC Diet:
http://www.ic-network.com/diet/
IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
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11-15-2006, 05:17 AM
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#6
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Support Leader
Join Date: Jan 2004
Location: North Carolina
Posts: 6,668
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Sending you many, many hugs... 
__________________
****
Jen
*Diagnosed with severe IC in 2004
*Kept trying a million different treatments until I found what works, and I am doing great these days with the help of Atarax, Lyrica, pain medication, an occasional rescue instill at home, and the InterStim, which was placed in 2007
You can see my IC story at http://www.ic-network.com/patientstories/jennifer.html -- it's a little out of date these days, but you'll get the idea!
I am a doctor, but I am the Ph.D. kind, not the M.D. kind. Thus, I am not a medical authority nor do I offer definitive medical advice. I can only explain the science behind many medical issues, and in all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
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11-15-2006, 07:36 AM
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#7
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ICN Member
Join Date: Apr 2004
Location: Tennessee
Posts: 47
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Thank each of you for the replies and most of all the prayers.
She is still in a great deal of pain. So please keep praying for her.
Sharon I will show her the sight and tell her about all the great advise that I have received here. You are right it is strange to meet someone face to face that has IC but now with her that makes 6 ladies in our church that has IC.  I guess we could just start our on support group  .
I hope and pray that you all are having a pain free day.
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11-15-2006, 08:55 AM
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#8
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Support Volunteer
Join Date: Oct 2005
Location: Central, NY
Posts: 2,827
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Charlot,
Charlot,
I am praying for you and Larissa. 
This is sad but hopefully if she was just diagnosed one of the oral treaments or instills will help her.
Warm HUGS!
Kara
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11-15-2006, 09:04 AM
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#9
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ICN Member
Join Date: Apr 2006
Posts: 2,176
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Charlot, you and your daughter will be in my prayers, You know that might not be a bad ideal starting a support group in your church, especially since you do have others with IC. Maybe this will be a blessing for all of you.
Sending hugs, Trishann
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11-15-2006, 10:10 AM
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#10
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Support Leader
Join Date: Aug 2001
Location: Green Bay WI
Posts: 9,765
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Prayers for your daughter. I am certain I had IC at age 22 too...but wasn't diagnosed till 24.
I am sure it is very difficult to have your daughter have IC.
I know there other families that seem to have a genetic vulnerability to IC.
I lost my colon to UC and no one in my family has it but when my Mother started having bowel problems I was upset because I somehow felt it was my fault. We can't help the feelings we have even if they are illogical What I am trying to say is that I am sure this is hard on you too and you both have my prayers!
__________________
Faith, Hope, and Love,
Katrina
~I’m a newbie angel~Moderator of Alternatives, Antibiotics, Flare Coping Strategies, and Yeast Infections
I believe God is using me, even now with my health so bad. He uses me for God. Things I gain from all my suffering are meant to help others. I hope I can help you too. Email me or start a chat if you like my help or anything. I CARE!Illnesses: IC,IBS, IBD, GERD, PFD, Epilepsy, Endo, Allergies, RLM,Rapid heart beat, low blood pressure,Gastritis,Gall stones,Tendonitis,migraines, Shingles, Prolapsed pouch,ext. fatigue (current problem) My hope story http://www.ic-network.com/patientstories/katrina.html
http://get-me.to/mandk
IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
http://www.myspace.com/Kat_671 or find me on facebook http://www.facebook.com/kat671?ref=profile
Be the Miracle! & Pay it Forward!
carmelann@charter.net please contact me...I am here to help! http://health.groups.yahoo.com/group/ICinWI/ if your from WI please contact me!
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11-15-2006, 12:27 PM
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#11
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ICN Member
Join Date: Apr 2002
Location: Warren
Posts: 8,383
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you got it.. sending out big hugs and prayers.
__________________
'The will of God will never take you where the Grace of God will not protect you.'
My 3 lovely children
 
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11-15-2006, 02:38 PM
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#12
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Guest
Join Date: Jun 2006
Posts: 2,659
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