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10-12-2006, 02:21 AM
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#1
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Support Volunteers
Join Date: Mar 2004
Location: Vermont
Posts: 1,223
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Countrygirl/Hollie
Hollie underwent cystectomy this week. She has two small children and has posted on this forum several times. Please keep her in your thoughts. Hopefully she will be home in a couple of weeks and and can let us know how she is doing. She has had a rough time of it with infections etc, beforehand.
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10-12-2006, 03:01 AM
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#2
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ICN Member
Join Date: Apr 2006
Posts: 2,176
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She will be in my thoughts and prayers. Judith, it is so sweet that you are thinking about her in her time of need. You are really a kind and thoughful person.
Hugs, Trishann
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10-12-2006, 03:56 AM
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#3
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Support Volunteers
Join Date: Mar 2004
Location: Vermont
Posts: 1,223
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Thanks Trishann,
Just doing what I can  . Even though it was 21 years ago for me to go through what Hollie is doing, it is still fresh in my mind. Thank you for your prayers. Judith
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10-12-2006, 08:21 AM
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#4
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Support Volunteer
Join Date: Oct 2005
Location: Central, NY
Posts: 2,827
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Hollie
I will add Hollie to my list of bladder removal patients to say prayers for! Laura and Mum43 are going through this too so you are not alone. Mine was done in May.
Hollie we are here for you when you get back!
Love and Hugs!
Kara
__________________
TO VIEW MY CURRENT AND ONGOING VIDEO DIARY OF MY PUDENDAL NERVE DECOMPERSSION OPERATION AND RECOVERY, YOU CAN VISIT My Facebook Page:
http://www.facebook.com/profile.php?id=1158566812
You can also view my CURRENT PHOTO ALBUMS and some other secrets about me. Once you sign up, I'll add you as a friend if you mention you are from the ICN. It's FREE
Complex Case: Severe IC 1999, Interstim 2001, Endometriosis 2001, End Stage Refractory IC 2002, Bladder Removal (Cystectomy) 2002, Gall Bladder Removal 2005, Infertility 2003, Urethra Removal, Bladder Reconstruction (Urethrectomy/Indiana Pouch) 2006, Celiac Disease 2007, Adhesion Disease 2007, Pudendal Nerve Entrapment, Ovarian Cysts, Vestibulitis, Vulvodynia, Total Vestibulectomy and removal of both Skene's Glands, 2007 and Coccydynia 2007. Fibromyalgia and, Chronic Myofascial Pain Syndrome both in my neck and knees, 2007, PNE Decompression Operation May, 2009.Multiple Chemical Sensitivities, Anesthesia Awareness (to awaken during operations)
Unrelated to my Indiana Pouch and Urethrectomy, which were very successful and have improved my quality of life to a much better degree, I’ve also been diagnosed with a very painful condition known as Pudendal Nerve Entrapment, with Vestibulodynia. It's a very poorly understood condition that could have been treated years ago had we known what it was. To learn more about PNE, symptoms, diagnosis, causes, and treatments feel free to visit: [b] http://www.pudendalhelp.com/home.html
"One hour at a time, this was NOT my American Dream but it has to work out somehow."
I also have some journals of my journeys, past and some present at:
http://karasnewblog2008.blogspot.com/ and http://icnkaralynn.blogspot.com/
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10-12-2006, 06:03 PM
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#5
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ICN Member
Join Date: Sep 2004
Posts: 1,530
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I just know everything is great and they will feel as well and be as happy as I am!!!!!! I have never been happier than I am now, being without that worthless bladder.....
__________________
After suffering with IC for 40 years, my bladder was removed in Dec 05...YAY!
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10-21-2006, 12:01 AM
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#6
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Guest
Join Date: Jan 2006
Posts: 2,413
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Dear Judith,
Thank you for letting us know about Hollie! Has anyone heard any recentnews about her? I am wondering if she made it through okay. I hope that her surgery went well and that her post surgical pain is being well controlled. I will say a special prayer for her and her children. If anyone has any news of her, please post it. Or if anyone talks to her, please let her know that we are thinking of her and wishing her well.
Hugs,
Amy
P.S. I hope that you are feeling better too, Judith!
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10-21-2006, 02:39 AM
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#7
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ICN Staff
Join Date: Mar 2000
Location: Junction City, Oregon, USA
Posts: 26,112
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I've been thinking of her and hope she's doing well.
Donna
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10-21-2006, 05:58 PM
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#8
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Support Volunteers
Join Date: Mar 2004
Location: Vermont
Posts: 1,223
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I know she is far from where she lives and she will post when she is back home. If I hear anything sooner I will pass it along. Hopefully if things have gone well she will coming home soon.
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10-22-2006, 05:57 AM
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#9
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ICN Staff
Join Date: Jan 2002
Location: Memphis, TN
Posts: 10,693
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Thank you, Judith. Yes, please let us know how Hollie is doing as soon as you know. 
__________________
Sharon
Shopping??? Did someone mention shopping? I'll get my hat... ;-)
Where I can be found most days.
If not there, then here
Link to the ICN Patient Handbook:
http://www.ic-network.com/handbook/
Link to the IC Diet:
http://www.ic-network.com/diet/
IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
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