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Go Back   Interstitial Cystitis Network Support Forum > The IC Diet > General Diet Questions
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Old 09-19-2006, 06:34 AM   #1
Kara Isabel
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So tired of "the diet"..zzzz...

I am now having dreams about cheeseburgers and burritos! LOL some nachos smothered in salsa and jalepenos!!! LOL..does anyone else get so tired of the diet??? I know there is nothing really I can do about that, at this point....I'm feeling MUCH better on the diet and pain meds so I'm not going to rock the boat with stupidity but I think its funny I fantasize about the "forbidden fruit" LOL

Not to mention I'm skinnier than ever and if I drop anymore weight I may blow away.....lol Darned bladder....

No real point to this post, just a diet vent. Maybe I need some NEW ideas on IC friendly foods? Anyone have something Nacho-like or tex-mex in their cookbooks they want to share? I have a REAL problem with any processed and prepackaged foods so the fresher, the better...

Off to eat a pear!
Kara
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Old 09-19-2006, 07:23 AM   #2
nsmith4366
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Exclamation No really its OKAY

Go ahead - complain about the diet...its about time SOMEONE really did! I mean its tough!!! But this will make you feel better - I'm on IBS, low oxalate AND IC diet --- don't even ASK what I eat!!! Not much...

Might be politically incorrect, but please, let it out - I hope others do...it wouldn't be NATURAL not to miss all our favorites on this diet...but one thing I don't miss is the pain...

Come on - anyone else (happily and willingly following the diet) but also TOTALLY FED UP?
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Old 09-19-2006, 02:05 PM   #3
tabasco32
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I don't like it at all.all that food sounds so good and if my bladder doen't get better when I am older that is what I will eat on my death bed along with a six pack of beer. This diet is soo bland but what could we do? I have lost 30 pounds in three months.
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Old 09-19-2006, 04:15 PM   #4
megancolleen
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Haha, a while ago I was talking to a friend about the "last meal" that death row inmates get and what would have, and I was like "Wow, I could eat anything! I could eat MEXICAN!" The diet's gotta be pretty darn bad if I'm fantasizing about being on death row here, geesh.

Anyway, I totally agree, the diet totally sucks. It's bland, it makes you an outcast, it's not particularly healthy. I hate it. Sometimes it helps to be optimistic about it, sometimes it helps to vent about what a pain it really is. In any case, when I'm really craving Mexican food, this recipe is a pretty good substitute.


Mexican Quiche

Tortillas
Flour
Red Bell Pepper
Corn
Black Beans
Egg whites
Milk
Spinach
Colby Jack cheese, shredded
Avocado


Grease a baking dish, layer some tortillas for the crust and cover them with a little flour. Then add chopped pepper and corn, then black beans. Then combine egg whites, a little milk and some spinach and pour the mixture in the dish. Cook for 35 minutes at 350 degrees. Garnish with cheese, and avocado slices.
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I have: Interstitial Cystitis,Eustacian Tube Dysfunction, IBS, Sciatica.

I take: Elavil 50 mgs, Balziva birth control, and Elmiron instillations.

I am: Not my disease.

My Myspace Page: http://profile.myspace.com/index.cfm...iendid=4249067
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Old 09-19-2006, 04:34 PM   #5
mich2604
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Ive lost a ton of weight too.


Im on the anti yeast, low oxalate and IC diets. dont ask me what i eat either...... not too much.

i just added in pears........even though it maybe bad for yeast....i need fruit.

i cant eat out anywhere........so i just sit there....all thin.......and im sure people think im anorexic.
__________________


Lyme disease diagnosed 11/05
vulvar vestibulitis diagnosed 2/06 -worst case she has ever seen..very bad.
IC diagnosed with hydro/cysto- may 17, 2006

Over growth of lactobicilli found 8/07 treating with doxy.

Was able to get my first internal exam evaluation for PFD....wohoo 1/18/07

8/22/07- was able to get my first speculum exam, with pap

Strep D found in bladder with United medical labs May 2006
2 strains of strep in stool culture 9/06
high Strep ASO titre found 10/06

NEW MED

Capsasin cream-once a day for 20min,
BUt wont lie it does burn

About to start valium supositories for PFD

Trigger point injections- oct 07

Current meds:
Neurontin- 100mg at night supposed to work up to 300mg if i can tolerate it
Zanaflex 2mg
IC and low oxalate diet, no sugar diet
Xanax for appointments to help relax me since they cause so much pain

Started PT 3/07, PT has really helped me in ways I never knew that it would

Meds ive tried
Lyrica
Klonopin
Singulair
Claritin
Pyridium
Soma- can barely tolerate half a pill
Atropine cream- didnt seem to work, although i found out I was applying the creams wrong
Estradiol cream
Urelle- caused worse bladder spasm and retention

Various antibiotics for lyme which caused yeast and made the IC and VV worse

waiting for the next chronic illness to pop up


"Did you know?
Every 15 seconds,
a person is
diagnosed with
interstitial cystitis."
Source: J. Dimitrakov, MD
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Old 09-20-2006, 02:56 AM   #6
GayleK
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I dream of just having 24 hours to eat and drink whatever I want. I miss so much being able to eat anything I want. The grocery store is especially depressing because most of the food I can't have. Also food is really a social thing and I miss that.
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Old 09-20-2006, 07:45 AM   #7
pamptracy
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I'm with all on this! Everyone thinks I'm anorexic too. Now my wedding band is even getting too big! You are so right about food being a social thing. Social events can be so depressing!! We've had 2 crab feasts in the last couple weeks and eating crabs takes forever! Even worse than watching people eat regular food! I don't even know where to ask my husband to take me on a "date." We want to go a way for our anniversary but how? I can't eat out and I need to keep my Cystoprotek in the freezer!
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Old 09-20-2006, 07:53 AM   #8
nsmith4366
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The diet proves one thing.

CARBS DON'T MAKE YOU FAT!

I've eaten more white rice in the past 4 months than I have in my entire life. Someday - every meal. And eggs, and pears, and chicken and peas. Nope...smaller, not bigger. I have to keep fat low for IBS...seems like if you do that and keep your protein up, the weight just drips off ya. Not my goal - trust me...but one positive for others on this diet who are also looking to slim. Carb/pro/veg = weightloss. Carb/fat/low protein = weight gain. I just added pears...too. Big whoop. oops...was that me - complaining?
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Old 09-20-2006, 11:56 AM   #9
talksick
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I Dream of Food

Have you guys ever had actual dreams in which you are eating forbidden food? I have and I wake up and I'm all confused and upset. I'm like oh man why did I eat that I'm so stupid now I'm gonna have a flare. Then I'm like wait a minute that was a dream......yay it was just a dream That's happened to me many times...lol.

You guys lost weight? I actually gained weight cause now all I eat is high fat....not a lot of weight but it's still upsetting to think I can eat a lot less stuff and yet I'm getting fatter....errrrrrrr. I didn't eat beef before now I eat that and I eat lots of cheese cause its like the only thing I can eat that has any flavor. I used to eat a bunch of diet and reduced fat stuff....now I gotta eat the full fat version of everything. :-(
Kim
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Old 09-20-2006, 02:10 PM   #10
nsmith4366
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Exclamation Gained weight - Dreams

Oh you'll never believe THIS. I actually dream that I'm offered non-friendly IC foods and you know what I do in the dream? That's right! I say "no thanks - I can't have that". !!! Then I always wake up and wonder WHY DIDN'T I JUST EAT IT!!! I COULD HAVE ENJOYED THAT!!! -- crazy. I'm even "good" when I'm sleeping / nuts.

GAINED on this diet? Why do you have to eat the high fat version of everything. Veggies aren't high fat. None of the okay grains are high fat. Pears aren't high fat? You don't HAVE to eat lots of egg yolks...milk - you can easily get skim milk...am I missing something? Sugar - that's not high fat... - even chicken, tuna and turkey - don't have to be high fat - even if they are fresh. I don't get that.

The choice for me is Flavor or Pain. Easy choice.
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Old 09-20-2006, 02:47 PM   #11
megancolleen
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Nsmith, that's really funny, I've had the same kind of dreams! You would think that we could at least enjoy them in our dreams, but noooo.

I've actually gained on the diet too. It's not because I'm forced to eat foods high in fat and carbs, it's just that I was so bored with the diet and miserable with the IC that I ate the worst of everything to make myself feel better. Screw pears, I'm going straight for the vanilla ice cream and marshmallows! I'm trying to get out of that mentatilty, because you're right, there are a lot of veggies, fruits and whole grains that are safe for us.
__________________
I have: Interstitial Cystitis,Eustacian Tube Dysfunction, IBS, Sciatica.

I take: Elavil 50 mgs, Balziva birth control, and Elmiron instillations.

I am: Not my disease.

My Myspace Page: http://profile.myspace.com/index.cfm...iendid=4249067
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Old 09-20-2006, 04:12 PM   #12
tabasco32
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I just had a dream too that I couldn't drink a cosmopolitan but I was a bartender and made them for everyone. ha why didn't I just drink it. I wish I knew when I was dreaming.
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Old 09-20-2006, 05:16 PM   #13
ShePurzz
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Question

I naturally tend to go for foods that are bland, so that is not a problem for me -- spicy foods are like a toxin to me -- I burn easily -- I think black pepper is HOT! If I ate salsa (mild) I would say it was spicy -- so I guess I am very sensitive there.

I do use my fruit and vegetable capsules so I am getting a much more balanced diet than ever before, but other than that, I enjoy fresh fruits and vegetables, meat, chicken, fish, and I happen to LOVE pears -- so that is good too.

I love to take a whole bag of pears, peel them and put them in a pan, add a little honey and small amount of water to keep from burning... heat on low heat (or as I did, overnight in the crock pot because the pears were still firm) and then had them for breakfast -- oh, I use a little cinnamon as well.

It is delicious warmed up, or over a little ice cream or cottage cheese if you tolerate those things. I would love it on waffles too, but they are way to much carb/fat for me since I am NOT one of the lucky ones suffering from low weight problems.

I would LOVE to know what the 'low oxalate' diet is? That is something I haven't heard about --

Right now, I have been in a IBS-D /\/\/\IBS-C/\/\IBS-D/\/\/\ IBS-C battle for a week or so (much more D than C lately -- that is frustrating, but not surprising as I am detoxing from some medication... however, you would think that while I am in the D stage I would lose some weight... I am going like this is the last day it is allowed.....

Anyhow, I do not have a low weight problem -- I have just the opposite -- I am easily 50 pounds overweight and VERY unhappy about it... but I digress... this was about the IC diet -- not dieting -- I don't diet anyhow -- I eat right... I just need to kick the energy button and get moving more.. Loved it tonight when one woman explained the only way to get the weight off -- she said "it's no secret, you have to close your mouth and move your body..." Hmm.. profound eh?
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Old 09-20-2006, 06:19 PM   #14
talksick
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Well maybe not everything is high fat but a lot of stuff is. I drink skim milk and plain meat and stuff. But I used to eat lots of salads with low cal dressing....which i dont like now cause I cant put good dressing on so I dont eat as much salads. I used to eat butter substitute but now I have to eat butter. I used to get the diet version of stuff but now I have to eat the real sugar higher calorie stuff. I can't eat diet anything cause it has fake sweetner that hurts my bladder. And I find myself putting cheese on everything cause if I don't it has no flavor....thats got a ton of fat in it.
Kim
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Old 09-21-2006, 11:42 PM   #15
Kara Isabel
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WOW! So much great feedback! lol........I"m glad I'm not the only one that feels like throwing their hands up in the air with frustration (and culinary boredom) AND I'm not the only one fantasizing about eating!!

What's *really* fun for me (NOT) Is trying to convince [people that I'm on a *medical* diet and I'm not some anorexic or crazed dieter!!!!!! LOL Believe me, I'm drooling when I'm with other people and watching them just throw caution to the wind and order whatever they want....last week, it was bacon and all the trimmings when I ordered oatmeal! (zzzzzz........snore!)

Pamptracy, I have to keep my rings TAPED with scotch tape to keep them from falling off and I took my husband to my doctor's appointment with me last week and he was more concerned about talking to my doctor about my WEIGHT than my IC! Ugh.

megancolleen, I spotted about 4-5 things in your mouth watering recipe that I know my bladder would rebel against! Darnit........why is it *I* Have to be one of the ones that has SO MANY food sensitivities here! I'm jealous, girl! lol

I'm completely *miffed* on how to gain on this diet, every time I try.....I throw myself into a week or two long flare!!!! I cycle with it, I go a month or so and then decide to try to introduce *new* foods and it always ALWAYS backfires. So frustrating.

I"d try the ice cream diet, but sweets give me headaches! LOL Can't win here. lol
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