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08-23-2006, 06:00 PM
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#1
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Support Volunteer
Join Date: Oct 2005
Location: Central, NY
Posts: 2,827
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Who knew?
04-27-2006, 06:35 AM
Quote:
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Originally Posted by Kara29
I want to be able to throw a bathing suit on in a few months and go up to my pool. I have a tankini which is a two piece but looks like a one piece. I am hoping that I can do this around August/September. That would be 4 months after the surgery. I am trying to think about something positive with this.
Kara
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I wrote that in April! It's August/September now. I can't believe how far I've actually come. I think I blocked a lot of it out. I didn't think I would be writing about bathing suits.
I actually may do this for real! My Mom and Dad are taking me to the Cape for a week, September, 1st on. We are going to the Cape and then on to Staten Island and NYC for my 3 month follow up with my Surgeon. I will be able to throw on that bathing suit I was talking about in April and sit in the sun or maybe, if I'm lucky, swim in the ocean. We'll see what the people we are staying with are doing.
The only problem is that I can't seem to find that bathing suit I was talking about. I am not one to lose things but I've lost this one. It's not bathing suit season here so it will be darn hard to find another one before next week. I am praying that I find that suit.
At least I am worrying about bathing suits rather that bladder surgeries! It's been one LONG year but I've made it this far and for that I am so grateful!
Thanks for all of the support you all gave back then and continue to give today! I appreicate it all. I am 100% thankful!
Cape Cod! Here I COME bathing suit or not! Hey I could just skinny dip if I can't find the suit. I don't think the fish will mind all of my scars and my stoma! 
P.S. I LOST that bathing suit. I guess I am going without one. Oh well, maybe it will be way to cold out there to even think about bathing suits!
Kara 
__________________
TO VIEW MY CURRENT AND ONGOING VIDEO DIARY OF MY PUDENDAL NERVE DECOMPERSSION OPERATION AND RECOVERY, YOU CAN VISIT My Facebook Page:
http://www.facebook.com/profile.php?id=1158566812
You can also view my CURRENT PHOTO ALBUMS and some other secrets about me. Once you sign up, I'll add you as a friend if you mention you are from the ICN. It's FREE
Complex Case: Severe IC 1999, Interstim 2001, Endometriosis 2001, End Stage Refractory IC 2002, Bladder Removal (Cystectomy) 2002, Gall Bladder Removal 2005, Infertility 2003, Urethra Removal, Bladder Reconstruction (Urethrectomy/Indiana Pouch) 2006, Celiac Disease 2007, Adhesion Disease 2007, Pudendal Nerve Entrapment, Ovarian Cysts, Vestibulitis, Vulvodynia, Total Vestibulectomy and removal of both Skene's Glands, 2007 and Coccydynia 2007. Fibromyalgia and, Chronic Myofascial Pain Syndrome both in my neck and knees, 2007, PNE Decompression Operation May, 2009.Multiple Chemical Sensitivities, Anesthesia Awareness (to awaken during operations)
Unrelated to my Indiana Pouch and Urethrectomy, which were very successful and have improved my quality of life to a much better degree, I’ve also been diagnosed with a very painful condition known as Pudendal Nerve Entrapment, with Vestibulodynia. It's a very poorly understood condition that could have been treated years ago had we known what it was. To learn more about PNE, symptoms, diagnosis, causes, and treatments feel free to visit: [b] http://www.pudendalhelp.com/home.html
"One hour at a time, this was NOT my American Dream but it has to work out somehow."
I also have some journals of my journeys, past and some present at:
http://karasnewblog2008.blogspot.com/ and http://icnkaralynn.blogspot.com/
Last edited by Kara29; 08-24-2006 at 10:18 AM.
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08-23-2006, 06:27 PM
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#2
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ICN Member
Join Date: Sep 2004
Location: east coast, USA
Posts: 3,895
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I say "go for it, girl!". Put on that bathing suit, or any one for that matter-or none at all--hahaha..and enjoy the water; pool, ocean, river, lake, whatever!
Most importantly enjoy yourself on this mini-vacation and forget about any worries you might have!
Enjoy and stay safe!
Diana
Last edited by dg2901; 08-23-2006 at 10:02 PM.
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08-23-2006, 07:04 PM
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#3
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ICN Member
Join Date: Sep 2004
Location: Sweet Home. Or
Posts: 1,044
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All I can say is...
I hope you find that bathing suit!  Have a good time and take pictures so we can all see them.
Mel
__________________
Meds I take:
Elmiron, Elavil, Vagifem- for IC
Albuterol, Flovent, Atrovent- for Asthma and lung problems
Paxil, Clonazepam- for depression and Anxiety
Atenolol- for rapid heart rate
Nexium- for Gerd
Levothyroxin- for Hypothyroidism
Lasix, Pottasium- for edema
Lipitor- for High Cholesterol
I coated aspirin
02 at bedtime
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08-24-2006, 02:33 AM
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#4
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ICN Staff
Join Date: Mar 2000
Location: Junction City, Oregon, USA
Posts: 26,114
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Have a great, fun, relaxing vacation!
Donna
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08-24-2006, 03:07 AM
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#5
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Guest
Join Date: Jan 2006
Posts: 2,413
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Kara, I hope you have a wonderful time on your trip! You sure have come a long way! I am so exited to hear about your trip. I know that you will have a fabulous time. Be sure and let us know how it goes! Hugs, Amy
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08-24-2006, 03:28 AM
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#6
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ICN Member
Join Date: Mar 2006
Location: Knoxville, TN
Posts: 856
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Kara-
You will have a great time! I am so happy for you! You have come such a long way and deserve a vacation more than anyone!!!!
Hugs and blessings,
__________________
Wendi
IC symptoms began in 1975;  diagnosed in March 2006.
Other conditions: PFD, Migraine, VV, Total Abd Hysterectormy on 12/27,06 for Cervical Cancer, Fibromyalgia.
Current Daily Meds: Roxicet, Methadone, Flexoril, Flomax
I use Prayer, Yoga, Relaxation Breathing and TENS to help relieve stress, anxiety and pain- LOTS of make up to hide my true identity!
myspace page: www.myspace.com/armslee
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08-24-2006, 04:01 AM
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#7
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ICN Member
Join Date: Oct 2004
Location: South Carolina
Posts: 249
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ENJOY!!!
__________________
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08-24-2006, 04:36 AM
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#8
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Angel watching over us
Join Date: Mar 2004
Location: Viera, Florida
Posts: 4,380
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Kara,
I hope you find that suit! You deserve the best vacation ever.
Hugs,
Barb
__________________
(Babs passed away in April 2009. We honor her memory and remember her fondly. - Jill O. ICN President & Founder)
[SIZE="1"]Proud mama of a gift named Lindsey who taught me through her autism what is important in life:angel:
:angel: IC Angel Volunteer Coordinator :angel:
:) Contact me via PM or e-mail if you would like to help
I have learned all about life in 3 words: It goes on! :D--Robert Frost
PCOS 7/85
RSD 7/94 :headbang:
Endometriosis 9/98 :toilet:
Antiphospholipid antibody syndrome 9/99
Kidney stones--too many to count
Factor V Leiden mutation 10/02
IC 6/03 :evilsmile
Deep Venous Thrombosis and Cellulitis 12/05 :loco: DVT and Greenfield Placed 3/14/08
"Spirit is an invisible force made visible in all of life"--Maya Angelou
"Ohana means family--no one gets left behind or forgotten." Stitch[/SIZE][/SIZE][/SIZE]
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08-24-2006, 05:44 AM
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#9
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ICN Staff
Join Date: Jan 2002
Location: Memphis, TN
Posts: 10,693
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You rock, girl. Have a great time.
__________________
Sharon
Shopping??? Did someone mention shopping? I'll get my hat... ;-)
Where I can be found most days.
If not there, then here
Link to the ICN Patient Handbook:
http://www.ic-network.com/handbook/
Link to the IC Diet:
http://www.ic-network.com/diet/
IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
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08-24-2006, 06:42 AM
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#10
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ICN Member
Join Date: Jan 2003
Location: Hutto, Texas (30 miles or so outside of Austin)
Posts: 3,336
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Enjoy your vacation!! You deserve it after all that you been though this year.
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08-24-2006, 12:54 PM
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#11
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ICN Member
Join Date: Mar 2005
Posts: 1,760
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I'm sooooo happy to hear that you are well enough to be planning these things! I hope you have the time of your life - you deserve it!
__________________
hugs,
 Janie
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08-24-2006, 04:53 PM
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#12
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ICN Member
Join Date: Dec 2004
Location: Texas
Posts: 5,040
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Hi Kara
I say get online and search for that suit RIGHT NOW! and have it delivered express mail if necessary!! I live at the beach, gotta have the perfect suit, even if the water is too cold to swim, having the right suit is a MUST! Nothing can make you feel better than feeling like you're lookin' good, even while just sitting on the beach getting some sun or wrapped in a blanket. Hope you have a great time!
__________________
Best wishes,Bri
In remission since Aug 2009!
onset of sxs Nov 04
dxd Nov 05
things I've had success with for IC & VV: pyridium, elavil, tylenol 3, ibuprofen, lidocaine gel and patches, cold packs, heating pad, diet, lots of water
what helped me get to remission:stress reduction, diet, time
http://www.ic-network.com/handbook
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08-24-2006, 08:03 PM
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#13
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Princess Toilette
Join Date: Mar 2000
Posts: 2,191
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Think Lands End or LL Bean. They always have suits year round. Have a great time! You deserve it!
Jill
__________________
Looking for books, magazines & reports on IC? Please visit the ICN Shop at: http://www.icnsales.com: Your ICN subscription & purchases in our shop support these message boards, chats and special events. BECOME AN ICN ANGEL TODAY!
Please remember that the information on the ICN is provided with the understanding that ICN, its founder, staff, volunteers, and participants are not engaged in rendering medical or professional medical services. We cannot and do not give medical advice. Only your personal physician can do this for you.
Diagnosed with IC, IBS, Vulvodynia, Sjogren's Syndrome, low thyroid, scoliosis, MVP, TMJ, some chemical sensitivity, allergies, occasional asthma, familial tremor .. all controlled. Newly diagnosed in 2008 with cardiac entrapment syndrome (benign!) and gastroparesis! :::sigh:::
If you think about it, everything begins with a thought. First the thought, then the word, then the deed. The deed eventually becomes habit and habit hardens into character. This is why our thoughts are so important. Got any thoughts about the changes you want to make in your life? - Georgia Nicols
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08-24-2006, 11:31 PM
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#14
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ICN Member
Join Date: Jun 2005
Location: New Zealand
Posts: 421
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Don't worry Kara. It's the thought that counts. If you could find that swimsuit you know darn well you could wear it and that's the important thing.
Have a wonderful vacation and come back all bright eyed and bushy tailed.
Hugs
__________________
~ Lynne ~
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08-25-2006, 12:46 AM
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#15
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Support Volunteer
Join Date: Oct 2005
Location: Central, NY
Posts: 2,827
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I found two bathingsuits, not happy with them but....
Thank you all for your kind and loving support!
I bought one bathingsuit last night. I'm not happy with one piece suits but there were no tankinis. I bought a simple, one piece black suit with mint green trim by Anne Cole. If it was my choice and I had a lot to choose from and I had the funds right now to do so I'd go right over to Lands End, LL Bean or even Victoria Secret and have them express deliver a tankini. We may be jet skiing and other water activities, so maybe a one piece would be more suitable after all, I would like it to stay on if you know what I mean.....
I didn't even know I would be doing this right now so I have to go one with what I could find last minute and just be happy that I am going and attempting to actually do this under all of the circumstances this year!
Again CAPE COD here I come, one piece suit, and all!
Kara
__________________
TO VIEW MY CURRENT AND ONGOING VIDEO DIARY OF MY PUDENDAL NERVE DECOMPERSSION OPERATION AND RECOVERY, YOU CAN VISIT My Facebook Page:
http://www.facebook.com/profile.php?id=1158566812
You can also view my CURRENT PHOTO ALBUMS and some other secrets about me. Once you sign up, I'll add you as a friend if you mention you are from the ICN. It's FREE
Complex Case: Severe IC 1999, Interstim 2001, Endometriosis 2001, End Stage Refractory IC 2002, Bladder Removal (Cystectomy) 2002, Gall Bladder Removal 2005, Infertility 2003, Urethra Removal, Bladder Reconstruction (Urethrectomy/Indiana Pouch) 2006, Celiac Disease 2007, Adhesion Disease 2007, Pudendal Nerve Entrapment, Ovarian Cysts, Vestibulitis, Vulvodynia, Total Vestibulectomy and removal of both Skene's Glands, 2007 and Coccydynia 2007. Fibromyalgia and, Chronic Myofascial Pain Syndrome both in my neck and knees, 2007, PNE Decompression Operation May, 2009.Multiple Chemical Sensitivities, Anesthesia Awareness (to awaken during operations)
Unrelated to my Indiana Pouch and Urethrectomy, which were very successful and have improved my quality of life to a much better degree, I’ve also been diagnosed with a very painful condition known as Pudendal Nerve Entrapment, with Vestibulodynia. It's a very poorly understood condition that could have been treated years ago had we known what it was. To learn more about PNE, symptoms, diagnosis, causes, and treatments feel free to visit: [b] http://www.pudendalhelp.com/home.html
"One hour at a time, this was NOT my American Dream but it has to work out somehow."
I also have some journals of my journeys, past and some present at:
http://karasnewblog2008.blogspot.com/ and http://icnkaralynn.blogspot.com/
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