|
Our Sponsors:
Cystoprotek
Prelief
CystaQ
BladderQ
Lo Fric Catheters

NEW! Fall 2009 Now Available By Mail or Email

Winter 2010 Catalog Download A Copy

Heal Pelvic Pain

Klean Kanteen Stainless Steel Water Bottles

Please support this forum by making purchases in our shop!
ICN Subscriptions
ICN Contributions
Alternative Supplements
Books about IC
IC Diet Resources
Cystoprotek
CystaQ
Prelief
IC Friendly Beverages
Low Acid Coffees
Herbal Teas
Dry Mouth Products
IC Friendly Foods
Dr. Oetkers Mixes
Fiber & Laxatives
Pilates For Pelvic Pain
Feminine Hygiene
Chair Cushions
IBS Products
Men's Resources
Pelvic Pain Resources
Romance& Sex
Urine Test Kits
Very Private
Basis Soap
Water Bottles

Google ads help us generate revenue to keep this support site running. We strongly encourage you to be cautious consumers. The ICN does not endorse the products or services listed in these ads.
|
 |
08-10-2006, 07:08 AM
|
#1
|
|
Support Volunteers
Join Date: Mar 2003
Location: Northern WI
Posts: 3,676
|
I need some support
Sorry to ask for this. I haven't been around for a week or so, I've just been having a rough time. Firstly, I was diagnosed with post-partum depression. I've been on Lexapro and it is helping, but I still feel a little down. So much has been going on.
My nerve pain is not getting any better from the InterStim. I am so upset over this.
My husband's having a discogram on his back in a couple of weeks, and I'm worried about him.
My daugter is sick, on top of everything, with a cold and she's so sad. She just cuddles into me and wants to be held, she's just not her cheerful happy self and that makes me sad.
My husband and I are debating on permanent birth control. We've got a consult for a vasectomy set up, but it's so final. I keep going back and forth. Pregnancy was really hard on me, but I loved it so much. I am just having a really hard time with my IC and my fibro to get out of bed most days. My husband is a great help and is very understanding and loving, I just feel so sad that I can barely walk from the nerve damage and my body aches from the Fibro.
I just feel so down and like a failure. I was so sure I wouldn't get post-partum depression, yet I was diagnosed with it and I feel like I am failing my daughter somehow...
__________________
Mommy to a beautiful, wonderful, happy little girl Isabelle.
|
|
|
08-10-2006, 07:18 AM
|
#2
|
|
ICN Member
Join Date: May 2001
Location: Eastern USA
Posts: 5,524
|
I had post partum depression after my second child was born. It sucks.  I felt those feelings of failure, too, but Jess - you didn't cause or ask for the depression. You're not failing her - you've started medication, you're asking for support, and you're still cuddling and loving that baby girl.  The nice thing when they are so little is that most of what they need - love, cuddles, physical safety, and nourishment - you are doing! You're doing all of that AND you are doing the best you can.
Do you guys get out for play dates or anything like that? Are you able to meet up with other mommies? That helped me a lot. I know your daughter is sick right now, but when she's well it would be an option. I found that getting OUT helped me tremendously, even though it felt like a huge battle to get motivated to go out.
My IC started a month after my second baby was born --- so I was dealing with that on top of the underlying depression. I know how dark, lonely, exhausting and frightening it can be. DO NOT LOSE HOPE. This too will ABSOLUTELY pass even though it doesn't feel like it right now. I promise you that you will not feel like this forever. Believe that, OK, sweetie?
__________________
Kim
Diagnosed August 2001
Current IC meds: Elmiron (since 2001), Levaquin (one pill after intercourse to prevent UTIs), Lexapro (since 2003 for depression & anxiety, but also helps my IC)
Past IC meds: Amitriptyline (Elavil), Hydroxyzine (Vistaril), Detrol LA (They all helped, but I was able to discontinue them.)
My IC story: http://www.ic-network.com/patientstories/kim.html It's very outdated now. I've been virtually symptom free and able to eat & drink whatever I'd like for several years now.
*****************************
“We who lived in concentration camps can remember the men who walked through the huts comforting others, giving away their last piece of bread. They may have been few in number, but they offer sufficient proof that everything can be taken from a man but one thing: the last of the human freedoms -- to choose one's attitude in any given set of circumstances, to choose one's own way.” ~ Viktor Frankl
“You cannot control what happens to you, but you can control your attitude toward what happens to you, and in that, you will be mastering change rather than allowing it to master you.” ~ Brian Tracy
|
|
|
08-10-2006, 07:21 AM
|
#3
|
|
IC Friend
Join Date: Mar 2003
Location: Atlanta
Posts: 1,425
|
Jess,
You are not a failure! Post-partum depression is very common for women. One of my best friends had it with both of her children (and in fact, experienced depression during her first trimester with her second child) and she said it does lift after a while. Your hormones are all wacky right now and your body has gone through a lot in the last year or so! Try to be easy on yourself and trust that with time and medication, you will feel more like your old self. I'm sure you're very loving and affectionate with your daughter, so you are not failing her or yourself as a mom.
I'm sorry to hear you're still having nerve pain. That must be sooooo frustrating!  Have your doctors recommended any other meds or treatments to help with blocking the pain? I know it must be hard to manage all of this right now. Do you have family who can help you out at all, besides your husband? (Keeping my fingers crossed that his discogram comes back OK.)
Sending you lots of hugs so that you can feel better soon!
__________________
 Namaste
"You must be the change you want to see in the world." - Mahatma Gandhi

"The most important medicine is tender love and care" - Mother Teresa
Proud mother of Ahleia, born on April 9, 2007
-----------------------
Diagnosed with:
IC, OAB, Congenital urethral stricture, IBS, Vulvar vestibulitis, Heart murmur, Congenital cervical stenosis...but otherwise doing great!
Meds:
Currently in remission, but took the following for 3 years: Elmiron 200 mg., Elavil 25 mg., Detrol LA 4mg, Ovcon-35
Health treatments/practices:
Kripalu yoga, Chiropractic, Massage therapy and Reiki
|
|
|
08-10-2006, 07:44 AM
|
#4
|
|
No longer active
Join Date: Jan 2003
Posts: 5,656
|
Gosh no Jess you are not a failure, you are a thriving young loving mom and wife. You got through the toughest with you Ic and fibro and that was the pregnancy trust me I know how hard that was. You are headed down the right track you are getting the treatment and this will get better. I went through this all 3 times and it did pass with help and support. '
So sorry to hear that Belle is not feeling well that is a stressful thing for both of you, just take those little cuddles while she lets you before you know it they are all grown up and won't do that anymore. To hug my 14 year old is like coming towards a grizzly bear that just had cubs. ( not a good thing).
As far a hubby and the contraceptive issue, you guys are so young and someday there will be an IC cure and you may want to have another precious gift.
Give yourself a great big hug from me becasue I think you are doing a wonderful job
|
|
|
08-10-2006, 09:04 AM
|
#5
|
|
ICN Staff
Join Date: Jan 2002
Location: Memphis, TN
Posts: 10,693
|
Aww Jess, like the girls said, you are going to get better. I remember what is was like after I had my son. I was so down. They didn't call it post-partum depression back in those days. At least my doctor didn't use that term. They just told me that I would get a handle on all the new stuff that I was having to learn because I had a wee one to take care of. I thought that I was the worst mother in all the world. Why couldn't I be like ___ (fill in the blank)?
Belle will get better. Kids are always coming down with stuff. They love to swap illnesses amongst themselves. I don't know a baby who doesn't want to cuddle when they don't feel good. The trick is not to come down with it yourself.
Sending you lots of (((((hugs))))) and cuddles. Once a Mom...always a Mom.
__________________
Sharon
Shopping??? Did someone mention shopping? I'll get my hat... ;-)
Where I can be found most days.
If not there, then here
Link to the ICN Patient Handbook:
http://www.ic-network.com/handbook/
Link to the IC Diet:
http://www.ic-network.com/diet/
IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
|
|
|
08-10-2006, 11:15 AM
|
#6
|
|
Support Volunteer
Join Date: Oct 2005
Location: Central, NY
Posts: 2,827
|
Jess.
Jess,
I want to extend a hug to you and let you know that I am sure you are the best mom you can possibly be under the circumstances. You work with what you have and I'm sure you are doing just fine. Your daughter may sense that you are down and maybe that is why she is feeling down too. I don't know because I don't have babies but I wanted to let you know I am thinking of you, your husband, and your daughter.
Prayers and Hugs to you!
Kara
__________________
TO VIEW MY CURRENT AND ONGOING VIDEO DIARY OF MY PUDENDAL NERVE DECOMPERSSION OPERATION AND RECOVERY, YOU CAN VISIT My Facebook Page:
http://www.facebook.com/profile.php?id=1158566812
You can also view my CURRENT PHOTO ALBUMS and some other secrets about me. Once you sign up, I'll add you as a friend if you mention you are from the ICN. It's FREE
Complex Case: Severe IC 1999, Interstim 2001, Endometriosis 2001, End Stage Refractory IC 2002, Bladder Removal (Cystectomy) 2002, Gall Bladder Removal 2005, Infertility 2003, Urethra Removal, Bladder Reconstruction (Urethrectomy/Indiana Pouch) 2006, Celiac Disease 2007, Adhesion Disease 2007, Pudendal Nerve Entrapment, Ovarian Cysts, Vestibulitis, Vulvodynia, Total Vestibulectomy and removal of both Skene's Glands, 2007 and Coccydynia 2007. Fibromyalgia and, Chronic Myofascial Pain Syndrome both in my neck and knees, 2007, PNE Decompression Operation May, 2009.Multiple Chemical Sensitivities, Anesthesia Awareness (to awaken during operations)
Unrelated to my Indiana Pouch and Urethrectomy, which were very successful and have improved my quality of life to a much better degree, I’ve also been diagnosed with a very painful condition known as Pudendal Nerve Entrapment, with Vestibulodynia. It's a very poorly understood condition that could have been treated years ago had we known what it was. To learn more about PNE, symptoms, diagnosis, causes, and treatments feel free to visit: [b] http://www.pudendalhelp.com/home.html
"One hour at a time, this was NOT my American Dream but it has to work out somehow."
I also have some journals of my journeys, past and some present at:
http://karasnewblog2008.blogspot.com/ and http://icnkaralynn.blogspot.com/
|
|
|
08-10-2006, 11:28 AM
|
#7
|
|
ICN Staff
Join Date: Mar 2000
Location: Junction City, Oregon, USA
Posts: 26,114
|
I'd just like you to know that I have a great deal of admiration for you. You have faced your depression and it's being treated --- that alone tells me you are a wonderful mother. You went through a very tough pregnancy with not only IC, but the pain from a problem interstim that had to wait until Belle arrived. I sincerely hope that the problems created by interstim will resolve now that the unit has been removed.
Sending gentle hugs,
Donna
P.S. How I wish I could give little Belle a hug (and you, too)
|
|
|
08-10-2006, 01:25 PM
|
#8
|
|
Support Leader
Join Date: Aug 2001
Location: Green Bay WI
Posts: 9,765
|
__________________
Faith, Hope, and Love,
Katrina
~I’m a newbie angel~Moderator of Alternatives, Antibiotics, Flare Coping Strategies, and Yeast Infections
I believe God is using me, even now with my health so bad. He uses me for God. Things I gain from all my suffering are meant to help others. I hope I can help you too. Email me or start a chat if you like my help or anything. I CARE!Illnesses: IC,IBS, IBD, GERD, PFD, Epilepsy, Endo, Allergies, RLM,Rapid heart beat, low blood pressure,Gastritis,Gall stones,Tendonitis,migraines, Shingles, Prolapsed pouch,ext. fatigue (current problem) My hope story http://www.ic-network.com/patientstories/katrina.html
http://get-me.to/mandk
IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
http://www.myspace.com/Kat_671 or find me on facebook http://www.facebook.com/kat671?ref=profile
Be the Miracle! & Pay it Forward!
carmelann@charter.net please contact me...I am here to help! http://health.groups.yahoo.com/group/ICinWI/ if your from WI please contact me!
|
|
|
08-10-2006, 01:26 PM
|
#9
|
|
ICN Member
Join Date: Jul 2003
Posts: 417
|
__________________
Cali
|
|
|
08-10-2006, 01:33 PM
|
#10
|
|
IC Friend
Join Date: Jun 2004
Posts: 4,303
|
I think you are doing a wonderful job as a mom and a good human being, and a wife. You've been through so much but you are still there every day doing your best!
I hope so much things will turn out okay for you. I hope with time the nerve pain will go away - I truly believe that it will!
Blessings,
Lori
|
|
|
08-10-2006, 02:08 PM
|
#11
|
|
Guest
Join Date: May 2002
Location: Northern Michigan
Posts: 397
|
hugs and support
Hello Jess,
Although I don't know you other than through here, I can tell from what the others have said that you are a great mom.
Keep in mind that there is a huge change in hormones during and right after pregnancy -- like you, I also had the baby blues after my daughters were born. I struggled with the last one especially because I had my tubes tied during the C-section. There was that 'final' feeling that you seem to be referring to in your note.
Pray about whether or not to have anything done to be permanent -- there are other things you can do that will prevent pregnancy now, but allow you to get a period of time behind you so that you make the decision when you are feeling more like yourself again.
Hugs to you and your daughter.. perhaps if she is seeking hugs from you, she is not only sick, but feeling a little depressed and concerned about being replaced by a new sibling... this could be a good healing time for you and her. Nothing like housekeeping, etc.. is so important that it can't wait a week, or two, or three for that matter ... hug her and be hugged by her! It will be like a natural medicine to your soul!
HUGS,
Mary
|
|
|
08-10-2006, 04:15 PM
|
#12
|
|
ICN Member
Join Date: Jan 2003
Location: South Carolina USA
Posts: 6,899
|
Jess,
Even before Bella was born I thought you would be a wonderful mother. I still believe that to this day. Look at that baby she is so pretty and healthy! Yes you where handed a bad deal in life, but hon that has made you so much stronger because look what you have over came already! I know how that post par. depression can be. It will make you feel like your not being all you should be, but hon you are and much much more!
You are are an amazing lady wife and mother. Please think Twice before doing something so perm about birth-control you may find a very long time remission down the road or they may be a cure knocking at our doors soon if that was to happen and you wanted another angel you wouldn't be able to be blessed with yet another one.
Jess you and your husband both are so young to decide not to have any more children right now. I personally regreated having my tubed tied. I was 23 when i had that done.
I wish you well hon. I will keep you and Bella in my prayers. Once you get over this road block in your life you may see things in a totally different light.
Please wait until everything your dealing with right now has been resolved first.
sending you hugs and prayers.
Rhonda
__________________
Medicine taken daily or as needed:
1. Heaprin and Marcaine rescue installment 1 to 3x daily as needed.
2. MS.Cotin 100mg 3x daily
3. MSIR 30mg 1 or 2 every 4-6hrs as needed for breakthrew pain.
4. Fentanyl 100 mg Change every 48hrs.
5. Gentamicin 80mg install after each rescue treatment
5 Leviquin 500mg self start as needed.
6. Klonopin 1 or 2 daily as needed.
7. Prosed/DS as 1 every 6hrs as needed.
  
I have IC, but IC doesn't have me anymore!
|
|
|
|
Currently Active Users Viewing This Thread: 1 (0 members and 1 guests)
|
|
|
| Thread Tools |
|
|
| Rate This Thread |
|
|
Posting Rules
|
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts
HTML code is Off
|
|
|
All times are GMT -11. The time now is 06:21 AM.
|