Newly Diagnosed: I now have 2 diseases MS and IC - Interstitial Cystitis Network Support Forum

Natalie41 · 05-19-2006, 11:31 PM

Hello Everyone, In March of 2004 I was diagnosed with MS and Yesterday I was offically diagnosed with IC. I probably have had IC for about the last 5 years but I finally had all the tests run after changing uro's and getting a second opinion. Of course having MS complicated the whole thing. My MS started with numbness on my left side and losing my balance quite easily. It seems to be under control but since about this time last year I have had a gradual loss of bladder control to go along with the numbness and balance problems. I have always had weak bladder and have had numerous bladder and kidney infections over the years. Last fall I began having bladder pain and burning with no infection. I changed uro's for a second opinion and now I found out I have two incurable diseases instead of just one. I have been looking at this website for the last couple of months and I have been learning a lot about IC. My uro has put me on Elmiron and I will probably be having some instilations in the coming weeks. This seems to be a wonderful website and I am gald I found it. Thanks for reading.

Natalie

***ICNDonna*** · 05-20-2006, 03:48 AM

First of all, I'd like to say

to the IC Network. I'm also glad you found us.

It's good that your MS is under control; hopefully in a few weeks or months you'll be reporting that your IC is also under control. The Patient Handbook (link is at the top of this page) has some very helpful information, including the IC diet. Many people with interstitial cystitis find that just following the diet will ease their symptoms significantly.

Sending healing thoughts,
Donna

ICLori · 05-20-2006, 04:50 AM

Welcome - I'm sorry about your MS. I think I read somewhere that MS can also give IC like symptoms.

I hope you will be feeling better soon! If the Elmiron doesn't work for you (give it a good six months), try other medicines - there are tons of medicines mentioned here at the ICN to try. The problem is, none of the medicines for IC right now help everyone, so many of us have to try many, many medicines until we find what works for us. The key is, just not giving up!

Blessings,
Lori

Mrs. Burschman · 05-20-2006, 08:58 AM

Natalie,

I'm sorry! That sucks! I'm glad you found the site, though. It's always nice to know you aren't alone in your struggles!

Amy (Mrs. B)

tigger_gal · 05-20-2006, 09:07 AM

nice to meet you. I am glad you found us. There is a wealth of info with in these pages. Sorry that you have IC. Keep us posted on how you are doing.

Emmaline · 05-26-2006, 01:53 PM

Natalie

I was nearly diagnosed with MS (and have IC) but my physician realised it was Lyme disease! Since then he has diagnosed other patients with this too. Are you in the US?

If so ask on Lymenet http://www.lymenet.org how many folks there had M.S. diagnoses prior to getting tested for Lyme with a Lyme literate doc. I had optic neuritis, tingling, difficulty walking/bedridden the lot..now gone with antibiotics, though I ma not 100% cured yet. I have just had another IC flare after 3 yrs symptom free (enterococcus probably).

Have you had a broth culture done at UNL, Virginia?

Anyway just some thoughts...welcome to the board,

My 1st day here!

Emma