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05-11-2006, 11:30 AM
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#1
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Support Volunteer
Join Date: Oct 2005
Location: Central, NY
Posts: 2,827
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I am homesick
Hi everyone!
I miss my Husband, Kitties, and Bunny. I am thinking of returning to Central NY next weekend. I am eating and drinking normally, actually more than I normally do. With my first cystectomy I had some diarhea as I do with this reconstruction so I am not ready to ride back home yet. This is part of the reason I wanted to just stay put until it was time to have my tubes removed but it will be, all said and done 6 to 7 weeks from the day of surgery until I can go back to NYC. I'm surprisingly, not in much pain. It's just surgery pain. I am not taking any pain killers unless I absolutely need them and the only time that has happened was once when we drove home, other than that I am not needing the Vicoden. I will be so happy when I am settled down. The family that I am staying with is awesome! My Grandmother is with me and will be staying with me until this is over. Wendy has come to see me many times and this has helped tremendously. She is going to try to come out to visit me this weekend. I just want to curl up with my my oldest Maine Coon, Ghengus and get a good sleep. I would love to be in my own bed although I am not sure how I would be able to sleep in it as I have tubes coming out of both sides of me and a twin bed is more appropriate, but I don't have a twin anyway, so we'll have to figure something out when I get home. I want to curl up with my Husband and tell him how much I love him and how happy I am to be his Wife. I even look foward to hearing my nieghbors argue.
So hopefully 2 weeks here and then 3 weeks at home and then back here again for post-op trial of my new life. We can stay here as long as it takes for me to be comfortable to learn how to catheterize my stoma. I hope it does not take too long. I am rambling on and on here but this is the place for me to let out my feelings so here they are.
I miss my home.
Kara Lynn
__________________
TO VIEW MY CURRENT AND ONGOING VIDEO DIARY OF MY PUDENDAL NERVE DECOMPERSSION OPERATION AND RECOVERY, YOU CAN VISIT My Facebook Page:
http://www.facebook.com/profile.php?id=1158566812
You can also view my CURRENT PHOTO ALBUMS and some other secrets about me. Once you sign up, I'll add you as a friend if you mention you are from the ICN. It's FREE
Complex Case: Severe IC 1999, Interstim 2001, Endometriosis 2001, End Stage Refractory IC 2002, Bladder Removal (Cystectomy) 2002, Gall Bladder Removal 2005, Infertility 2003, Urethra Removal, Bladder Reconstruction (Urethrectomy/Indiana Pouch) 2006, Celiac Disease 2007, Adhesion Disease 2007, Pudendal Nerve Entrapment, Ovarian Cysts, Vestibulitis, Vulvodynia, Total Vestibulectomy and removal of both Skene's Glands, 2007 and Coccydynia 2007. Fibromyalgia and, Chronic Myofascial Pain Syndrome both in my neck and knees, 2007, PNE Decompression Operation May, 2009.Multiple Chemical Sensitivities, Anesthesia Awareness (to awaken during operations)
Unrelated to my Indiana Pouch and Urethrectomy, which were very successful and have improved my quality of life to a much better degree, I’ve also been diagnosed with a very painful condition known as Pudendal Nerve Entrapment, with Vestibulodynia. It's a very poorly understood condition that could have been treated years ago had we known what it was. To learn more about PNE, symptoms, diagnosis, causes, and treatments feel free to visit: [b] http://www.pudendalhelp.com/home.html
"One hour at a time, this was NOT my American Dream but it has to work out somehow."
I also have some journals of my journeys, past and some present at:
http://karasnewblog2008.blogspot.com/ and http://icnkaralynn.blogspot.com/
Last edited by Kara29; 05-11-2006 at 12:06 PM.
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05-11-2006, 11:45 AM
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#2
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Registered User
Join Date: Mar 2006
Location: South Dakota
Posts: 279
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I think it's a good sign that you are homesick. If someone is in too much pain, I would think that would be all they could think about!
I hope your recovery goes well and you're back home again soon!
Amy (Mrs. B) 
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05-11-2006, 11:46 AM
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#3
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ICN Staff
Join Date: Jan 2002
Location: Memphis, TN
Posts: 10,693
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Of course you do. Home is where I most want to be, especially when I am not feeling well. I do hope all the traveling you are talking about doing now won't be too difficult on you.
Saying extra prayers for you... 
__________________
Sharon
Shopping??? Did someone mention shopping? I'll get my hat... ;-)
Where I can be found most days.
If not there, then here
Link to the ICN Patient Handbook:
http://www.ic-network.com/handbook/
Link to the IC Diet:
http://www.ic-network.com/diet/
IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
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05-11-2006, 12:28 PM
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#4
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Guest
Join Date: May 2005
Posts: 3,712
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I am sending hugs and prayers that you have a speedy recovery.
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05-11-2006, 12:45 PM
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#5
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ICN Member
Join Date: Mar 2006
Location: Knoxville, TN
Posts: 856
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Kara,
It is really nice to hear from you. I am glad that you continue to write and give us updates on your progress. I think Amy is right about being homesick.
Besides, I always miss my pets when I am away too!!!
You'll be home soon and have a new life.
Hugs,
Wendi
__________________
Wendi
IC symptoms began in 1975;  diagnosed in March 2006.
Other conditions: PFD, Migraine, VV, Total Abd Hysterectormy on 12/27,06 for Cervical Cancer, Fibromyalgia.
Current Daily Meds: Roxicet, Methadone, Flexoril, Flomax
I use Prayer, Yoga, Relaxation Breathing and TENS to help relieve stress, anxiety and pain- LOTS of make up to hide my true identity!
myspace page: www.myspace.com/armslee
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05-11-2006, 02:40 PM
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#6
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ICN Member
Join Date: Jun 2001
Location: terre haute,indiana
Posts: 313
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kara i hope you are able to go home soon and am glad you are feeloing better.
courtenay
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