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Go Back   Interstitial Cystitis Network Support Forum > Share Your Interstitial Cystitis Story > Newly Diagnosed With Interstitial Cystitis
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Old 04-18-2006, 03:14 AM   #1
Dawn1216
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Question I have not tried Levsin yet

Ok, so they sent me home with about 6 prescriptions after my scope, but they did not say whether to take all of them or not. I saw the Atarax and Elavil had 6 refills so figured I needed to be on those. Well i can tolerate Atarax but definitly not Elavil. Maybe because I am already on Effexor 75 mg. So I used Pyridium to help with the pain after, but I didn't need hydrocodone. However I noticed they only gave me about 2 weeks worth of Levsin, aka Hyoscamine. I was thinking I had taken this but I confused it with Pyridium. I still have a little urethral discomfort after urinating. It's so hard to describe, almost like an uncomfortable tingling. Anyone think Levsin would help with this? I have a call into my doctor about it. Cause as of today I am only on Atarax and am pretty sure I will need a cocktail of meds to balance me out, not just one. I know it is an antispasmodic, but didn't know if it would help with the discomfort after going.
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Diagnosed with IC: April 7, 2006
Meds: Atarax and Detrol
Diagnosed with Ulcerative Colitis: July 2000
Meds: Asacol 400mg, Purinethol 50mg, Effexor 75mg

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Old 04-18-2006, 03:37 AM   #2
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Hyoscyamine is a smoothi muscle antispasmodic so if you're having bladder spasms, it could very well help. It may take a day or two to have any effect, however.

I can't tolerate elavil either.

Donna
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Old 04-18-2006, 04:40 AM   #3
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I hope you feel better soon.
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Old 04-18-2006, 07:35 AM   #4
ChrissySunshine
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Hi Dawn, I was rx'd Levsin S/L for bad spasms I was having. These were spasms like I had never felt before...my whole urethral/vaginal/rectal area was actually spasming uncontrollably every few seconds!!! When I took the hyoscyamine it immediately helped. I also have alot of internal pain that I think is difficult to determine if things in there are actually spasming...I sometimes will take a hyoscyamine if in doubt, and at times it HAS HELPED!
Hopefully your doc can help you with your meds today. There is so much to learn with all these meds!! I am on quite a "cocktail" too, but have done alot of research on each new med. It helps to KNOW what you're doing in treating this! You can also "search" meds by name on this site...I have found that very helpful when looking for info on specific meds.
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CurrentTreatments:
Started herbal teas 6/2/06 Marshmallow root, comfrey root, and catnip. 6/25/06 added Mullein Leaf Powder to tea.
IC Diet
Hydroxyzine 50 or 100mg at night (Is restarted)
Zoloft 100mg 4/8/07 (Is restarted)
Klonopin 1/2 mg 4 X Day (started 3/17/07)
Past Treatments: Amitriptyline, Neurontin, Hytrin, Heparin instills (was Dc'd after 5 weekly tx's due to severe urethritis), Superior hypogastric plexus block, E-stim, Elmiron instills (started 4/18/06-Dc'd 5/30/06 due to severe urethritis/infection requiring foley cath @ home 4 days), Oxycontin (oxycodone) (4/18/06)-pain (Dc'd 5/31/06), Levsin S/L (hyoscyamine) (3/17/06)-antispasmotic (Dc'd 5/31/06), Elmiron (1/24/06)-(Dc'd 6/25/06), Prelief, Zanaflex 4mg for PFD (Dc'd 10/1/06), CystaQ 1 in am & 1 in pm with food(started 5/12/06-increased to 2 in am & 1 in pm 9/20/06---Dc'd 10/18/06), Lyrica (started 10/26/06 up to 600 mg-Dc'd 12/4/06 due to urinary retention), Vicodin (hydrocodone) ES PRN for pain (Dc'd 1/4/07); Cymbalta 30mg (start 1/17/07) up to 60mg in am (1/26/07) (D/c'd 3/17/07); Ativan 1mg(Lorazepam)- PRN Anxiety (changed to Klonopin 1/2mg 4Xday 3/17/07); Pyridium (phenazopyridine) PRN-bladder analgesic; MSM (6/12/06) 1000mg after breakfast & dinner (Dc'd 3/15/07); Acidophilus (Natrol) 100mg. 1 capsule 1/2 hour before breakfast (5/20/06) (Dc'd 3/17/07)

Added BACK in - Atarax (hydroxyzine) (started 4/6/06 Dc'd 5/31/06) Restart 50mg at night 8/18/06, up to 100mg at night 1/4/07. Zoloft 100mg-Depression (Dc'd 7/25/06) Restart 4/8/07) 100mg.
Dx'd: Dec 05 (Positive PST in November and positive cystoscopy in Dec) Symptoms: Pain, frequency, urgency & retention


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Old 04-20-2006, 06:13 AM   #5
Dawn1216
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Exclamation

Thanks Chrissy Sunshine! This may sound weird, but how do you know you are having a spasm? My urethral area just feels weird after I go to the bathroom. Like when I stand up it's like something settles down there. It's such a weird tingling feeling. I guess that might be a spasm. Anyone else have that feeling???
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Meds: Atarax and Detrol
Diagnosed with Ulcerative Colitis: July 2000
Meds: Asacol 400mg, Purinethol 50mg, Effexor 75mg

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