ICN Support Forum & Message Boards
Sign up for our free ICN E-Newsletters!
Email:
- Take a moment each day to say "I am proud of myself." YOU are working VERY hard to live your life with IC with dignity and respect. Have you rewarded yourself recently??
- YOUR WORDS have the power to inspire or discourage other patients. Whenever possible, write ENCOURAGING messages.

Our Sponsors:
Cystoprotek
Prelief
CystaQ
BladderQ
Lo Fric Catheters


NEW! Fall 2009 Now Available By Mail or Email




Winter 2010 Catalog Download A Copy




Heal Pelvic Pain


Klean Kanteen Stainless Steel Water Bottles


Please support this forum by making purchases in our shop!
ICN Subscriptions
ICN Contributions
Alternative Supplements
Books about IC
IC Diet Resources
Cystoprotek
CystaQ
Prelief
IC Friendly Beverages
Low Acid Coffees
Herbal Teas
Dry Mouth Products
IC Friendly Foods
Dr. Oetkers Mixes
Fiber & Laxatives
Pilates For Pelvic Pain
Feminine Hygiene
Chair Cushions
IBS Products
Men's Resources
Pelvic Pain Resources
Romance& Sex
Urine Test Kits
Very Private
Basis Soap
Water Bottles


Google ads help us generate revenue to keep this support site running. We strongly encourage you to be cautious consumers. The ICN does not endorse the products or services listed in these ads.


NOW AVAILABLE!



Go Back   Interstitial Cystitis Network Support Forum > Share Your Interstitial Cystitis Story > Newly Diagnosed With Interstitial Cystitis
Register Blogs FAQ Calendar Mark Forums Read

Reply
 
Thread Tools Rate Thread
Old 04-13-2006, 08:00 PM   #1
mom2kk2006
IC Friend
 
mom2kk2006's Avatar
 
Join Date: Apr 2006
Location: British Columbia, Canada
Posts: 114
I have a few obstacles for you.

Ok when I first found out I had IC I couldn't get an appointment with the health food dietrition for a week so I went to see the health food store. I think that may have been a bad idea but would like some impoot. First I was a rundown wreck who wouldv'e taken anyones help those first couple days. She put me on acedompholis, kidney vitatmin (natural one of course) and a BUFFERED Vitamin C so it contains strengthening powers as in vitamin c but contains immunity strengthening powers of vitamin c without acidity.(Apparently IC requires this?) Anyhow I had an appointment wiht the dietician today and she told me to go off all the "crab" Except the acedopholis if I'd like as it's really good for those with IBS? What's with the Vitamin C deletion? She said buffered or not vitamin C is vitamin c regardless and I should be getting enough from the diet she gives me. My questions is what you you guys think of natural herb vitamins from health food store or what do I do about vitamins, I know I am run down from lack of sleep from not peeing.

Second of all I made homemade soup today, used a organic based chicken soup base ( ingreadiants: Salt, Yeast Estract, Starch*(potatoe*, corn*), Non Hydrogenated Palm Oil, chicken Fat, Dehydrated Chicken, Celery, onions, sugar, parsley.lovage, tumaric natural flavour) so I used plain cooked cut chicken, brocolli, celery, potatoe cubes and sliced carrots. I did use Garlic Salt but on the ingrediates it was just almond and garlic power???. I 've been looking at the diary and I've done well today until 6:00 when i ate my soup and then it's every 15 minutes, what's in the soup that I messed up on anyone know? You see I am not much of a cook so I'd love some advise. Could I just be peing so often because I had a good day and it's making up for it or does it stem back to the soup? I thought my soup was great ahhhhh.

By the way for those who have been following, I finally had a bowel movememt today....HOLY WAS I DOING THE HAPPY DANCE. Question for you with the vitaril along with Elmiron, do you find it works well for frequency and urgency and does it work a little bit faster or not so much?

So at the Dietitian, she's starting me off pretty heavy. Some say eggs some say no so I don't know but it really bothered her to cut it out completely. So some ideas for thos out there, In SAVE ON FOODS or your grocery store there organic isles, she said to buy brown rice hot cereal for breakfast or millet, or buckwheat pancake mix, brown rice, Rice Pasta ("Tinkyada")supposed to be the best, tapioca pudding, and Breyers Vanilla Icecream with no preservatives-watch for Benoates. She gave a few nice ideas.

Love to hear from you soon.
mom2kk2006 is offline   Reply With Quote
Old 04-14-2006, 04:49 AM   #2
ICNDonna
ICN Staff
 
ICNDonna's Avatar
 
Join Date: Mar 2000
Location: Junction City, Oregon, USA
Posts: 26,114
Blog Entries: 1
I would listen to the dietitian. She knows what she's talking about. I don't have a problem with health food stores, but the clerks there are not usually well trained --- in our city, most are college students with very little diet training.

Eggs are not a problem for me.

Donna
__________________
Have you checked the ICN Shop?
http://www.icnsales.com for US & Canada
http://www.icnshop.com for all others

Patient Handbook: http://www.ic-network.com/handbook

Diet list: http://www.ic-network.com/diet/2009icdietlist.pdf

You'll find my story at: http://www.ic-network.com/patientstories/donna.html

I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

Anyone who says something is foolproof hasn't met a determined fool
.....My Meggie.....
ICNDonna is offline   Reply With Quote
Old 04-14-2006, 05:02 AM   #3
mom2kk2006
IC Friend
 
mom2kk2006's Avatar
 
Join Date: Apr 2006
Location: British Columbia, Canada
Posts: 114
Thanks, looking forward to hearing more replies.
mom2kk2006 is offline   Reply With Quote
Old 04-14-2006, 05:40 AM   #4
patricia1
ICN Member
 
patricia1's Avatar
 
Join Date: Mar 2005
Location: Louisiana
Posts: 2,134
I would also tend to listen to the diet. that you saw. Also eggs are not a bothersome for me either...
__________________
God grant me the serinity to withstand the days ahead!!!

My myspace link...
www.myspace.com/patricia_luvs_matt


Patricia

In Memory of My Father (Lawerence) 1/25/2007

Procedures:
Interstim Sept 2001
1st InterStim Removal May 2005
2nd Interstim Implanted May 2005
2nd InterStim Removed March 2007
Hysterectomy 1999
Tubes Tied 1997
C-Section 1996


Me and my kids


Taylor (my daughter) Me and my daughter My son Cody and Taylor
patricia1 is offline   Reply With Quote
Old 04-14-2006, 08:57 AM   #5
kadi
Support Volunteer
 
kadi's Avatar
 
Join Date: Dec 2003
Location: California
Posts: 6,314
For me, onion is an IC trigger, so that might be what happened with your soup. But onion doesn't bother everyone, so you might want to retry that when you've been on the IC diet for awhile & your symptoms are reduced.


You might want to check out this link to the IC diet, maybe that will help you work with the dietician
http://www.ic-network.com/handbook/diet.html

Hope you are feeling better soon!
__________________
Kadi

-------------------------------------------------------------
I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
------------------------------------------------------

This week's favorite one-liner:
"I love deadlines. I especially like the whooshing sound they make as they go flying by...


New second favorite:
"And which dwarf are you?."

Adding a third because I'm just so darn easily amused...
"Eagles may soar, but weasels aren't sucked into jet engines."


Current treatments:
-IC diet
-Elavil 20mg at night
-Ditropan 5mg at night
-Continuous use birth control pills (4-5 periods/year)
-Heparin/Marcaine/Sodium Bicarb home instills every night & sometimes in the morning also
-Pyridium if needed, usually once a week or so
-1 Darvocet at bedtime,
-Flexeril 10mg at bedtime
-Dye Free Benadryl for allergies occasionally
-Pelvic floor & myofascial release (external only) physical therapy for 8 weeks, then home exercise program...
-Managing stress
-Fur therapy: Hugging the cat!
kadi is offline   Reply With Quote
Reply


Currently Active Users Viewing This Thread: 1 (0 members and 1 guests)
 
Thread Tools
Rate This Thread
Rate This Thread:

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Forum Jump



All times are GMT -11. The time now is 03:27 AM.


Powered by vBulletin® Version 3.8.1
Copyright ©2000 - 2010, Jelsoft Enterprises Ltd.
Copyright 2009 - IC Network