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11-06-2009, 08:30 AM
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#1
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ICN Member
Join Date: Nov 2009
Posts: 5
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Interstim lead revision surgery?
Has anyone had this surgery due to leads moving? I fell down the stairs 2wks after my my Interstim was implanted and it wasn't working right the last 2 months so the dr thinks it may have been pulled out/or loose. I only feel the stim in my butt cheek now,no matter what settings I use. How was recovery after the 2nd surgery? Mine took about 1 week before I had no pain and felt I could move around fairly easy. Only was on pain meds for 2-3 days though. My dr said it may be an easy recovery since the incisions are already there? ALso does insurance usually cover this the 2nd time since the leads moved b/c I fell?? Thanks!
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11-16-2009, 03:55 PM
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#2
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ICN Member
Join Date: Mar 2002
Location: Rocky Mountain region
Posts: 435
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Revision due to lead moving
See my posts from late '05 through my revision in 6/06. Insurance covered it, no problem.
__________________
IC & fibromyalgia for 31 years. Osteoarthritis for 20 years. Idiopathic Thrombocytopenia Purpura (icky blood disease) for 12 years. IBS for who knows how long. Interstim implant 2/04. Antibodies to thyroid 15 years (finally diagnosed & treated 1/06). Interstim revision 6/06. Asthma & vocal chord dysfunction 12/06. Hypoglycemia '07. Perimenopausal at 37, menopause at 45. Pituitary & adrenal failure.
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11-29-2009, 03:33 AM
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#3
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ICN Member
Join Date: Jan 2005
Posts: 162
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I had to have mine redone within three months of the first one. Insurance paid. Recovery was quicker and it worked actually better than the first time around... Good luck!
__________________
43 year old 
IC symptoms, all my life
Severe endometriosis since age 13, hysterectomy Oct 06
IC diagnosed 1/11/05, Interstim implant May 09
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11-30-2009, 05:36 PM
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#4
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ICN Member
Join Date: Feb 2007
Location: Wisconsin
Posts: 1,715
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I have had over 12 interstim surgeries! Most insurance will cover the surgery. Recovery was about the same for all of mine. I wish you the best of luck!!!
__________________
Current diagnosis
Severe IC, Severe Endometriosis(keeps growing back all over despite surgeries and treatment), Chronic ovarian cysts, Chronic Pelvic Pain Syndrome,Fibromyalgia,Inguinal hernia, bursititis of the hip, Migraines, IBS, Celiac disease, CROHN'S Disease, Chronic Constipation, Chronic anal fissures, Vulvodynia, Pelvic Floor Dysfunction, Pirisformis muscle spasms,vulvar vestibulitis, chronic insomnia, Burning Mouth Syndrome, Brain TUMOR, Chronic Lyme Disease,Temporomandibular Joint Disorder,Degenerative disc disease,Arthritis.
Allergies: Elmiron, Levaquin, Sulfa-Anaphylactic shock,Morphine, Doxyclycline,Cipro
Treatments I have tried:Bladder instillations, Oral meds-Elmiron, Elavil (amitryptyline), Hydroxyzine (Vistaril & Atarax), Ditropan, Levsin, Urispas, Urised, Pyridium, Cystoprotek, Desert HarvestAloe,antibiotics,Ultram,Neurontin,Valium,Tramadol,Lunesta,Ketor olac,Cipro,Meloxicam,Dilaudid,Morphine,Vicoden,Darvocet,oxycontin,Lyri ca,Cymbalta,Nortriptyline,Enblex,Baclofen,Clonidine,oxybutynin,Detrol, Nitroglycerine ,Vesicare,Sanctura(there are more but this is enough  )
Physcial Therapy, Cystoscopy with Hydrodistentions, Numerous Nerve Blocks, Neuromodulation-including Sacral neuromodulation(Interstim) and post-tibial nerve stimulation (Urgent PC-12week), Botox, bladder instills, physical therapy, natural(herbs)Current meds: Long list..just email if you are interested
Interstim implants--8 plus surgeries for them.
I am selling IC awareness bracelets, keychains, pens and pins..if interested please email me! ThanksFeel free to email me at mlzippy7@yahoo.com.
One day at a time 
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